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Afraid of dying? (Read 4765 times)
echogirl
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Afraid of dying?
Dec 4th, 2009 at 7:06pm
 
Is anyone here ever afraid that these CH's might actually kill them one day? And I don't just mean because you want to kill yourselves over them. I mean from meds. I mean, I have tried so many things to get rid of these aweful (I know, it just doesn't seem like a strong enough adjective) headaches from you know where. From natural remedies, to over the counter and prescribed pain meds, abortive treatment as well as preventive medication. So far nothing really has ever seemed to work for me. I also heard things about water treatment and caffiene helping, as well as vigorous exercise. So ther I am at 3 am taking my abortive meds, eating caffiene like its candy, and whatever else it is I can get my hands on, jogging through the house, drinking copious amounts of water and STILL not being able to chase away the demon.It's aweful Typically, I'm not the kind of person to take any pills, but when I get these headaches, I just can't help myself. And even though the pills don't generally work for me, I still take whatever is handy to me at the time in large doses with the hope that it just might work this time, or if I take a little more maybe it will go away. When I'm in remission I worry about what all that stuff is doing to my body, but during the attacks, I really just don't care. I can't help myself Lips Sealed
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Mac_Muz
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Re: Afraid of dying?
Reply #1 - Dec 4th, 2009 at 7:13pm
 
No, and maybe because i don't take all the meds that are available... I see no mention of o2... Have you tried o2 to abort?

I am a x drug addict... I am not in any 12 step recovery and or a addict in recovery, to me that is non-sence.

I stopped because i wanted to be in controll of myself and i am. No groups no help and like most things I pulled on my boots by the straps and never looked back.

Take care with mixing things in your body.
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echogirl
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Re: Afraid of dying?
Reply #2 - Dec 4th, 2009 at 7:24pm
 
I have nev3er had the privelege of trying O2. Have you? If so, has it worked out for you. I don't like taking meds either. In fact, I am very anti med. I just lose all reason when I get a headache. I'd love to have control, and I constantly tell myself I will be strong during the next episode, but then the headaches come and have me on my knees again.
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Mac_Muz
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Re: Afraid of dying?
Reply #3 - Dec 4th, 2009 at 7:39pm
 
I found this thread first.... I found your other thread after..

Get 02, just get it! Don't wait, get it get it now, your whole life will change for a much better better...

If you want to talk I can hang around
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echogirl
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Re: Afraid of dying?
Reply #4 - Dec 4th, 2009 at 8:01pm
 
It's really hard to image that there is anything out there that can actually help. I plan on making an app. w/my doctor a.s.a.p. and practicalyy demanding a script. In addition to that, I'll see about getting a hold of one myself in the event he gives me a hassle. I have nothing but hope that this is going to help end, at least some of my attacks. I'd be thankful for any aborted headaches.
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Mac_Muz
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Re: Afraid of dying?
Reply #5 - Dec 4th, 2009 at 8:03pm
 
I waited to see if you would return... I will edit in more now.

Read the menu on the left about 02, read it all. ASAP get some.

Demand it, and if that fails go to a welding supply house and get it there..

I am probably an old geezer by your stds, at 58, but I have had some time to mess around with a CH. Of all the things you can do by far o2 is the safest of all. It will have no after effects..

It is an abort, but it is safe.

I don't have lots of money and so doctors are not an option. I am a metal worker and work for myself and so weld and solder with torches. There is no real difference in medical o2 and what a welder uses.. When i exhange tanks I see medical tanks getting filled off the same tooling my welding tank gets filled from.

In the side bar menu the biggest tank is what I have in the barn. A bit too big to drag around.. I have a much smaller tank too for the silver work I do..

I have no mask, and find I don't need one.

This is not to say don't go the way of the medical equipment, and or with doctors, but that if you can't afford it that way there is another way.

At first when I read about this method I took it as a joke, a prank others would play so they could see another human suffer.

Well it is no joke. It will take some getting used to, but once you are, and see it works, you will begin to become an old hand at aborting this affliction.



want more?
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« Last Edit: Dec 4th, 2009 at 8:14pm by Mac_Muz »  

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echogirl
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Re: Afraid of dying?
Reply #6 - Dec 4th, 2009 at 8:10pm
 
I sent you a message in your mailbox.
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Brew
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Re: Afraid of dying?
Reply #7 - Dec 4th, 2009 at 8:13pm
 
From CH? Heavens, no.

In the epistemological sense, does anybody really know what the future holds?
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FramCire
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Re: Afraid of dying?
Reply #8 - Dec 4th, 2009 at 8:25pm
 
Brew wrote on Dec 4th, 2009 at 8:13pm:
From CH? Heavens, no.

