Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Page Index Toggle Pages: 1
Send Topic Print
Need your help (Read 2343 times)
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Need your help
Dec 1st, 2009 at 10:32am
 
I dosed Sunday night with seeds.  I've been getting hit back to back since going to bed last night.  I know many of you have it much worse than me but I'm just not sure how much longer I can do this.  Is this the seeds causing this?  CAn I take Trex after dosing the other day? 

I need some advice, please.  Sorry to be a baby.  They are lasting two hours then coming back as soon as they leave.

Jeannie
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Redd
CH.com Sponsor
***
Offline




Posts: 8457
Stevens Point USA Wisconsin
Gender: female
Re: Need your help
Reply #1 - Dec 1st, 2009 at 10:40am
 
The mix up in hits is actually an indication that you have shaken the Beast's tree.  Please don't give up now.

Trex after dosing will set the process back.  Hit some Red Bull instead.

Many folks have reported increased activity after doseing, so this is not unusual.  Personally my worst was day 3 after a dose, but as we already know everyone is different.

Please don't give up on yourself.
Back to top
  

"The goal of life living in agreement with Nature."  ~Zeno
peggflick ma_2_2  
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Need your help
Reply #2 - Dec 1st, 2009 at 10:46am
 
thank you pegg.  i'm just really having a hard time.
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Redd
CH.com Sponsor
***
Offline




Posts: 8457
Stevens Point USA Wisconsin
Gender: female
Re: Need your help
Reply #3 - Dec 1st, 2009 at 10:50am
 
Also...don't be afraid to dose again tomorrow night.

Re-reading your post tells me that you probably have the 3 day thing going on too.  Keep hitting  back every three days.
Back to top
  

"The goal of life living in agreement with Nature."  ~Zeno
peggflick ma_2_2  
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Need your help
Reply #4 - Dec 1st, 2009 at 10:53am
 
at this moment i'm not sure i'm brave enough.
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Redd
CH.com Sponsor
***
Offline




Posts: 8457
Stevens Point USA Wisconsin
Gender: female
Re: Need your help
Reply #5 - Dec 1st, 2009 at 10:57am
 
You CAN do this Jeannie....

There are no souls braver than clusterheads.  We got your back Sister!
Back to top
  

"The goal of life living in agreement with Nature."  ~Zeno
peggflick ma_2_2  
IP Logged
 
LeLimey
Ex Member



Re: Need your help
Reply #6 - Dec 1st, 2009 at 10:58am
 
Hang in there Jeannie - you've given this a go, don't put yourself in a position where you'll kick yourself.
I can't give you any practical advice with this but I can give you a lot of love and support and I will.
You're not alone, not now, not later and not in the wee small hours. I promise.

I'm usually on here from about 3am your time, I can be here earlier if you need. Between us all, we can make sure you have someone when you need someone to keep you going.

We've got your back I promise

Helen
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Need your help
Reply #7 - Dec 1st, 2009 at 11:11am
 
I've read that it can take 4 or 5 or 6 doses while in cycle to bitch-slap the beast into submission. Hang in there, Boo! You're braver than I am.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Need your help
Reply #8 - Dec 1st, 2009 at 11:19am
 
i feel embarrassed that i'm having such a hard time and that i am not brave....    thank you guys for being so supportive
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Redd
CH.com Sponsor
***
Offline




Posts: 8457
Stevens Point USA Wisconsin
Gender: female
Re: Need your help
Reply #9 - Dec 1st, 2009 at 11:22am
 
Check your PM's, I left my phone number for you.

Bill is right, it can take a few doses to really cage the beast, but I can tell you first hand, that it's well worth it. 

I didn't have a choice when I went down this road.  It took some doing, and a firm commitment to staying the course, but I'm proof that it can give you your life back.  Notsienfeld, has had great success with this too and he used the method I do.  He too was chronic, and when O2 quit working for him, he got in touch with me. 
He's now over a year PF.

You got lots of us in your corner.  So hang tight.  Stay tough.
Back to top
  

"The goal of life living in agreement with Nature."  ~Zeno
peggflick ma_2_2  
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Need your help
Reply #10 - Dec 1st, 2009 at 11:28am
 
i'll try.   this ones winding down now.   thank you all again for being here.   i think my face is frost bitten from all the ice!
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Need your help
Reply #11 - Dec 1st, 2009 at 3:00pm
 
Look at it this way - You and I are both in cycle right now. You have chosen the path that promises a radically positive outcome (compared to what we're all used to). In the meantime, your life goes on and you are doing the best you can to meet each of those challenges.

I, on the other hand, am gulping down 480mg of verapamil, 900mg of lithium, and 1-2 doses of whatever triptan I have on hand every day. And I still get 3-6 breakthrough headaches each day (not skull f*ckers, but enough to make me stop what I'm doing and hit the gas). I have to be able to count on a certain level of functionality due to the fact that between now and Dec. 24, it is peak season at my company.

Who's the one being brave?

You're almost there, Boo. You can almost sprint across the rope bridge and make it to the other side if it breaks (Indiana Jones style).
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Callico
CH.com Hall of Famer
*****
Offline


Author of "Stranded at
Romson's Lodge


Posts: 4916
Aurora IL
Gender: male
Re: Need your help
Reply #12 - Dec 1st, 2009 at 5:31pm
 
Hang in there, Jeannie, you CAN do it!  You've done it all these years, so you know you can handle it.  It is much like childbirth.  You think it will never end, but it does, and if the seeds work for you like I think they will you will look back on it and realize it was worth the trial.

