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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › The demon is Back

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The demon is Back (Read 1205 times)

Cheryl CH.com Newbie Offline I Love CH.com! Posts: 2	The demon is Back Dec 26^th, 2009 at 2:52am My husband has been in remission for about 2 1/2 years. We were hoping he out grew them. He is 53 years old and has been a CH sufferer since he was 16. He has tried everything from bio feed back to every med a doctor can prescribe. Is there anything new that has come out over the past couple of years that we don't know about?
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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: The demon is Back Reply #1 - Dec 26^th, 2009 at 9:59am It would help if you could give us an idea of what drugs your husband has been on. Btw, Welcome to the nut house. Carolyn~aka~deltadarlin
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FramCire

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Life like a froward child
must be humored a little

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Bolivar, MO USA
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Re: The demon is Back
Reply #2 - Dec 26^th, 2009 at 11:56am

When did he try Oxygen? Flow rates and masks have come a long way!!!

Also, try energy drinks with caffeine and taurine. They have helped many people.... I use the big cans of starbucks (check label for taurine)

Also Zyprexa.. forget the generic name......seems to be a more recently used abortive.

Try and make a list of drugs used and suggestions can be made!

You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: The demon is Back Reply #3 - Dec 26^th, 2009 at 1:48pm My hubby appears to be starting a CH cycle too....after almost 2 years without. He tried the RedBull for the first time too - once after finishing abort with O2... Then yesterday I think he was having shadows and he put one down. Never saw the tank come out yesterday so perhaps it helped.
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bejeeber

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Re: The demon is Back
Reply #4 - Dec 26^th, 2009 at 9:54pm

In addition to the newer method of O2 use, Rivea Corymbosa seeds come to mind.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Cheryl

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Re: The demon is Back
Reply #5 - Dec 27^th, 2009 at 12:02am

Thanks all. I will have my husband make a list of all past meds. He has O2. It does abort them. I was hoping to find something new. Possibly herbal, holistic or some miracle to kick him back into remission. I think I will try to get him to see a new Neuro. He hasn't been to see the Dr. since his last bout of CH. He is highly agitated these days and when I try to get him to see the Dr. he says that they have never been able to do anything thus far and won't go. Seems there are some newer meds he hasn't tried. Any recommendations for keeping the CH away at night or when sleeping? It seems to hit him every time he tries to sleep and now he is afraid to sleep. He is very fatigued.

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QnHeartMM CH.com Sponsor Offline I AM a Phoenix! Posts: 1783 San Diego, CA Gender:	Re: The demon is Back Reply #6 - Dec 27^th, 2009 at 10:34am I think some folks take melatonin Cheryl to help with the sleep.
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FramCire

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Life like a froward child
must be humored a little

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Bolivar, MO USA
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Re: The demon is Back
Reply #7 - Dec 27^th, 2009 at 11:10am

Cheryl wrote on Dec 27^th, 2009 at 12:02am:

Your husband sounds a lot like me when I am in cycle. A prednizone taper can give you a few days relief! Also, I made sure i didnt try and sleep until after my last (1 am) headache. No napping during the day!!

If i tried to sleep any other time, I would get hit harder.

Also, I found that a well place frozen bag of peas, the occasional hot shower, and doing tasks that take as much brainpower as I can muster are good ways to lessen the impact.

You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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