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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › Sorry for sad questions :(

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Sorry for sad questions :( (Read 6745 times)

LittleTomato

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Sorry for sad questions :(
Nov 15^th, 2009 at 4:58pm

Some live circumstances lead me to your site.
I really really need your help.
I read a lot of information about cluster headache, and cannot find the main question for me.
Why it can kill? How fast?
Could you please share with me lethal complications from such headaches?
In what cases it can lead to lethal outcome?
How long or fast such headache can broke the heart, for example, and kill.
Sorry for such sad questions. I really need to know the worst ways. It is a question of live or death.

Kind regards and looking forward for your help

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Sorry for sad questions :( Reply #1 - Nov 15^th, 2009 at 5:03pm The only way cluster headache syndrome has killed, as far as I know, is through suicide. It is a completely non-lethal affliction. Painful as anything, but it does not kill by itself. Not sure where you're getting your information. If you hang around here, you'll get the real scoop.
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FramCire

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Re: Sorry for sad questions :(
Reply #2 - Nov 15^th, 2009 at 5:13pm

Are you looking to killl cluster headaches or find out how cluster headaches kill people??

Brew is right, CH is not a disease that kills people.

As for killing the headaches..... there are a lot of ways. Oxygen (see link to left) is one.

Please let us know exactly what information you need and I bet we can come up with it.

You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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lorac

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Re: Sorry for sad questions :(
Reply #3 - Nov 15^th, 2009 at 5:20pm

Oh .. Little Tomato...Don't worry, CH won't kill you.

If you read all you can here, you will learn ways to deal with it. There is a lot of ways these folks here can help you,,, most of all just having someone else who knows what you go through.

Where are you from? Do you have a good Doctor who prescribes you Oxygen? That is the best!

Many of us here have lived with this for many many years, so not to worry!

Ask all the Questions you have....No question is left unanswered. Lorac

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Weatherman

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Re: Sorry for sad questions :(
Reply #4 - Nov 15^th, 2009 at 8:41pm

Cluster Headaches will try to break you down...try to break your heart...try to break your spirit...try to make you give up and end it all.
What we do is fight back!!! And for many of us the best thing we have found to fight back is this website!! Congratulations, you found it too!! Here you will find all the answers to all your questions about Clusters. Here you will find hundreds of other people that suffer from the same pain you do...people that really do understand and really do want to help.

You WILL find help here!! Stick around. Tell us more about yourself and your situation. Ask questions. Read!

Welcome. God Bless!

The point of the journey is not to arrive.

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chrisw

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Re: Sorry for sad questions :(
Reply #5 - Nov 16^th, 2009 at 8:09am

CH will almost kill you if you let it. They aren't called suicide headaches for nothing. I can't tell you the number of times that I have thought about ending it all during the dark times.(that is why my husband is not allowed to own a gun). However, it seems that if you reach out for support, and you can find tons here on ch.com, you will start to feel that there are things you can do to help yourself. There is help out there, even if you have to find it for yourself.
Clusters will sink you into a deep depression if you let them. Every time that starts to happen, you have to ask for help and the good people here will put their arms around you, give you good advice, and pull you back into living again. Don't give up.

Good luck,
Christine Kiss

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Bob Johnson

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Re: Sorry for sad questions :(
Reply #6 - Nov 16^th, 2009 at 8:20am

CH is not a disorder which endangers us in the long run. There is no fatal pathology as part of the disorder.

I can imagine you hearing a story about someone with severe headaches dying of a brain tumor but, in such a situation, you would not be dealing with cluster headaches.

Your message conveys much anxiety. It would be help us to aid you if you would more fully tell us about the source of your concerns.

Bob Johnson

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LeLimey

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Re: Sorry for sad questions :(
Reply #7 - Nov 16^th, 2009 at 8:25am

Little Tomatoes are some of my favouritest things in the whole world so I HAVE to try and help you!

You have had some wonderful advice so far from some terrific and compassionate people. At the risk of sounding rude, and I don't mean to, is there another language it would be easier for you to communicate in? If so please say and we'll see what we can do to help. If you are happy talking in English that's fine! We would love to help you here and I think everyone who has posted so far is very concerned about you and we NEED to know you are okay.

We want to help, let us know how we can

Helen

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LittleTomato

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Re: Sorry for sad questions :(
Reply #8 - Nov 16^th, 2009 at 4:14pm

Thank you very much, for your replies. I really appreciate your help. And I really need help.

