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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › 0.1% of the population get ch?

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0.1% of the population get ch? (Read 4802 times)

midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: 0.1% of the population get ch? Reply #25 - Jan 7^th, 2010 at 11:15am I believe if we included all those who are misdiagnosed, the number would be higher.
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Bob-o CH.com Newbie Offline I Love CH.com! Posts: 3	Re: 0.1% of the population get ch? Reply #26 - Jan 7^th, 2010 at 5:03pm I never heard of a CH till my neurologist told me about them. Speaking with a few people here at work that suffer with migraines, they were amazed that something worse could exist. At least Dr. O'Hanian and Dr. Heller knew what Cluster headaches are and how to treat them.
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Dallas Denny 62

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Semper Fi !!!!

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Re: 0.1% of the population get ch?
Reply #27 - Jan 7^th, 2010 at 7:40pm

Didn't I read somehwhere that the average time between initial CH onset and correct diagnosis was approx 6 years? I know it took me close to that. If this figure is somewhat close to correct how could anyone possibly come up with an accurate survey of CH sufferers! Maybe they have a magic formula that lets them guestimate the number of us that are still lost out their in la la land and don't know what the hell we have yet...

DD

I am lost and have gone to find myself....if you should see me before I get back....please ask me to wait until I return!!

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GrandPotentate

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mmmmmmmmmm

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Re: 0.1% of the population get ch?
Reply #28 - Jan 7^th, 2010 at 10:09pm

A long time ago, I worked with a guy who had killer headaches - in retrospect they may have been CH. His doc had him trying a suppository (no fooling). This was long before I had my first hit.

The guy up here who delivered my first O2 up here had apparently run into this (he told me my doc didn't know squat when he ordered the teeny nosy things). That, plus a few neighbors on this site, puts it around 1 in 10K for the area.

It is rare enough that most GP's will probably not experience one of us in a career. It is frequent enough that most headache docs should have one or two of us at any point in time.

Jon

Jon

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: 0.1% of the population get ch? Reply #29 - Jan 7^th, 2010 at 11:08pm Quote: His doc had him trying a suppository (no fooling). I believe Cafergot is still available in this form. Maybe not as fast as an injection, but much quicker than a pill.
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cluster

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WaterX3 - It helps!

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Re: 0.1% of the population get ch?
Reply #30 - Jan 13^th, 2010 at 6:20am

Fischera M, Marziniak M, Gralow I, Evers S.: The incidence and prevalence of cluster headache: a meta-analysis of population-based studies. Cephalalgia. 2008 June; 28(6): 614–618.

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n.b.: During 1992/3 449 monks on Mount Athos didn't have cluster headaches! Wink

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- German CH Site

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