seems to be the nature of the beast. 

Congrats on the pf break!

Nature of the Beast.

ATSEA<
hMMMMMMMMMMMMMMMM......If you ask some chronics, they will tell you, at least they don't have to worry about when they'll get hit again.it's a constant, they never let their guard down, and they never expect a break........they also never have that fear and anticipation episodics have..........
THAT SAID>>>>>
I hope you break is lonnnnnnnnnnnng and restful and enjoyable........life is what you live between hits.so make the most of it!

Why do they just end? Because a cycle ending is soo much better than A CYCLE BEGINNING!

Merry Christmas!!

Cathi

...or perhaps the question should be, "Why don't they just end?

Savor it!

Most of the time it seemed that I'd slowly realize that I'd have may 5 hits rather than 6 but by the time I realized it they suddenly stopped completely.

Charlie

joh889 wrote on Dec 23^rd, 2009 at 7:03am:

Perhaps that partially explains the episodic side of CH, but does not offer any insight into those who are chronic. That's one of the things that fascinates me about this thing - some people get hit every day, multiple times per day, with no real regularity (other than that it's all the f'n time).

Brew wrote on Dec 23^rd, 2009 at 7:27am:

Good point, no two sentence generality is going to explain it for everyone or even someone.  But I thinks it's helpful to explain what I understand about mine, and I am classic episodic.  For me, I am sure it is caused by a major artery dilating(expanding) and pressing against a major nerve entering the side of my face and head, thus the oxygen tricks my brain into constricting that artery.  And the artery dilates because of a malfunctioning hypothalamus which has to do with the internal clock or circadion rythms, and this dilation starts on regular, very well timed intervals and the whole episode happens  on season changes when the day length changes.  I figured this out because other people posted it in these simple terms for me.  You would need a damn medical degree to understand the "medical info" link to the left, though it was helpful for me give to a GP one time, but I will be honest I was lost in the first paragraph of that very technical description.  I can't be the only one and I know I am not.   

Anyway, Merry Christmas   
 

Quote:


Ouch, I never said I had it all figured out or had a cure.  Lighten up Mr Heavy.

BTW, I don't believe anything I said is outside the realm of what doctors have found out.  If you believe it is, you should probably correct me.

I guess I was being the heavy, sorry.  My pea-shooter is now holstered.  Regards to you.

They start, they end, they have a mind of their own. As someone else said, it's the nature of the beast.

I went 20 years with no diagnosis and the MD saying I couldn't have CH because I was female. Then I had those years of trying to figure them out. Yes, it's psychological torture not knowing when they strike -- or go away. In a few years you'll just be grateful for the good times. But keeping thinking because, who knows, you or another of us will figure this thing out.

i agree that aborting an attack is my primary concern. but, i am curious by nature. if i am going to be a part of this earth for hopefully nearly a century, i want to understand reasons for phenomena, not just outcomes. this applies to all facets of life. every action has a reaction. i am just trying to look at my clusters as the reaction.  so, what is the action, you know?
im not attempting to treat with vitamin d, as supplementing externally can never replicate a process the body performs on its own. i am merely entertaining the theory that perhaps it is the body's diminished exposure to UVA/UVB rays during the winter months, and the resultant decline in the body"s natural production of vitamin D which itself invariably affects the synthesis of other micronutrients/agents in the body, that may or may not play some role in clusters. for all i know, it cold be that the lack of sunlight causes an imbalance in some enzyme in the rods and cones of your retina.
all i know is eventually there will be an answer. just like there will eventually be an answer for autism, alzheimers,  and aids. its just a matter of time. and in the meantime, i am going to explore, and perhaps discount, as many theories as my pea size imagination can come up with.

but, its not natural sunlght. its no medical mystery that exposure to sunlight promotes the synthesis of vit D in the body. does a tanning bed replicate that? i have no idea. its not the sun. it may produce similar effects. but, it is still a replica. we are hard wired on a genetic level. have specific receptors for specific agonists found in nature. are physiology/anatomy are not up to speed with our culture, i.e., processed foods, HFCS, MSG, etc. this stuff doesnt exist in nature. this may be the very reason for the recent exponential increase in autism. who knows? but we expose ourselves/consume agents our bodies are currently not adapted to process. maybe that is part of the problem.