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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › In Love with a CH and SCARED !!

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In Love with a CH and SCARED !! (Read 1022 times)

chsbabydoll

CH.com Newbie

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Stay Strong !!

Posts: 17
Rochester NY
Gender: female

In Love with a CH and SCARED !!
Nov 20^th, 2009 at 10:18am

I am very new to all of this. I have a wonderful boyfriend Bobby. We've known eachother for about 1 year. dating for a few months. Right from the beginning he told me all about cluster headaches. I've asked him what i should do for him durring this cycle of attacks. He has armed me with all the weapons. Caffine, zomig, ice, etc... he seems to know what works for him. I have read on these forums to stay strong and just do exactly what he wants. The last thing your sufferer needs is to worry about their partner. Inside I just want to scream and cry!! I feel so helpless... Is there more of people like me out there? Support groups in my area?? Cry

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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: In Love with a CH and SCARED !! Reply #1 - Nov 20^th, 2009 at 10:22am There's a supporter's group on this website. I'm trusting one of the moderators will come along and maybe move your post to that section. If not - rest assured the other supporters will find you. God Bless our supporters!!!! Carol
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Martin CH.com Veteran Offline Ready for anything this world can dish! Posts: 101 Ottawa, Ontario Gender:	Re: In Love with a CH and SCARED !! Reply #2 - Nov 20^th, 2009 at 10:35am CH's are painful, sure, but they are not damaging. He'll be fine, and if he knows whats good for him - all the better. Maybe oxygen, too? IT can work to abort a hit in 5-10 minutes, which is nice.
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chsbabydoll

CH.com Newbie

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Stay Strong !!

Posts: 17
Rochester NY
Gender: female

Re: In Love with a CH and SCARED !!
Reply #3 - Nov 20^th, 2009 at 10:59am

Thanks for the quick responses... It sure looks like it's the worst pain EVER. Nothing I've ever experienced comes close to what I've see him going through. I'm a tough chick and this scared me. I am holding strong for him and crumbling when he isn't around. I have spent most of the past few nights on this website and a few others soaking up as much info as i can.

Any advice is welcome here... all of you who suffer from CH are truly the strongest people I know. Thank you for everything you offer !!!

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Martin

CH.com Veteran

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Ready for anything this
world can dish!

Posts: 101
Ottawa, Ontario
Gender: male

Re: In Love with a CH and SCARED !!
Reply #4 - Nov 20^th, 2009 at 11:17am

Get used to it; I'm not even one of the nice ones.
Some of the smartest, most compassionate, kind individuals I have ever known are on this site. No word of a lie.

There are modern treatments to CH's; perhaps send your other half over to this site and see if he's interested.

Imitrex injections, and oxygen (LINKS ON THE LEFT THERE) are very popular. Lots of recent breakthroughs in Oxygen use....

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bejeeber

CH.com Hall of Famer

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Posts: 1359
Gnashville
Gender: male

Re: In Love with a CH and SCARED !!
Reply #5 - Nov 20^th, 2009 at 11:47am

Hey CHS,

Sounds like your guy has taken steps to arm himself and give this beast a good run for its money. That's a real good thing.

If you're routinely seeing him suffering though, I'm guessing there may be a few more tricks we could slap on him here, so he could more consistently prevent/abort CH attacks. That is if he isn't on here already!

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Guiseppi

CH.com Moderator
CH.com Alumnus

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San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: In Love with a CH and SCARED !!
Reply #6 - Nov 20^th, 2009 at 11:50am

Bless your heart for being a supporter. My poor wife has endured over 30 years of my CH and hasn't kicked me to the curb yet!

Do try to get him on here so we can take a look see at what he's doing for his attacks. Maybe we can make some suggestions he can take back to his doc to tweak his regimen a bit.

Thanks again for logging on, many of us would be lost without our supporters.

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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LeLimey

Ex Member

Re: In Love with a CH and SCARED !!
Reply #7 - Nov 20^th, 2009 at 1:48pm

I'm not in your area at the moment but I will be next month. I'll be in Syracuse. If there is anything I can do to help you or Bobby it would be my pleasure. I'm a sufferer myself but a supporter too as I have both a son and a partner with CH. We're a right "family" LOL
I'm Helen by the way, it's nice to meet you!
Helen

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Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: In Love with a CH and SCARED !! Reply #8 - Nov 23^rd, 2009 at 10:33pm Just in case Bobby is taking the pill form of Zomig, it also comes in an inhaler that is much faster acting. I'm another O2 user and wouldn't be without it. We only use it to abort the hits and it is very quick when used properly. Good luck, Don
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