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New CH.com Forum › Daily Chat › General Posts › Clusters again after 5 year absence

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Clusters again after 5 year absence (Read 791 times)

DiscoStu

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Clusters again after 5 year absence
Dec 9^th, 2009 at 2:20pm

Thought I'd kicked them for life, but they're back. After 5 years CH free, got a doosie last night. Felt them coming on for a week or two, thought (hoped) it was a sinus problem.
Anyway, called the neuro, he wouldn't see me because it's been 5 years. He needed a referral from my GP and then it would be months before an appt. Luckily, I got in to my GP and he was able to prescribe an O2 tank and Verapamil.

Have there been any major breakthroughs in medicines or treatments for CH in the past 5 years? I haven't been hanging around here lately.

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Karla

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Re: Clusters again after 5 year absence
Reply #1 - Dec 9^th, 2009 at 2:28pm

Just the cluster buster methods of lsd or shrooms or lsa seeds. You can find lots of info in the archives I am sure or google cluster busters for they have there own website and conferences. Many have now found that energy drinks slamed during a hit will abort it and that melatonin at bedtime can help sleep better with fewer hits. Can't think of anything else. Maybe someone else will come along with some more ideas. good luck.

Karla&&suffer chronic ch &&ch.com groupie since 1999&&Proud Mom of Chris USMC Semper Fi

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Clusters again after 5 year absence Reply #2 - Dec 9^th, 2009 at 2:35pm Why not just keep a full tank around? I have been pf for about 1800 days and still look lovingly at that beautiful green monster. potter
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BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Clusters again after 5 year absence Reply #3 - Dec 9^th, 2009 at 2:37pm Very sorry to hear they are back, five years is a very nice break though, if you can look at it that way I guess. Myself I would love a five year break about now.
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Charlie

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Re: Clusters again after 5 year absence
Reply #4 - Dec 9^th, 2009 at 8:51pm

Quote:

Anyway, called the neuro, he wouldn't see me because it's been 5 years. He needed a referral from my GP and then it would be months before an appt.

Lovely. One of these days I'm going to have to let my doctors know that they have to get over the idea that they are running a garage and that our warranties has run out.

Sorry you are getting hit with this horror after so long. Hold on and get after your docs.

Charlie

There is nothing more satisfying than being shot at without result---Winston Churchill

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barry_sword CH.com Alumnus Offline Mountain Biking Keeps Me Sane Posts: 3947 Bracebridge, Canada Gender:	Re: Clusters again after 5 year absence Reply #5 - Dec 9^th, 2009 at 9:38pm 5 years remission, nice! Their back, that is one's worst fear. Glad you have your defense in place. PF wishes. Barry
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George

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Re: Clusters again after 5 year absence
Reply #6 - Dec 9^th, 2009 at 11:12pm

Charlie wrote on Dec 9^th, 2009 at 8:51pm:

Lovely. One of these days I'm going to have to let my doctors know that they have to get over the idea that they are running a garage and that our warranties has run out.

Charlie, I gotta hand it to you. You've got a way of summing things up nicely. Wink

Sorry to hear you're getting smacked around again, Stu.

New stuff that's come up? Consider increasing the O2 flow with a regulator going to at least 25 lpm. Recent experience and research indicates a MUCH higher rate of success with O2 at higher flows.

Best wishes,

George

"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535)

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