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purpleydog

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Can Use Your Vibes
Dec 18^th, 2009 at 5:33pm

Kirk is getting slammed every 2 hours, with no end in sight. Angry

He ran through 4 E tanks, and one M tank in two weeks. The O2 generators are barely enough (using 2 in tandem, gets about 14 LPM). O2 people from the VA aren't returning our phone calls.

The VA doctor will not get him a pred taper, saying only O2 and triptans are to be used for CH. I tried to straighten them out, requesting the pred. The nurse asked me how I know about it. Roll Eyes

So, I asked her if the doc was going to have O2 delivered on Monday, since he's out of tanks (no), and I asked if the doctor was going to prescribe a triptan to be used with his heart condition. This doc is a TOTAL MORON. I explained to the nurse about CH, and asked her what the doc wants us to do. She offered a neuro consult.... after the first of the year.

I'm scrounging to see if I have enough pred laying around for a taper. Please keep him in your thoughts. This really sucks.

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Can Use Your Vibes Reply #1 - Dec 18^th, 2009 at 5:39pm Praying for him now! Wish I could get my O2 down to you. Don't you just love government health care? Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: Can Use Your Vibes Reply #2 - Dec 18^th, 2009 at 7:04pm Awww crap sis.....No wonder I haven't heard from you guys in a while. Hmmmm I wonder if you left some of your pred here by mistake last time you came to visit? Let me check, and I'll get back to you.
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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: Can Use Your Vibes Reply #3 - Dec 18^th, 2009 at 7:42pm
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Opus CH.com Hall of Famer Offline "We have met the enemy... and he is us" Posts: 2746 Sidney,NY USA Gender:	Re: Can Use Your Vibes Reply #4 - Dec 18^th, 2009 at 9:32pm Prayers going out to you and Kirk. It sucks when we have to self treat but at least we know what to do. Paul
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Can Use Your Vibes Reply #5 - Dec 18^th, 2009 at 9:45pm Chris - Check your PM's.
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-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: Can Use Your Vibes Reply #6 - Dec 19^th, 2009 at 12:35am purpleydog wrote on Dec 18^th, 2009 at 5:33pm: Kirk is getting slammed every 2 hours, with no end in sight. damn.....thats horrible. check your PMs chris.
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: Can Use Your Vibes Reply #7 - Dec 19^th, 2009 at 6:21am Hoping better for you very soon somehow, Kirk.
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Anchor Yanker CH.com Junior Offline Keeping the Beast at bay Posts: 28 Wentzville, Mo Gender:	Re: Can Use Your Vibes Reply #8 - Dec 19^th, 2009 at 7:42am I'm sorry, I'm kind of new at this support thing. I've never had it that bad. I couldn't imagine. I swear, I just couldn't imagine. Is there any way you could see another doctor that would at least listen to you? I don't know how the VA system works.
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Can Use Your Vibes Reply #9 - Dec 19^th, 2009 at 7:55am Vibes and positive thoughts on the way....hope you all get this under control soon.
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Happy Pappy CH.com Sponsor Offline Finer than frogs hair! Posts: 744 Ft Loudon, PA Gender:	Re: Can Use Your Vibes Reply #10 - Dec 19^th, 2009 at 9:05am Praying for you Bro!!
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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: Can Use Your Vibes Reply #11 - Dec 19^th, 2009 at 9:11am Wish that I had more to offer than words of support. They seem so useless at times like this. Nevertheless, I hope that things improve soon. Sending all the best wishes that I can. George
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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: Can Use Your Vibes Reply #12 - Dec 19^th, 2009 at 9:28am All I got coming to you.....Damn this sucks!!!!!!!! Iddy
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Can Use Your Vibes Reply #13 - Dec 19^th, 2009 at 9:55am PF wishes on the way from Canada. Wish there was something more I could do. Carol
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M.R. CH.com Alumnus Offline Posts: 598 Grand Rapids, Mi. Gender:	Re: Can Use Your Vibes Reply #14 - Dec 19^th, 2009 at 10:31am Been there, done that. Checked to see if you left some here, but no such luck. Sounds like you left it somewhere else, though. Sending prayers your way. I know, when it's bad, it's bad. Mike
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Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Can Use Your Vibes Reply #15 - Dec 19^th, 2009 at 3:10pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Vibes and more for you! Say hi to your medicos for me: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Charlie
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Can Use Your Vibes Reply #16 - Dec 19^th, 2009 at 4:29pm Chris and Kirk...thinking of you BOTH...the battle with the beast is bad enough....when it has to be with the system too...more than cruel.... Best, Jon
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: Can Use Your Vibes Reply #17 - Dec 19^th, 2009 at 5:42pm Hold on Kirk. Hold on tight. And you too, purpleydog - we're all here with you sending vibes and prayers.
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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: Can Use Your Vibes Reply #18 - Dec 19^th, 2009 at 6:41pm Something tells me that between wings and wheels, Kirk is going to be on the way to feeling better again real soon. Love ya Both!
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Marc Ex Member Gender:	Re: Can Use Your Vibes Reply #19 - Dec 19^th, 2009 at 7:20pm Redd wrote on Dec 19^th, 2009 at 6:41pm: Something tells me that between wings and wheels, Kirk is going to be on the way to feeling better again real soon. Love ya Both! Now that was clever-quick Took me a sec.......
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Callico

