Click this link to read a post I like on the clusterheadaches.com message board...

QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: Help Me!!!!!!!!! Im new... Reply #25 - Dec 28^th, 2009 at 8:56am Be sure to take with you some information on the oxygen therapy from this site. And let us know how your appt goes Andi.
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Help Me!!!!!!!!! Im new... Reply #26 - Dec 28^th, 2009 at 9:11am Let us know how it went. Jeannie
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Felicia CH.com Old Timer Offline You can never change me. Posts: 318 Daytona Beach, FL, USA Gender:	Re: Help Me!!!!!!!!! Im new... Reply #27 - Dec 28^th, 2009 at 9:54am Andi there's no need to be afraid of the nero. He doesn't bite and he's only there to help. I hope you have the best of luck and find out it isn't clusters you have. Something with a cure which be much nicer instead. Best of luck hun. ~Felicia.
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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: Help Me!!!!!!!!! Im new... Reply #28 - Dec 28^th, 2009 at 1:33pm Thinking of you Andi Looking forward to your news Iddy
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Help Me!!!!!!!!! Im new... Reply #29 - Dec 29^th, 2009 at 11:09am I guess I'm late with this but don't worry about your neurologist appointment. They are about as boring as one can be. They aren't invasive at all and the tests are boring too. Good luck and let us know how things went. Charlie
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alittleconfused

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Re: Help Me!!!!!!!!! Im new...
Reply #30 - Mar 31^st, 2010 at 8:45pm

wow its been way to long. i guess i just got really upset after the appt. he didn't listen to me and didn't runtests. so he diagnosed with chronic migraines and sent me off with pills and instruactions to avoid screens and cafeine. which didn't make sense since i hardly watch tv or drink or eat caffeine. my parents didt want me on anymore meds so i didn't take them. there's been so much else going on we haven't scheduled a new appointment. well i guess this is the best summary i can give. thanks to all of you who were thiking of me
loves,
andi

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Charlie

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Re: Help Me!!!!!!!!! Im new...
Reply #31 - Mar 31^st, 2010 at 9:09pm

Sorry you're having such a time. This guy isn't on your side if you have CH by the looks of it.

This disease does frustrate doctors but still...it would be nice if these guys would understand just what this horror can do. Migraine drugs don't do much for clusters, if anything at all.

The others here can give you better info than I so don't go away without getting some help.

Keep posting for awhile. You'll find help here and good luck.

Charlie

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Linda_Howell

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Re: Help Me!!!!!!!!! Im new...
Reply #32 - Mar 31^st, 2010 at 10:16pm

Quote:

so he diagnosed with chronic migraines and sent me off with pills and instruactions to avoid screens and cafeine. which didn't make sense since i hardly watch tv or drink or eat caffeine

um.....Andi? Is it at all possible for you to see another Doctor? I believe after reading this, that I have copied from your post up above...most people here would agree with me. You REALLY need to have a better doctor to treat you.

Personally...this guy sounds like a moron to me and you deserve better treatment than this drivel. I hope you can see another Dr. soon. Undecided

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Hurt people.....hurt people. Think about it.

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alittleconfused

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Reply #33 - Apr 1^st, 2010 at 3:31am

i wish that doctors were as nice as you guys have been to me. i cried after my appointment from the frustration. i really felt like he was just dismissing me as some mental case because im on psychiatric medication. it turns out that the medicine he prescribed was just another anti-depressent also used for severe migraines :/ well im hoping to see a new doctor but in all honesty i haven't had an attack in some time now. i don't know what that means. i get headaches but they are in no way the same. well i need all the help i can get from you guys. and thatnks

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Callico

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Re: Help Me!!!!!!!!! Im new...
Reply #34 - Apr 1^st, 2010 at 12:04pm

alittleconfused wrote on Apr 1^st, 2010 at 3:31am:

severe well im hoping to see a new doctor but in all honesty i haven't had an attack in some time now. i don't know what that means. i get headaches but they are in no way the same. well i need all the help i can get from you guys. and thatnks

Andi,

That is typical of clusters. They come and they go. They may stay away for a few months to a couple of years, but if they are clusters they WILL come back. Please try to get your parents to take a look at this site and at the OUCH site to get an idea of what you may be dealing with. You need a Dr that knows something about clusters, and that isn't just a pill pusher trying to get you out the door so he can take the next patient's money.

Please hang around here and read as much as you can. There is a great deal of info you can use the next time the beast comes along, and come along he will. It is much better to be prepared and know what is going on than to try to play catch up while in such pain.

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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alittleconfused

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Re: Help Me!!!!!!!!! Im new...
Reply #35 - Apr 12^th, 2010 at 9:13pm

im afraid the headaches are coming back. or something is happening. a couple days ago i had a headache so painful that touching my face shot a pain straight to my eyes. i wanted to cry and throw up all at once. even when the "cluster", i put them in quotes since they're not diagnosed, are gone it seems i've had a headache almost everyday. they're not like the "clusters" but they're headaches. im so confused with all this!

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Ghost

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Re: Help Me!!!!!!!!! Im new...
Reply #36 - Apr 15^th, 2010 at 10:04pm

Quote:

Andi as asufferer myself as well as the mother of a sufferer I can relate to both you and your parents experiences with this.

Hey Chen I've been called that too! Grin

Welcome to our little corner of he11.
I havnt been around much but this group of folks never are far from my thought and prayers.

Be honest and we will be there, I would have been (who knows) if not for the folks here and not here any more, they will help.

Goat has spoken. Cool

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Illigitimus Non Tatum Carborundum&&If all men are endowed by their creator, why was mine so short sighted?&&&&***WARNING*** Oxygen will rust your pipes! Wink

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maalstroom CH.com Old Timer Offline ''Dance to my tune''.... the hell I will! Posts: 491 the Netherlands Gender:	Re: Help Me!!!!!!!!! Im new... Reply #37 - May 18^th, 2010 at 8:43am alittleconfused wrote on Apr 12^th, 2010 at 9:13pm: a couple days ago i had a headache so painful that touching my face shot a pain straight to my eyes. Maybe you should read up on trigeminal neuralgia, I believe touching sending painattacks is a sympton of that.
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Charlie

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Re: Help Me!!!!!!!!! Im new...
Reply #38 - May 18^th, 2010 at 10:38am

It might be a good idea for your next appointment to find someone with a little gray hair to tag along. We are a cranky bunch but some of us do well at separating good therapists from doctors that will have you believe that nothing you say is as important as what they come up with. Now and then they need to be reminded that we appreciate some good manners.

Questions should be answered, not dismissed.

Good luck and stick around.

Charlie

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There is nothing more satisfying than being shot at without result---Winston Churchill

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