Click this link to read a post I like on the clusterheadaches.com message board...

Apr 18^th, 2024 at 11:46pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Supporter's Corner › Children and Cluster's › Re: 8 month infant

(Moderators: Mrs Deej, DJ, Margi)

‹ Previous Topic | Next Topic ›

Pages: 1

Re: 8 month infant (Read 4711 times)

LeLimey Ex Member	Re: 8 month infant Nov 28^th, 2009 at 10:37am I don't actually see how they can possibly diagnose that in someone so young. I'd want to know exactly who diagnosed and I would want a serious second opinion. When my son was diagnosed I demanded and got a second opinion, that of Prof Goadsby. I'm actually stunned here. I seriously hope no one is considering medicating this baby??
Back to top	IP Logged

Click Here to visit the CH.com Facebook page!

LeLimey

Ex Member

Re: 8 month infant
Reply #1 - Nov 28^th, 2009 at 11:13am

Richard - please don't think I'm attacking you because I'm not!! This is a really scary thought. The baby isn't even old enough to have had enough of a history that they could have looked for any other causes of crying and pain etc.

It just doesn't add up, how can they tell autonomic symptoms? How can they tell reactions? How the hell do they make a diagnosis of CH on a baby? As you say, I would think even high flow oxygen wouldn't be particularly safe for one so young - and how would you get them to breathe it anyhow?

On another note, we haven't heard much from you lately, hope you're doing okay!

Helen

IP Logged

LeLimey

Ex Member

Re: 8 month infant
Reply #2 - Nov 28^th, 2009 at 11:47am

I'm glad you're okay with me!
There are other triptans other than sumatriptan (I take it you had the injections?) with a longer half life which may be of benefit to you.

Zomig nasal sprays have a half life of eight hours (meaning they will block attacks for up to eight hours) and Frovatriptan tablets have a half life of up to 26 hours although the most I have ever got is 17 hours. Given that you CAN take two in a 24 hour period they are unbelievably useful for things like family occasions, getting a nights sleep, important meetings and so on.

None come with a guarantee but at least you have a hefty advantage! Next time you see your doc ask for samples of both, you can't lose by trying them!

Hope it helps,
Helen

PS - when you DO go out of cycle - keep filling your script. That way when they start up again you have a stockpile and you're ready for it!

IP Logged

Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: 8 month infant Reply #3 - Nov 28^th, 2009 at 11:47am You gotta be shittin...............right. Potter
Back to top	IP Logged

deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: 8 month infant Reply #4 - Nov 28^th, 2009 at 7:16pm fwiw, when my daughter was a baby, she would cry and scream bloody murder for about an hour at the same exact time every day. You would have thought that she was dying. Wasn't actually a thing wrong with her, except a fit of temper and a gas attack.
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: 8 month infant Reply #5 - Nov 29^th, 2009 at 10:47am If the only criteria for this diagnosis is that the baby cries at the same time each day....That mother should run, not walk to another doctor.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: 8 month infant Reply #6 - Apr 22^nd, 2010 at 7:06pm Im totally confused on this. No way!!
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!