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Re: Can Use Your Vibes
Reply #20 - Dec 19^th, 2009 at 7:28pm

Trying to find help for you through USMC. Unfortunately from out of state, but am trying to get advice on ways around an arrogant self-serving so and so who works for the VA because he couldn't make it in private practice. Kirk and our other vets deserve far better than this!

To say I'm PO'ed is an understatement!

Praying. That's all else that I can do, but I have seen it do wonderful things.

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Kirk CH.com Alumnus Offline VINIMUS, VIDIMUS, DOLAVIMUS Posts: 2393 Harts Lake, WA Gender:	Re: Can Use Your Vibes Reply #21 - Dec 19^th, 2009 at 7:37pm *Thank you all very much! Help is on the way. Remember that pain is just weakness leaving the body. Thats why we are all so much stronger than the idiots that we have to deal with.*
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Can Use Your Vibes Reply #22 - Dec 19^th, 2009 at 7:43pm I hope things are better today. Wish I could offer more than my prayers, but please know that you have them. Jeannie
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MJ CH.com Hall of Famer Offline Posts: 1205 x1\|\|USA\|usa\|299\|85\|MN Gender:	Re: Can Use Your Vibes Reply #23 - Dec 19^th, 2009 at 7:55pm "Remember that pain is just weakness leaving the body" I like that. Walking the same path Kirk hang in there.
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purpleydog

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Re: Can Use Your Vibes
Reply #24 - Dec 19^th, 2009 at 8:04pm

I want to thank everyone who called, sent PM's, IM's and posted with support and words of wisdom, and drove to meet us. Someone found some pred we left at their house, and returned it today (thank goodness!!). It worked so far. Only 2 hits today, the last one was very small and short lived. What a difference that makes!! You all know what I mean. You all know exactly what the word RELIEF means to us.

I am continually blown away by the family here and the way we help each other. There is always someone there to help someone else who needs it. We are one big family, and you guys and gals are the best!

Jerry, I lined up an appt at a different facility for Wed. I've heard good things about it. I'll let you know. Thanks so much.

Hey Anchor Yankee, you are doing great at supporting. CH is indescribable. I tried explaining it to the nurse, and I just couldn't get her to understand. Unfortunately with the Veteran's Administration, it's not that easy to just switch docs, we had to go to another facility, and it had to be approved. Everything moves slow.

I know there is another care package coming, and I want to say thanks again to everyone. It means so much. Smiley

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