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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › new here

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new here (Read 996 times)

Shane-O- CH.com Newbie Offline I Love CH.com! Posts: 1	new here Dec 27^th, 2009 at 12:53pm Hi there.....glad to have found this forum....and hopefully may find something here to help me with my CH as I am now in a current cycle and the doctors i have seen cannot seem to figure it out........
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: new here Reply #1 - Dec 27^th, 2009 at 3:44pm Has clusters been determined and what have they prescribed or done? Any referral to a neuro or scans?
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bejeeber

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Re: new here
Reply #2 - Dec 27^th, 2009 at 9:52pm

Hey Shane-O,

I bet there's a good chance that you'll find valuable info here to help - significantly even - with your CH.

That has certainly been my experience, and same for a lot of others.

Glad ya came to the right place.

What treatments have you tried so far?

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: new here Reply #3 - Dec 27^th, 2009 at 11:34pm Hello and Welcome, Let me be the 1st to tell you. Get your doctor tuned into clusters, and start by telling him to give you OXYGEN 15 Lpm. Coach Bill
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Guiseppi

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Re: new here
Reply #4 - Dec 28^th, 2009 at 3:21am

Welcome to the board, when you get a chance, give us a little info. What meds have you tried, what has and hasn't worked, when were you diagnosed? The strength of this board is the combined experience of 10,000 CH sufferers and their supporters. We don't do diagnosis or prescribe meds, but we can probably point you in a good direction to alleviate some pain.

So pull up a seat, tell us a little about yourself! Wink

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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saxman

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Re: new here
Reply #5 - Dec 29^th, 2009 at 7:12am

welcome from another new to the site CHer,
First thing I do when a new cycle starts, is get on a prednisone taper!!
I started my latest about 2 weeks ago, and instead of 6-8 bad hits a day/ nite, there has been only a few slip through.
BUT!!! I ended up taking too much of it and not tapering as I shouldhave... Much scolding from everyone on the site and of course they are right, I'm in line with it now... so if you decice to do the pred, taper as prescribed... the more experienced folks will tell you about many other tratments... You'll see shortly that there;s light at the end of this tunnel
Good luck

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