So after another beautiful night with the beast (total sarcasm), I am left with a question. There are tons of posts here so I may have overlooked some but I don't see any mention of tingly sensations or numbness. Does anyone else experience their face, arms, hands or legs getting tingly or somewhat numb during an attack? I mentioned to the specialist that I was taking advil before knowing what I was up against or being diagnosed. He told me that if you take something not "good" enough to battle the pain, your body can push it into an arm or leg and that it wasn't uncommon with ch sufferers. So I obviously know not to do that anymore but even with no meds much less rx's prescribed as I cannot afford the visit or the scripts, I still as of last night like I always do get really tingly in my arm, especially my hand im using to hold the washcloth. It also gets really tingly in the bottom of my face, like half way down my nose down to my chin? Can anyone relate to this?

Thanks for the confirmation. CH people often wonder if they are just crazy or if someone elso goes through the same thing.

Yes, I get numb, especially on the affected side of my face!  I feel as if I am surely having a stroke.  I have reported this to my doctor many times.  It always goes away.

Thank you Helen for weighing in on this. I don't think I have a calcium defiency problem but your description did get me thinking. The last couple of attacks left my face and fingers tingly as usual but when I tried to reposition my washcloth, I found that the hand was completely numb and wouldn't budge or open. Kinda freaked me out as in four years now, these are the first "side effects" of this kind. I have an appt. with the specialist on Monday and would normally keep it to myself but you've convinced me to at least mention it and see his reaction. Thank you. And no, I've never tried verapimil. Prednisone and o2 are the only meds on my list of things tried so far.