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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Many years

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Many years (Read 947 times)

Stubeedoobee

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Many years
Nov 23^rd, 2009 at 10:30am

Hi all. I am a 53 year old guy and I have suffered with these migraines about 2/month since my early 20s. I recently found out on my own what I have been dealing with, as I was diagnosed with "occipital migraines" due to tension. But I know my #1 trigger is abrupt atmospheric pressure changes, and I had to find out on my own. I am posting something about FMLA on another Forum area which may be of interest to people. I wish you all the best. Anyone who has never dealt with this type of pain cannot imagine what it is like. Stu

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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: Many years Reply #1 - Nov 24^th, 2009 at 7:40pm Have you actually been diagnosed by a MD or possibly a headache specialist? Diagnosing oneself is not the best way to go when dealing with cluster headaches.
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Stubeedoobee

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Re: Many years
Reply #2 - Nov 25^th, 2009 at 3:52pm

deltadarlin wrote on Nov 24^th, 2009 at 7:40pm:

Have you actually been diagnosed by a MD or possibly a headache specialist? Diagnosing oneself is not the best way to go when dealing with cluster headaches.

Yes, finally after many years of being diagnosed with "occipital migraines", doctor has determined cluster migraines as a diagnosis. That's why I came here to visit !

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Potter

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Re: Many years
Reply #3 - Nov 25^th, 2009 at 4:23pm

Stubeedoobee wrote on Nov 25^th, 2009 at 3:52pm:

deltadarlin wrote on Nov 24^th, 2009 at 7:40pm:

Have you actually been diagnosed by a MD or possibly a headache specialist? Diagnosing oneself is not the best way to go when dealing with cluster headaches.

Yes, finally after many years of being diagnosed with "occipital migraines", doctor has determined cluster migraines as a diagnosis. That's why I came here to visit !

Cluster migraines? Hmmmmmmmm.

Potter

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deltadarlin

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Re: Many years
Reply #4 - Nov 25^th, 2009 at 7:42pm

Im confused

Stubeedoobee wrote on Nov 23^rd, 2009 at 10:30am:

Hi all. I am a 53 year old guy and I have suffered with these migraines about 2/month since my early 20s. I recently found out on my own what I have been dealing with, as I was diagnsed with "occipital migraines" due to tension. But I know my #1 trigger is abrupt atmospheric pressure changes, and I had to find out on my own. I am posting something about FMLA on another Forum area which may be of interest to people. I wish you all the best. Anyone who has never dealt with this type of pain cannot imagine what it is like. Stu

Dx'ed by yourself or a doc?

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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: Many years Reply #5 - Nov 26^th, 2009 at 9:19am If I were you, I'd find another doctor. If he diagnosed you with cluster migraines, he is grossly misinformed as to the nature of cluster headaches.
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Stubeedoobee

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Re: Many years
Reply #6 - Nov 28^th, 2009 at 2:23pm

deltadarlin wrote on Nov 26^th, 2009 at 9:19am:

If I were you, I'd find another doctor. *If* he diagnosed you with *cluster migraines*, he is grossly misinformed as to the nature of cluster headaches.

My mistake...I meant to say cluster headaches. I am still thinking "occipital migraines" which was the diagnosis for so many years. Yes, it is my doctor's diagnosis based on reanalyzing years of tests, symptoms, and the nature of the headaches...also the many treatments and the results of them through the years.

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