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This made me so ANGRY! (Read 3985 times)
Marc
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Re: This made me so ANGRY!
Reply #25 - Nov 19th, 2009 at 7:16pm
 
You must have a really good imagination because I didn't say anything beyond offering to help a friend  Wink
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Layla328
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Re: This made me so ANGRY!
Reply #26 - Nov 19th, 2009 at 9:20pm
 
Hi Helen Smiley

I am doing really well, longest headache free period ever (since age 14) so definitely something I feel good about.  Been taking magnesium, Vitamin D, C, E and melatonin (6 mg)--so don't know if that is what is doing it or if I am just aging out of them lol!  Anyway, knock on wood they will stay away.  Hope you are doing well!
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Kevin_M
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Re: This made me so ANGRY!
Reply #27 - Nov 20th, 2009 at 2:35am
 
Layla328 wrote on Nov 19th, 2009 at 9:20pm:
I am doing really well, longest headache free period ever ...


Good to hear, Star.    Smiley   And with less melatonin.
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Bob P
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Shut up Bob!


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Re: This made me so ANGRY!
Reply #28 - Nov 20th, 2009 at 8:04am
 
Quote:
Need some help? _ _ _ _ H   

Actually, I've changed my stance on this.  If they're older, have a mustache and/or beard and a slight balding spot, they may get them.  It's that testosterone thing.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.  "SHUT UP HUB!"
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Layla328
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Re: This made me so ANGRY!
Reply #29 - Nov 20th, 2009 at 12:08pm
 
Thanks Kevin!  That is funny that you remember that--yep I have cut down on melatonin quite a bit lol.  Hope you're doing well!
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mlmasd00
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Re: This made me so ANGRY!
Reply #30 - Nov 23rd, 2009 at 10:01pm
 
Read this post and had to respond! I am a female who is having some big problems getting a diagnosis of CH just because I'm female. I can't tell you how many times I've heard, "You don't have cluster headaches because you aren't the typical CH sufferer." And I have also been told that I'm having clusters of migraines and not CH's!!! It is extremely frustrating because I fit the cluster quiz PERFECTLY! Even the neurologist told me he "doesn't want to jump to the diagnosis of CH when what I’m suffering from is probably just a different type of migraines then what I've had in the past." What's up with Doctors refusing to label something as a cluster headache? Regardless if ALL symptoms point that way? It's not that I'm hell bent on being diagnosed a clusterhead but I feel like I won't ever get the proper treatment without the correct diagnosis! I agree it’s very aggravating.  Angry
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exmed1
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Re: This made me so ANGRY!
Reply #31 - Nov 26th, 2009 at 12:03pm
 
My 9 year old daughter started bad headaches about two years ago.  Ended up at Paed Neuro and because I an CCH he decided it was a family thing and so put her straight on to Sumitriptan.  I used to be a practicing medic and it horrified me, it's not generally licenced for kids under 18. I refused to fill the script and went back.  Seen by another Paed Neuro who was aghast at the Sumitriptan script and said NO.  He's trying her on Pizotifen syrup and it seems to generally make her headache free.  Just because one of us is CCH it seems a label can be stuck on other family members.  Watch out for that, in our case it seems our daughter (hopefully!!) is not CH but childhood Migraine - a whole different ball game.
Best of luck
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Kevin_M
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Re: This made me so ANGRY!
Reply #32 - Nov 26th, 2009 at 10:40pm
 
Joni wrote on Nov 19th, 2009 at 2:34am:
... the consequences of people being unacknowledged or not believing you ...

I don't explain much anymore.


Beyond this scope, had read of a survivor of Auschwitz, a death march to Dachau, then five months hospitalization.  He visits an aunt after the war who went on about wartime, "My dear Charles, if you only knew how hungry we were here!"  Hearing that, his efforts to talk about it ended.  Some met disbelief.

We're not the first, worst off, or last with transmitting endured.  Others struggle, seems sometimes if you want to hear a mind's grasp of comparable or outstepped, maybe disregard, just bring up yours.


Thanks, Deej.
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« Last Edit: Nov 26th, 2009 at 10:52pm by Kevin_M »  
 
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