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Hello!!! I'm a new user and this is my first post (Read 786 times)
sydnee05
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Hello!!! I'm a new user and this is my first post
Dec 4th, 2009 at 12:43pm
 
Hi,
My name is Shane and I'm twenty nine years old. I've had clusters for about ten yrs and I've had 5 total. They come every 2-3 years and last b/w 1-3 months. I usually get them daily and have multiple episodes. Luckily any meds with triptan in them usually help if I catch them early enough but I have not had health insurance during the current cluster so I've had my family members getting the meds for me. I've had to suffer through  many and I'm currently on my sixth week of this cluster. I'm thankful for this site Roll Eyes and I can say that this episode has really gotten me researching these things and I've started using many of the  techniques (ex. more water, supplemental Oxygen) that I've read about. I appreciate all the good info and all the time that people have put into this site to give us C-heads a place to call home. Thanks!! Cool
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« Last Edit: Dec 4th, 2009 at 12:52pm by sydnee05 »  
 
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LeLimey
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Re: Hello!!! I'm a new user and this is my first post
Reply #1 - Dec 4th, 2009 at 12:55pm
 
Hello Shane and welcome!
Im sorry you had to find us but I'm glad you have since you're one of us!
I personally can't recommend o2 enough. It's my far and away favourite abortive and actually works quicker for me than any triptan (5-7 minutes to abort an attack)

You only mentioned triptans - have you ever tried any preventatives such as verapamil or a pred taper?

We'll do our best to help!
Helen
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Martin
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Re: Hello!!! I'm a new user and this is my first post
Reply #2 - Dec 4th, 2009 at 2:01pm
 
Welcome, I'm both sorry and happy that you joined us.  This is probably the most comprehensive site filled with information. so many treatments to try, I really hope you can find one that works for your lifestyle.

Best of luck, and hope that you never go without triptans... if that's what works to stop the pain for you. take care
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bejeeber
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Re: Hello!!! I'm a new user and this is my first post
Reply #3 - Dec 4th, 2009 at 9:44pm
 
Hey Shane, hopefully you've seen the imitrex tip that allows you to at least double the amount of doses you get from your injections? Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Glad you came to the right place.  Smiley
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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coach_bill
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Re: Hello!!! I'm a new user and this is my first post
Reply #4 - Dec 4th, 2009 at 10:16pm
 
Welcome,

              Bill
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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