hello..   i am not "new"..   not really...  i have looked on this site before and posted some rants and questions....     how about, kinda new

im 34...  this all started a year ago for me.   i have yet to take anything for my problem and am self diagnosed.  i have lost several jobs and have been on the brink of home-less-ness.  i have zero insurance and zero money.  but i do have a girlfriend and she does have great insurance.  we have been kicking around the idea of her going in ,,, with my symptoms.  was wondering if anyone else has tried such a bait and switch trick?  i dont enjoy being dis-honest but have no idea what else i can do. 

this forum is a god-send...   thanks guys
dax 

if theres a grapefruit in there waiting to explode...  i guess its gonna happen either way..   but what if i could get some relief ..  that would be fantastic

funny on the news just now in nyc..  they did a short segment on ch...   seems O2 is getting a lot of attention....

ohh   hey i was wondering where i could find this, "kip scale" i keep reading about

daxm wrote on Dec 8^th, 2009 at 11:27pm:


Do the links on the left (including "the kip scale") show up in your browser view?

If not, well this site is a bit messed up in that regard and some people aren't going to see the links depending on where they navigated from - try this url: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

Hey Daxm, thought I'd chime in as I to am broke and unemployed with no insurance here in Michigan, the great state to live in right now much less the U.S. (NOT). I did recently get to go the doc and get some meds so I am fortunate but lets talk about before. The welding supply Co. for o2 is a good idea. Not always feasible, but better than trying to afford the doc visit just to get the rx for it. Angela here on this site says she gets the masks to go with it from her local hospital, sometimes for free so give that a try if you get the o2. I was/am also buying monster or red bull energy drinks and chugging them. Saw it mentioned on here and said "What the hell"? I'll try it for $2.50. Seems to help the time duration or at least the intensity. Don't forget the operative word chug. Others say cheap nasal spray works at least sometimes for them, but don't count on that one to much. The cold air also helps. If I get to hot or just to comfortable temp wise, I'm just askin for one. Lastly, if you can get into a free clinic or sliding fee scale clinic that would be best. Make sure you print out some info on the condition and the meds used for it as you shouldn't expect most regular docs to even know what clusters are so arm yourself or you'll go home with a rx that isn't worth a damn. Even with the best person treating you, the meds can vary immensely on what is given so I'm sorry if this doesn't help but I can you three costs. Just got prednisone, verapimil and o2 rx's. Prednisone-$7, Verapimil-$3 and o2-$58 a month. Sorry for the rambling but I am so poor and can feel your pain literally and figuratively. Hope any of this helps.
Roberta

Bejeeber is right. There are a lot of places where you can get meds in need however you do need a diagnosis to participate in those schemes

You have stated you're self diagnosed and the first thing you need is somehow, to see a doctor and get an accurate diagnosis as without that, you won't get any meds.

Remission lover had some really good advice for you there, try and follow up and see if you can make that work for you

Good luck!
Helen

Were you pretending she had the ha's? If so, the migraine diagnosis doesn't surprise me. Many doctors are under the false impression that women don't get CH.. if its migraine the sumatriptan tablets will help, if not - they'll be as good as m&m's

sorry - I meant head aches - common abbreviation here!

ahhh...    see... i am new..   ha = head-ache..  got it...  yeah oxygen sweet sweet oxygen..  i hear you are a real magician with the HA's....  angela that is for sure the next step....    a few questions though...   as far as traveling around with such an assortment of tanks and such...  i live in nyc and use the subway often...   do they come in small sizes...  the welding tanks?  like something that would fit into a back-pack?   thanks again...

I live in a polar opposite lifestyle than you!  Wow.  I've been on a subway one time, or I guess the underground in England (yes Helen, I've been to the UK, it was awesome!!).

I was given a backpack style O2 with nasal air lines when I first got a rx for it.  I gave it back.  I didn't think it would work.  I'm curious to know if you can get the backpack style, a non-rebreather mask for "on-the-go", and refill it when you get home if needed.  I am pretty sure the flow rate is really low on those, probably not enough to conquer a headache.  I know of people having a smaller tank they keep in their car.  I have done that myself.  But, on foot.  Hmmm, that's a new one. 

I don't carry a tank in my car anymore.  I use Imitrex injectors for when I leave the house. 

Have you tried red bull yet? Or really strong coffee?

This puzzle is gonna get completed!!  I am gonna ask around.

Angela

Edit: like Denny said

You're the one who has to look yourself in the mirror every day. I guess you can choose to like or dislike what you see.

"Dishonest" operates at a different level than "neurological condition."

angela.lambert wrote on Dec 11^th, 2009 at 8:34pm:


I carry 1 or 2 "C" size medical tanks in a small canvas shoulder bag or a backpack depending upon where I'm going.

The C size is a little over 4" in diameter and about 11" long. It holds roughly 250 liters, about 35% of an E tank.  It gives me 10 minutes at 25 lpm which works for my daytime hits because I only need about 5 minutes. (The nighttime monsters require much higher flow)

I bought a couple of them last year for about $50 each brand new.

I refill all my little C, D and E tanks from 9300 liter the "mothership" welding tank at home.

Marc