Jerry
Back to top
  

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)
Jerry Callison  
IP Logged
 
LeLimey
Ex Member



Re: Need your help
Reply #13 - Dec 1st, 2009 at 5:38pm
 
Brew hon, is DHE an option for you right now? I know it's available in injections as opposed to just infusions and I know you've had benefit from it before.. just thinking and trying to ease things for you (HUG)
Back to top
  
 
IP Logged
 
Brew
CH.com Sponsor
CH.com Alumnus
***
Offline




Posts: 14163
Re: Need your help
Reply #14 - Dec 1st, 2009 at 5:45pm
 
Quote:
Brew hon, is DHE an option for you right now? I know it's available in injections as opposed to just infusions and I know you've had benefit from it before.. just thinking and trying to ease things for you (HUG)

The more crap I add to the mix, the further away from detox I get. But thanks for thinking about me. I'll be fine.
Back to top
  

"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Need your help
Reply #15 - Dec 1st, 2009 at 6:21pm
 
All of you take time out from your own suffering to support me.  I have had such an easy road, comparatively speaking.  I thank you from the bottom of my heart, for being here for me.   I will do my best to be here for all of you as well. You all really are an inspiration to me.

I'm doing much better right now.  I was even able to sleep for a couple of hours.  It has been a very long time since I had to ride out a hit with no abortive. I don't think I have ever had such a long series of hits back to back like that, with not much break time in-between.  I'm afraid that the beast got the best of me.



Brew, I know that you are actually wishing that you were in my shoes right now.  I'm sorry that you are still so far from detoxing.  You have been fighting the beast for so long this cycle but are still always ready to offer a word of support or even a kick in the ass when I or someone else needs it.  Like most of the other people here, I never hear you whining or complaining.  You face each day as it comes and do what you have to do to work and be a father and a husband ... That is being brave.

Thank you all again.

Much love,

Jeannie
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Joni
CH.com Old Timer
****
Offline


Knowledge is Power


Posts: 476
Gender: female
Re: Need your help
Reply #16 - Dec 1st, 2009 at 6:24pm
 
Jeanie and Brew-I am so sorry for your currant situations!!  Hang in there!

Redd, Helen, and Brew-You are so compassionate and helpful!!!

Grin  Joni

Back to top
  

Experience:  That most brutal of teachers.  But you learn, my God do you learn.  -C. S. Lewis
 
IP Logged
 
Mac_Muz
CH.com Old Timer
****
Offline


new hampster "eat seeds
or die"


Posts: 432
Tamworth New Hampster
Gender: male
Re: Need your help
Reply #17 - Dec 1st, 2009 at 7:19pm
 
Thanks for the read on seeds... I ran a fairly decent search, since at the time I had no idea what rc seeds were. I do now..

It will be interesting to see if the seeds truely break the cycle. I hope so, but for the time being i don't see seeds and much else breaking my cycles.

There is no trains for miles around here, but I swear 2 ran me down in bed last night.

Well time to go polish my armor and sharpen the sword....
Back to top
  

When all else fails read the instructions.
 
IP Logged
 
MJ
CH.com Hall of Famer
*****
Offline




Posts: 1205
x1||USA|usa|299|85|MN
Gender: male
Re: Need your help
Reply #18 - Dec 2nd, 2009 at 12:05am
 
Jeannie

My clusters came back at maximum overdrive 2 or so weeks ago.
I,ve been hit 10-12 times per 24 hours. Its been bloody nonstop action.
Initially I thought I had knocked them out with a small seed regimen. Apparently I cried victory early and had to wonder if they were gonna work at all anymore.

Just today (tuesday) I got my 1st major break with the seeds. I dosed last on saturday. Tommorrow may be your day. Hang in there and hope the seeds work their wonders.

Back to top
  

MJ
 
IP Logged
 
Jeannie
CH.com Sponsor
***
Offline


Live, Laugh, Love....


Posts: 2333
St Louis, Missouri
Gender: female
Re: Need your help
Reply #19 - Dec 2nd, 2009 at 11:31am
 
I slept through the entire night last night!!!!! ( well except to hit the bathroom)  The shadows are very minimal today.   

I have called the Ryan Headache Clinic.  The receptionist asked if I was calling to make an appt for migraines.  When I said that my problem was Clusters, she put me on hold for a nurse who screened me and got me in next week.  I will be getting my 02 then!  I have screwed around this long and not gotten it.  I will not be a moron any more!

I'm wondering if I should tell the Dr. that I am going the seeds route?   

Jeannie
Back to top
  

"It's all a grand illusion when you think you're in control." ~ Kenny Chesney
 
IP Logged
 
Mac_Muz
CH.com Old Timer
****
Offline


new hampster "eat seeds
or die"


Posts: 432
Tamworth New Hampster
Gender: male
Re: Need your help
Reply #20 - Dec 2nd, 2009 at 11:35am
 
I think you should ask the doctor "To Tell" you what s/he knows about clusters.... If he calls it migrain one time, get up, say "good day", and walk out.....
Back to top
« Last Edit: Dec 2nd, 2009 at 11:36am by Mac_Muz »  

When all else fails read the instructions.
 
IP Logged
 
midwestbeth
CH.com Sponsor
***
Offline




Posts: 1123
Edwardsville, IL
Gender: female
Re: Need your help
Reply #21 - Dec 2nd, 2009 at 11:51am
 
Jeannie,

I'm just now seeing this.  Glad you got a good nights sleep!

The Ryan Headache Clinic will fix you up.  Your life will change for the better once you have 02.  When I was there last, the Dr. wasn't a fan of alternative treatments.  You may want to mention all the studies that are going on and see what the Dr's reaction is.

You are stronger than you give yourself credit for.  Keep on fighting.  Never give up.

sending a pm soon.

Beth

Back to top
  

Dum vita est spes est
midwestbeth midwestbeth http://www.facebook.com/profile.php?ref=profile&id  
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!