Sorry for this strange message. Unfortunately, this is the real case.

I do not know the reason of the problem. As I Understand the headaches are the consequence only. It is visible pain. I do not know what it breaks in the body. I know it DOES. I know it kills.
This is a verdict made by doctor. The problem it is not me. He do not want to tell me the truth, the only I know He will have several years probably a little bit more.

That is why I am looking for any information when and why the headache pain can occur and what reasons can be. I know this is cluster headaches.

I am sorry for disturbing you, Dears.
I am just looking for the truth hoping somebody knows something very rare information for example.

Sorry again if I mistaken with the forum.

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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Sorry for sad questions :( Reply #9 - Nov 16^th, 2009 at 4:21pm Please believe us that Cluster headaches DO NOT kill. You were misinformed. Wish I knew how to help you more. Where are you from? We would like to know more about you so maybe we can help you better. Jeannie
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: Sorry for sad questions :( Reply #10 - Nov 16^th, 2009 at 4:54pm Quite frankly, if the doctor diagnosed cluster headaches and told you they were fatal, THE DOCTOR IS WRONG. I would get a second opinion immediately. If the diagnosis was something else, or something IN ADDITION to Cluster Headaches, that's a whole different scenario.
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LeLimey Ex Member	Re: Sorry for sad questions :( Reply #11 - Nov 16^th, 2009 at 5:38pm Little Tomato, We're all very very worried. There is definitely some confusion here with what you have been told. Please come back so we can see if we can help, we will do our best. Helen
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QnHeartMM

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Re: Sorry for sad questions :(
Reply #12 - Nov 16^th, 2009 at 5:41pm

Talk to us LittleTomato - we are either fellow sufferers or friends/family of people suffering from CH. Let us know what part of the world you are in. One of us can call and talk to you privately to answer more questions. Or we can do it via message. It sounds to us as if you have some mis-information, or maybe we don't have enough info to help you.

We are here for you!

Treat people with kind words.

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FramCire

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Re: Sorry for sad questions :(
Reply #13 - Nov 16^th, 2009 at 5:46pm

Little tomato: 1st, can you tell us what language you speak. Maybe we can get someone to talk to you in your native tongue.

2nd, it sounds to me like you think it is cluster headaches but the doctor is saying it is something fatal.

3rd, we are happy to help answer your questions. Please keep asking..... we will get you whatever answers we can!

You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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Jrcox CH.com Veteran Offline I Love CH.com! Posts: 123 FARMINGTON, MN Gender:	Re: Sorry for sad questions :( Reply #14 - Nov 16^th, 2009 at 9:47pm Wow this is scary. Little tomato, are you their? allot of us very worried. Please explain more. I've had these for 14 years. I've seen 3 neurologist (sp?) I am positive they are not fatal unless it results in suicide. Please get back to us. We want to help.
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Callico

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Re: Sorry for sad questions :(
Reply #15 - Nov 16^th, 2009 at 10:08pm

Little Tomato,

Please set your mind at ease. I've had Cluster Headaches for over 32 years, and if they were fatal I would have been dead a long time ago. They are severe, possibly the most severe pain known, but they do no direct harm to the body. The only lasting harm done is due to what we do to ourselves to try to lessen the pain. You will learn proper methods of dealing with the pain here that will not harm you or your loved one, and you can learn methods of preventing many of the attacks before they happen.

Please feel free to ask any questions you wish, and be as specific as you can. We are not Drs., but have dealt with this malady for many years, and have dealt with many Drs. along the way and can share what we have learned from them.

Jerry

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Jrcox CH.com Veteran Offline I Love CH.com! Posts: 123 FARMINGTON, MN Gender:	Re: Sorry for sad questions :( Reply #16 - Nov 16^th, 2009 at 10:39pm Very well said Jerry. Jrcox
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Re: Sorry for sad questions :(
Reply #17 - Nov 16^th, 2009 at 11:51pm

Xin chào cà chua ít
Привет немного томатного

There are many rare things we know of cluster headaches for instance it can be caused by a tumor or disease in the carotid arterie but its rare. The headaches can be a symptom of this.
There is much more we know but you must provide more details as to why you ask these questions so the people above can answer as you need..

For information on cluster headaches this is the best place.