In the epistemological sense, does anybody really know what the future holds?


From a vocabularlistical sense, does anyone know what epistemological means?  Wink
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you.  No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
 
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echogirl
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Re: Afraid of dying?
Reply #9 - Dec 4th, 2009 at 8:26pm
 
I may not have found a cure yet, but that last statement had me laughing. lmao Grin
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FramCire
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Re: Afraid of dying?
Reply #10 - Dec 4th, 2009 at 8:32pm
 
echogirl wrote on Dec 4th, 2009 at 8:26pm:
I may not have found a cure yet, but that last statement had me laughing. lmao Grin


I aint very smeert, but I do try and make people laugh!

I don't worry about dying when getting hit, I worry more about not dying sometimes.  (not joking).   However, I have found abortives and coping mechs that make it more bearable and being here gives me the mental support to not be scared.
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you.  No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
 
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George
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Re: Afraid of dying?
Reply #11 - Dec 4th, 2009 at 8:33pm
 
I used to wonder whether one would kill me outright, but not anymore.  Hasn't yet, and it's been awhile.   Wink

Listen to the advice you've been given about oxygen, and take a look at the "oxygen info" link to the left.  It's the only abortive I use.  Works like a charm. 

Knowing there's an effective weapon to fend off an attack can change everything about living through a CH cycle--for the better.

Work with your doctor to see if he can get you on an effective preventive regimen, if you choose to do so.

Ditch the OTC pills.  They're useless.  You may as well eat smarties. 

Best wishes,

George
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Re: Afraid of dying?
Reply #12 - Dec 4th, 2009 at 8:36pm
 
FramCire wrote on Dec 4th, 2009 at 8:25pm:
From a vocabularlistical sense, does anyone know what epistemological means?  Wink


I used to know, but I don't know how I knew anymore.

Best,

George
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Brew
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Re: Afraid of dying?
Reply #13 - Dec 4th, 2009 at 8:39pm
 
FramCire wrote on Dec 4th, 2009 at 8:25pm:
Brew wrote on Dec 4th, 2009 at 8:13pm:
From CH? Heavens, no.

In the epistemological sense, does anybody really know what the future holds?


From a vocabularlistical sense, does anyone know what epistemological means?  Wink

From a worldwidewebological sense, does anybody who has access to a CH message board also have access to dictionary.com?

This is how we step out of the dark ages, into the modern era, and expand our mind and our knowledge base. Which, the study of epistemology will reveal, is quite limited.

So there. Wink
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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barry_sword
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Re: Afraid of dying?
Reply #14 - Dec 4th, 2009 at 9:08pm
 
I never thought the CH's would kill me but as they increased in intensity each cycle I was losing the battle.

I was referred to a neuro and a CT Scan was done, all clear. After listening to me describe the pain and the cycles he told me I had CH's. Then my wife Angie found this site and my life turned around for the better, and so did Angie's. Smiley

I took a printed copy of the o2 info to your left in yellow and had my neuro read it and I had my script for o2 at 15 LPM, but have since got him script for the 25 LPM regulator with the help of a dear friend on here. Wink

o2 was my godsend, hope it is yours. Smiley
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FramCire
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Re: Afraid of dying?
Reply #15 - Dec 4th, 2009 at 9:10pm
 
Brew wrote on Dec 4th, 2009 at 8:39pm:
FramCire wrote on Dec 4th, 2009 at 8:25pm:
Brew wrote on Dec 4th, 2009 at 8:13pm:
From CH? Heavens, no.

In the epistemological sense, does anybody really know what the future holds?


From a vocabularlistical sense, does anyone know what epistemological means?  Wink

From a worldwidewebological sense, does anybody who has access to a CH message board also have access to dictionary.com?

This is how we step out of the dark ages, into the modern era, and expand our mind and our knowledge base. Which, the study of epistemology will reveal, is quite limited.

So there. Wink


I dont think i have this world wide web thingie.... but I certainly dont want to meet the spider who spins a web that spans the whole wide world.

With that said, we have again hijacked a thread with our inane (ok, yours isnt inane, but mine is, so you are being lumped in) banter.

I hope we made you laugh though!
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you.  No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
 
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Marc
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Re: Afraid of dying?
Reply #16 - Dec 4th, 2009 at 9:48pm
 
echogirl wrote on Dec 4th, 2009 at 7:06pm:
Is anyone here ever afraid that these CH's might actually kill them one day? ....


Not since I learned about actually started using very high flow oxygen therapy.

