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Clusters again after 5 year absence (Read 791 times)
DiscoStu
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Clusters again after 5 year absence
Dec 9th, 2009 at 2:20pm
 
Thought I'd kicked them for life, but they're back. After 5 years CH free, got a doosie last night. Felt them coming on for a week or two, thought (hoped) it was a sinus problem.
Anyway, called the neuro, he wouldn't see me because it's been 5 years. He needed a referral from my GP and then it would be months before an appt. Luckily, I got in to my GP and he was able to prescribe an O2 tank and Verapamil.

Have there been any major breakthroughs in medicines or treatments for CH in the past 5 years? I haven't been hanging around here lately.

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Karla
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Re: Clusters again after 5 year absence
Reply #1 - Dec 9th, 2009 at 2:28pm
 
Just the cluster buster methods of lsd or shrooms or lsa seeds.  You can find lots of info in the archives I am sure or google cluster busters for they have there own website and conferences.  Many have now found that energy drinks slamed during a hit will abort it and that melatonin at bedtime can help sleep better with fewer hits.  Can't think of anything else.  Maybe someone else will come along with some more ideas.  good luck.
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Potter
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Re: Clusters again after 5 year absence
Reply #2 - Dec 9th, 2009 at 2:35pm
 
Why not just keep a full tank around?  I have been pf for about 1800 days and still look lovingly at that beautiful green monster.

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BigMatt
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Re: Clusters again after 5 year absence
Reply #3 - Dec 9th, 2009 at 2:37pm
 
Very sorry to hear they are back, five years is a very nice break though, if you can look at it that way I guess. Myself I would love a five year break about now. Grin
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Charlie
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Re: Clusters again after 5 year absence
Reply #4 - Dec 9th, 2009 at 8:51pm
 
Quote:
Anyway, called the neuro, he wouldn't see me because it's been 5 years. He needed a referral from my GP and then it would be months before an appt.


Lovely. One of these days I'm going to have to let my doctors know that they have to get over the idea that they are running a garage and that our warranties has run out.

Sorry you are getting hit with this horror after so long. Hold on and get after your docs.

Charlie
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barry_sword
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Re: Clusters again after 5 year absence
Reply #5 - Dec 9th, 2009 at 9:38pm
 
5 years remission, nice! Smiley
Their back, that is one's worst fear. Sad Glad you have your defense in place. PF wishes.

  Barry
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George
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Re: Clusters again after 5 year absence
Reply #6 - Dec 9th, 2009 at 11:12pm
 
Charlie wrote on Dec 9th, 2009 at 8:51pm:
Lovely. One of these days I'm going to have to let my doctors know that they have to get over the idea that they are running a garage and that our warranties has run out.


Charlie, I gotta hand it to you.  You've got a way of summing things up nicely.   Wink

Sorry to hear you're getting smacked around again, Stu. 

New stuff that's come up?  Consider increasing the O2 flow with a regulator going to at least 25 lpm.  Recent experience and research indicates a MUCH higher rate of success with O2 at higher flows.

Best wishes,

George
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