« Last Edit: Nov 17^th, 2009 at 12:22am by MJ »

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Poli CH.com Junior Offline Posts: 37 Alicante\|Spain\|Europe Gender:	Re: Sorry for sad questions :( Reply #18 - Nov 17^th, 2009 at 5:49am Hola Tomatito, ¿podemos ayudarte? Saludos Poli (looks like spanish/english)
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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Sorry for sad questions :( Reply #19 - Nov 17^th, 2009 at 10:14am Poli wrote on Nov 17^th, 2009 at 5:49am: Hola Tomatito, ¿podemos ayudarte? Saludos Poli (looks like spanish/english) Spanglish
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Linda_Howell

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Re: Sorry for sad questions :(
Reply #20 - Nov 17^th, 2009 at 10:43am

Quote:

I do not know what it breaks in the body. I know it DOES. I know it kills.

All of us who have responded to you are telling you the truth. It does NOT break anything in the body. It does NOT kill. Please believe us. Any Doctor who would tell you that is VERY, VERY, VERY mis-informed and you should see someone else as soon as possible.

I have had these headaches for 22 years..all of them chronically. They cause extreme pain. They cause depression. They cause life-style changes. They do NOT cause death.

Hurt people.....hurt people. Think about it.

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BMoneeTheMoneeMan

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Re: Sorry for sad questions :(
Reply #21 - Nov 17^th, 2009 at 11:58am

Hi Lil Tomato

I think I understand what you are saying......
Do you mean 'kill' in the literal sense of the word or are you using it figuratively?

Clusterheadaches do not make you die...literally.

Clusterheadaches can make you feel as if your life has ended. You can feel alone, in pain, depressed, hopeless and outright scared. It can seem like an impossible up-hill battle to get control of them and learn to LIVE with them.

Rest assured, you won't die from cluster headaches. If your doctor has said clusters will kill you, he is an absolute baffoon.

"Fool me once, shame on, shame on you. Fool - can't get fooled again"&&&&&&Think of how stupid the average person is, and then realize half the population is stupider than that.&&&&

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LittleTomato

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Re: Sorry for sad questions :(
Reply #22 - Nov 17^th, 2009 at 1:53pm

Thank you for your warm words. It is really helpful. I am really appreciating your responses.

English is comfortable for me. This is my second language not native. I can do mistakes but I understand every word you say.

Yes, I understand that cluster headaches are not fatal. When I am talking about “kill” I mean real death. Sorry for this 

Unfortunately, I do not know much that is why I need the help.

Actually I do not have much to tell. I have a lot of questions.

There is a young man around 28 years old I love so much and can’t live without him. He has some disease and the headaches ARE the main and painful symptom of this.
I know that is NOT tumor and I know that is rare case.
I know these are cluster headaches.
I know that he do not have much time, several years, probably.
He knows his diagnose and the verdict is sad, and this is not mistake.

He had a lot of terrible stresses in his live and lost the relatives. I know that it was the main reason – terrible stresses, so it can be some nervous problems.

That is why I am looking for any diseases which have cluster headaches in symptom list as main pain. This is the main question.
Can somebody share with me all the rare cases he/she knows? I will analyze and find the closest and possible one.

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LeLimey

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Re: Sorry for sad questions :(
Reply #23 - Nov 17^th, 2009 at 1:59pm

I see where the confusion is coming in for you

Cluster Headaches are a condition in their own right, it is thought they can be a secondary condition in some other conditions such as a pituitary tumour. Some people who have had pituitary tumours removed have had a complete cessation of their cluster headaches.

A Pituitary tumour in itself isn't necessarily fatal. Some are operable and some are not. I suppose, depending on where it is and how it could grow it could cause complications which MIGHT lead to death but I don't know. None of us can.

Can your friend get more information for you from his doctor? It's almost impossible to do research when you don't know what you're looking for but my heart goes out to you trying to help and understand so much.

If you can find anything else, let us know. We will move heaven and earth to help you. You have a lot of people praying for you here now and aching to help!

I'm Helen, can we ask your name too?!

Keep updating us - we're all looking several times a day for updates!

Helen

« Last Edit: Nov 17^th, 2009 at 2:00pm by N/A »

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LittleTomato CH.com Newbie Offline I Love CH.com! Posts: 7	Re: Sorry for sad questions :( Reply #24 - Nov 17^th, 2009 at 2:18pm Sure, Helen. My name is Helga. Nice to meet you and all CH team here. I undetstand that my information is not enough. I'll try to get more and this site helps me. Thanks
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