Thanks for posting that. It was refreshing to see the condition (and the website) mentioned on a national show. Shed some light on us and make people more aware. If that sort of thing continued, someday I might mention my affliction to a co-worker for instance and they would say "oh yeah, I saw that on tv. I am so sorry to hear that". Wouldn't that be something! More importantly, awareness promotes research, or at least I hope for that as I'm sure we all do. Thanks again for the sharp eye.

Agreed National PR on CH is a good thing. I have Good Morning America on every a.m. and was thrilled to hear report and that others did too. We only just let our families know of the depth of my husbands suffering...my mom also saw the story and emailed me to see if we were aware O2 as a therapy. More talking about CH brings more research and recognition of this dibilitating disease.

A friend of mine emailed the link to me and when I saw her later, she said, "Do you think it would work?"  When I told her I had used it years ago and lots of people use it, I could tell she was disappointed.  She thought she had found something new for me.  It was very sweet of her, so I told her I was glad she sent it to remind me that I still have that option.