Thanks Chad - do u mind explaining how ur shadows r 4u - ur symptoms - if u dont mind. It helps me by knowing that the symptoms i get are similar 2others and it is "the norm" i know from reading other messages on here that it does vary so much from person to person & even then it can change.
I am just learning 2accept all of this - and gettin used 2calling it and its symptoms by other names...
I am still waiting to try o2 - its very soul rendering not 2get the help 4the pain when its bad - i have been given the Imigran tablets to try by prof jones at my local hospital (nov 5th) and told to come back this Thursday but they dont work as i guess u wud knw.I did try my own GP but he dismissed the pain and told me i had 2wait and c the proff and let him decide wat i was 2hav next.
I have prev been a seasonal suffer but this year its been every month which has led me at long last 2a correct diagnosis - over the yrs i have seen a eye specialist/teeth took out blah blah - i say blah blah blah becuz it just goes on and on. I thought back in nov that now its been diag corr that it wudb easy frm this point 2get the correct help but wat a load of bollocks.
But i wont give up, i cant.I just want it diagnosed officially and put onto my medical records - to get some o2 2try. And fingers crossed that will help as it seems 2help so many others. I have read up on all the medications an am very wary of trying bcuz of the poss side effects - whereas the o2 does not seem 2hav any.
That 4me wud b my ideal outcome lol but i will hav 2wait and c....i will try the meds if the o2 doesnt wrk....wen i eventually get as far as that, i will hav2 wait4 "the 1's with power" prescribing the correct things that actually will help.
This thursday will tell wen i'v been 4my appointment back at hospital - god knws wat i will feel like if i still get no where.
I am lucky bcuz i do work and i enjoy a full life with my family/partner - i love sports and do yoga ect, all 2help me keep well in mind/body and spirit (though that side is strugglin abit) i always count my blessing everyday - i knw how lucky i am - but this "thing" can bring me2 my knees, though i dont show or tell no one ....just on here i allow myself a moment of weakness, 2feel alittle sorrow 4myself LOL LOL LOL.
24yrs its took 2ger this far and by no means thanks 2the dr's, its been many paths 2go dwn and some of them hav been wrong.
I had NEVER heard of CH till nov 5th 2009 when the proff sent home telling me i had Cluster Headaches ( i was gutted 2b told i had a headache - how can a headache b SUCH AGONY) but as soon has i started researching it on the internet & found this forum and watched the utube videos of those brave souls who let themselves b filmed whilst havin attack - EVERYTHING jus fell in2place - i cried my eyes out..was relieved 2knw it wasnt just me, that this pain was agony, was real and that i wasnt a mardy bugr.
I go on abit dont i - sorry

its just that i dont mention it 2any1 else so i have no one 2ask becuz they dont knw- dont believe and lets be honest, most dont care!!!
I have been having shadows all day comin and going lasting for over 10/15 mins and has built up2 bout 40 mins - pain 3/4 & 4/5 - just about cope able or bearable which ever way u want 2put it - i'v got red bull in the house now - but dont really know when i should take it?? I if took it wen i'm getting lesser painful shadows - wud that stop any coming at all?
Shadows can hang around for wks - would i b living on red bull and take it at the 1st signs of anything.
Do i take it now 0n 4/5 or wait till it gets worse - do i drink it quick in one go - do i have more than 1can? Dont knw, dont knw, dont knw

I am off 2 LA january 15th 2meet up with a penpal that i have known 4over 35yrs - i am so excited and looking 4ward 2going!!! It will b my 1st time travelling on my own. Will b staying for 16days and she is taking me to Las Vegas/Mexico/Yosemite National Park - wherever we get chance 2go in the short time i have there.
So though i knw i feel shi't now and that i prob hav started another cycle thing (the worst was oct beyond 10 that i will not think about - nov 1ended in kip 8/9) i am hoping this one (if it is 1) will be a lesser1 again (but i really dont knw wat 2expect with this "beast" as u all call it on here) i hav my fingers crossed that i will be PF whilst there.
I am going 2stock up on Melatonin whislt there as well - i buy mine frm Biova and its cost around £20 (with postage)for 240 3mg tablets & now i'v started takin 9mg every night i will soon go through them.