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barry_sword

CH.com Alumnus

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Mountain Biking Keeps
Me Sane

Posts: 3947
Bracebridge, Canada
Gender: male

3 years ago today..
Nov 11^th, 2009 at 6:08pm

Angie discovered CH.com while researching CH's.
My neuro had me diagnosed already but we did not have the meds right and nothing about o2.
Thanks to DJ for creating this site and for all those, too many to mention individually, who came forward to help me. I was in full cycle at the time and the only thing working was the Prednisone taper but could not stay on that as we well know.
Today I have:
o2 and two 25 LPM regulators,
The new o2ptimask,
Verapamil at 480mg daily as my preventative while in cycle,
And all of you for support and life saving information and advise.
Thank you to each and everyone one of my family here, I do not know where I would be today without this site and all of you's. I am paying forward all I can to help the next person trying to deal with this crippling pain. I am proud to be one of the o2 Pushers! Wink

Barry

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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: 3 years ago today.. Reply #1 - Nov 11^th, 2009 at 7:11pm We're glad you found us, Barry...although sorry that you have the need to be here. You and Angie are a lovely addition to the family.
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LeLimey Ex Member	Re: 3 years ago today.. Reply #2 - Nov 11^th, 2009 at 7:16pm I'm sorry for you - but chuffed to bits for me! You and Angie brighten the days for a lot of us. I hate you have CH but I'm so glad to have got to know you both (((HUG)))
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Potter

CH.com Alumnus

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Team MOOSE DROOL Stinky
Stuff on a Hook Prostaff

Posts: 3600
Blgs.Mt.
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Re: 3 years ago today..
Reply #3 - Nov 11^th, 2009 at 7:20pm

barry_sword wrote on Nov 11^th, 2009 at 6:08pm:

Angie discovered CH.com while researching CH's.
My neuro had me diagnosed already but we did not have the meds right and nothing about o2.
Thanks to DJ for creating this site and for all those, too many to mention individually, who came forward to help me. I was in full cycle at the time and the only thing working was the Prednisone taper but could not stay on that as we well know.
Today I have:
o2 and two 25 LPM regulators,
The new o2ptimask,
Verapamil at 480mg daily as my preventative while in cycle,
And all of you for support and life saving information and advise.
Thank you to each and everyone one of my family here, I do not know where I would be today without this site and all of you's. I am paying forward all I can to help the next person trying to deal with this crippling pain. I am proud to be one of the o2 Pushers! Wink

Barry

You rock. Don't fall off your bike

Potter

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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: 3 years ago today.. Reply #4 - Nov 11^th, 2009 at 7:26pm I'm so glad you and Angie are here, Barry. I will always remember our dinner meeting, my daughter being worried about axe murders () and you two being sweet enough to come to my birthday/retirement party and putting up with my crazy family and friends. I treasure those memories and the pictures. Hugs Carol
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: 3 years ago today.. Reply #5 - Nov 11^th, 2009 at 7:44pm So glad Angie found this site Barry, especially since I value your friendship and support immensely! Love you brother! mel
Back to top	« Last Edit: Nov 11^th, 2009 at 7:45pm by Melissa » Diseases can be our spiritual flat tires - disruptions in our lives that seem to be disasters at the time but end by redirecting our lives in a meaningful way. ~Bernie S. Siegel IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: 3 years ago today.. Reply #6 - Nov 11^th, 2009 at 8:16pm Happy third anniversary Barry. Your contributions here, help all of us us too.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: 3 years ago today.. Reply #7 - Nov 11^th, 2009 at 8:24pm No question you've been one of the brighter lights on this board. Hugs to your wife for getting you here! Joe
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: 3 years ago today.. Reply #8 - Nov 11^th, 2009 at 8:36pm Well said Barry...classy as ALWAYS... Proud to be in the same family. Best to you and Angie, Jon
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: 3 years ago today.. Reply #9 - Nov 11^th, 2009 at 8:51pm You seem to have a handle on this CH thing. Now get yer ribs fixed.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: 3 years ago today.. Reply #10 - Nov 11^th, 2009 at 9:41pm CH he's good with...........keeping the rubber side down...THAT he struggles with! Joe
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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: 3 years ago today.. Reply #11 - Nov 11^th, 2009 at 9:52pm I have been here morning, my lunch, then after work almost everyday for three years, and will continue. Thank you for being there for us and all the other suffers and supporters, you all are the best of the best!
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: 3 years ago today.. Reply #12 - Nov 12^th, 2009 at 7:35am Thankin' Angie for looking out for you, happy for you handling through, and grateful to have you two being here. Hey yeah you rock!
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: 3 years ago today.. Reply #13 - Nov 12^th, 2009 at 12:21pm Happy third anniversary, Barry. You and Angie are truly assets to this community. Glad to know ya. All the best, George
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Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: 3 years ago today.. Reply #14 - Nov 12^th, 2009 at 1:05pm Barry I'm sure your sound advice has helped alot of people in those 3 years and we all enjoy the those crazy little mountain bike crash videos you post now and again... Lefty...!
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: 3 years ago today.. Reply #15 - Nov 12^th, 2009 at 3:42pm Happy 3rd Barry and we'll all glad to know you. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Charlie
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cynjeep89 CH.com Alumnus Offline Posts: 1626 Delaware\| Gender:	Re: 3 years ago today.. Reply #16 - Nov 12^th, 2009 at 5:48pm Three years?? Guess we have to keep you, eh? Sheesh You and Angie are like my brother and sister and I love you both.
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: 3 years ago today.. Reply #17 - Nov 12^th, 2009 at 9:36pm Glad you found us. You've been a big help to me over the last three years. Here's hoping you go PF forever, but stay around to help the rest of us out. Jerry
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catlind

CH.com Moderator
CH.com Alumnus

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Surf's Up!

Posts: 4536
Weaverville NC
Gender: female

Re: 3 years ago today..
Reply #18 - Nov 13^th, 2009 at 7:55am

Sorry it took me so long to post to this. Barry, you and Angie have been genuine angels on earth since joining this family. You have both been there for me through some pretty difficult times, and your support and encouragement has made a huge impact on me and in my life.

I want you both to know, that sometimes people won't ever say a word, and may remain completely anonymous to you, but you have done things that have made tremendous impacts in their lives. I just want to be sure you 'hear' it, that you have had certain and absolute influence for the better over the life of another person and probably made sure that I kept going when I might otherwise have chosen not to.

I hate that you have this dreaded disorder, but if it's what was necessary for me to cross paths with you, the benefits have far outweighed the costs, and I will return the favo(u)r to you both every opportunity I get.

Cat

p.s. Wiley says that Ceasar is fine but wishes you would really get a bigger bed so he has more room Wink

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A true friend is someone who reaches for your hand and touches your heart.

If yer gonna be stupid, ya gotta be tough

Who is John Galt?

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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: 3 years ago today.. Reply #19 - Nov 14^th, 2009 at 3:12pm This is one awesome family and damn proud to be a part of it. Thank you for all the kind words, means so much to me and Angie.
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