Marc
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« Last Edit: Dec 4th, 2009 at 9:54pm by Marc »  
 
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coach_bill
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Re: Afraid of dying?
Reply #17 - Dec 4th, 2009 at 10:32pm
 
Hey echo,

Sounds like those were bonified kip 10's you were going through. I used to be the same way, Rolling on the ground crying and such.

It got so bad for awhile i thought i was going to just drop from a aneurysm or a blood vessel pop. It was hard to figure out how something that bad could could just be gone with no side effects or anything!!

Then my Doctor got all the things i needed for a oxygen set up, and it change my life. I know I'm only a episodic suffer but since i got my 02 i have not had 1 triptan or any other prevents. So don't just think about getting 02, Get it..   

                            Best of luck,

                                               Bill
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boy i cant wait till it's my turn to give him a headache. paybacks a bitch
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Mac_Muz
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Re: Afraid of dying?
Reply #18 - Dec 5th, 2009 at 12:10am
 
FramCire wrote on Dec 4th, 2009 at 8:32pm:
echogirl wrote on Dec 4th, 2009 at 8:26pm:
I may not have found a cure yet, but that last statement had me laughing. lmao Grin


I aint very smeert, but I do try and make people laugh!

I don't worry about dying when getting hit, I worry more about not dying sometimes.  (not joking).   However, I have found abortives and coping mechs that make it more bearable and being here gives me the mental support to not be scared.


Ah, we do share common ground after all. And I have no clue about that word..



Ya know.. I can't figure how it is a TOPIC must stay true to the thread, and on this site how it is even possible. Ch's cause me to get stupid.. No joke. I fight to get chores and tasks done. Some I have done many times before, in just hours, becomes days, because it is so hard to remain on track and concentrate.

Getting way off topic... i do this.. Recently my car (cage) became the item of my interest, since i ride a motorcycle as long as i can into winter. Well a mouse built a nest under the timing belt cover. I didn't know this, and couldn't see it, so when I tried to start the car I ended up breaking the timing belt.

Normally this is a few hours of labor and pretty easy. Under the effect of CH it turned out to be a 3 day project. In part the markings on the new belt were painted in the wrong places, but still this should have been under 8 hours. flat....

Marc is just  more proof O2 works echogirl.
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Re: Afraid of dying?
Reply #19 - Dec 5th, 2009 at 11:20am
 
Not quite as old as that geezer Mac... Wink..not quite 50 here, but have about 31 years of CH under my belt. In my early days I was convinced anything that hurt this bad was probably going to kill me! Shocked

Oxygen, just wow. I feel the tension in my neck, the warm feeling in my jaw and eye, and the pain starts building. I fire off the 02 and in less then 10 minutes I'm pain free again. By the time my little girls were 12 they could rig the regulator to an e-tank and help me get started. I know it seems we ramble and preach a lot about 02 but damn...it works so well for so many it's frustrating that more don't try it.

Hoping you find relief soon sounds like you're in a bad place right now. Cry

Joe
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Bob Johnson
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Re: Afraid of dying?
Reply #20 - Dec 5th, 2009 at 12:54pm
 
In the end, you are not dealing with a medical problem. This quality of fear is too strong and entrenched, I suspect, for you to handle without some support. Perhaps, you can ask some people you trust for info. on a good counselor who could help you developing the coping skills which would help with all kinds of life stressors.

The approach I'd suggest is encapsulated in this brief piece. It's highly effective when you have a good guide.

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Bob Johnson
 
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Linda_Howell
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Re: Afraid of dying?
Reply #21 - Dec 5th, 2009 at 5:49pm
 
The only time I ever worried about dying from an abortive med was when I 'almost' lit a cigarette while huffing 02.

Might that be called an oxycolinologistcal concern, Brew?

(Mr. Webster please do not turn over in your grave)
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Re: Afraid of dying?
Reply #22 - Dec 5th, 2009 at 6:27pm
 
Bob...as usual....caught the point the rest of us missed. Depression, anger, fear......all can be a significant issue to deal with along with CH. He has a good point, you should consider seeing someone who can teach you some coping mechanisms to help you process all this stuff!!  We'll be here to help see you through it! Smiley

Joe
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Re: Afraid of dying?
Reply #23 - Dec 5th, 2009 at 6:51pm
 
If you are afraid of dying, you are afraid of living.

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Marc
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Re: Afraid of dying?
Reply #24 - Dec 5th, 2009 at 7:28pm
 
OK, maybe I miss obvious signs, but.......

In echogirl's" original post she seemed to be asking: "Can the meds we eat like candy in trying to escape the pain actually kill us? In the grips of the worst pain, I don't seem to care - I just want it to stop"

Yes, I'm slow and don't pick up on some things, but that seems like a good point.....

Respectfully,

Marc
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