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Jazper

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Wales (UK)
Gender: male

Hello
Nov 7^th, 2009 at 1:20pm

Hello Every one

My wife Bex (B on supporters forum) is logged on to this site nearly all the time. She has convinced me to start reading here and I am glad she did!!

I am newly diagnosed by my neurologist and waiting for my MRI scan result in case there is 2 brains in there or something.

I haven't really got a pattern although they happen more frequently around the time I go to bed. I'm lucky in the respect that I only get hit for about 15-25 minuets at a time and the most I have had is 3 in one day.

It's good to know that you lot are out there battling on showing me that my life hasn't suddenly hit a major road block.

Thanks
Jazper

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Jackie

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Go For It!!!

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Goshen, IN
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Re: Hello
Reply #1 - Nov 7^th, 2009 at 2:30pm

Hi Jazper....

I'm glad you decided to join in. These clusterheads are smart and always willing to lend a hand.

I'm a supporter to my hubby, Blake. We were glad B showed up (of course sorry for the reason) on the supporter board.

Stick around, read all you can and ask questions. Knowledge is power. You all will get a bunch of help, understsanding and support here. These are good people.

Jackie

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« Last Edit: Nov 7^th, 2009 at 5:18pm by Jackie »

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LeLimey Ex Member	Re: Hello Reply #2 - Nov 7^th, 2009 at 2:34pm Hello and welcome Jazper I KNOW I am going to spell your name wrong from time to time as my son is Jasper with an "S". Please forgive me in advance LOL He's a clusterhead too, as am I. I'm sorry you have to join us but welcome! Helen
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Hello Reply #3 - Nov 8^th, 2009 at 12:27am Dang glad you jumped on board with us! Knowledge is power with the beast and this place is the encyclopedia of CH knowledge! Welcome home. Joe
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Skyhawk5

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I love YaBB 1G - SP1!

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Ypsilanti, Mi. USA
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Re: Hello
Reply #4 - Nov 8^th, 2009 at 1:31am

Welcome to CH.com Jazper,

We wish you didn't have to find us but glad you did. We are all about helping each other and gathering the most up to date information on CH.

So ask questions, let out your troubles, and know that we do understand what this pain is about.

Read all you can around the site, including the links on the left of the screen, from medical info to oxygen info, this will help educate you about CH.

Best of luck, Don

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« Last Edit: Nov 8^th, 2009 at 1:33am by Skyhawk5 »

Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not.

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Jazper CH.com Newbie Offline I Love CH.com! Posts: 3 Wales (UK) Gender:	Re: Hello Reply #5 - Nov 12^th, 2009 at 10:57am Thanks for the welcome. I've just been given Imigran nasal spray and I used it for the first time today. WOW that stuff hurts!! It did work tho... I think. It completely wiped me out I was asleep within 5 minuets. No problem about the spelling LeLimey it's a nickname anyway.
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Hello Reply #6 - Nov 12^th, 2009 at 11:50am Welcome, Jazper. Best wishes, George
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Joni CH.com Old Timer Offline Knowledge is Power Posts: 476 Gender:	Re: Hello Reply #7 - Nov 12^th, 2009 at 12:24pm Glad you are here!
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Weatherman CH.com Veteran Offline Beat the Beast! Posts: 159 Charlotte, NC Gender:	Re: Hello Reply #8 - Nov 14^th, 2009 at 12:33am Joni wrote on Nov 12^th, 2009 at 12:24pm: Glad you are here! Yes, welcome!
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Jazper

CH.com Newbie

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I Love CH.com!

Posts: 3
Wales (UK)
Gender: male

Re: Hello
Reply #9 - Dec 1^st, 2009 at 7:09am

Hi again everyone

I'm off on another trip to see my neuro today...

He is now thinking I might have Trigeminal neuralgia as my hits don't seem to be lasting any longer than 25 minutes.
I have lots of lovely new pills to take at various times of the day as well.

They still can't work out why I get completely wiped out after a hit though Undecided

Was it this hard for everyone to find out what was going on???

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Kevin_M

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withered branches grow
green again.

Posts: 8754
Michigan, USA
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Re: Hello
Reply #10 - Dec 1^st, 2009 at 7:54am

Jazper wrote on Nov 7^th, 2009 at 1:20pm:

waiting for my MRI scan result in case there is 2 brains in there or something.

LOL!

They found the dime from the tooth fairy in me I thought was skipped.

Glad they are giving the attention for a good look at you.

Quote:

Was it this hard for everyone to find out what was going on???

On my own, who in the heck heard of clusters before you had them. The regular doc took a stab at migraines and gave me six trex, gone in two days, a referral followed. The neuro looked questionably at me first, perhaps because of the rare but distinctive instance of what it looked to be. Luckily he was abreast to identify, getting the right treatment was a different matter.

There was a time span before, well, because I kept not dying from them and they went away in time bearing, and then relief just having it identified, but getting manageable... took time.

Good luck to you.

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LeLimey

Ex Member

Re: Hello
Reply #11 - Dec 1^st, 2009 at 8:22am

Jazper wrote on Dec 1^st, 2009 at 7:09am:

Hi again everyone

I'm off on another trip to see my neuro today...

He is now thinking I might have Trigeminal neuralgia as my hits don't seem to be lasting any longer than 25 minutes.
I have lots of lovely new pills to take at various times of the day as well.

They still can't work out why I get completely wiped out after a hit though Undecided

Was it this hard for everyone to find out what was going on???

Hi Jazper,
Have they considered paroxysmal hemicrania?
It would well be worth asking for an indomethacin test to rule that out or solve your problem.
PH is different from CH in that the hits are shorter and can be a lot more frequent but also in it's responsiveness to Indo.
It can be pretty rough on your stomach so its worth asking for something to protect your innerds if you are prone to upset.

Hope this helps
Helen

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« Last Edit: Dec 1^st, 2009 at 8:22am by N/A »

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