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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › new to this site glad i found u!

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new to this site glad i found u! (Read 1344 times)

anthony g

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new to this site glad i found u!
Dec 27^th, 2009 at 5:49pm

hello! I just joined this site and am happy i have people who could relate to cluster headaches! i am in my second week of my cluster period! I am on pretnisone and verapamil! we will see.... i take sumatritan and 500 mg of naproxen at the beginning stages of an episode and if caught in time usually helps the severity and the length of the episode! really sucks to have this condition!

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sch

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Re: new to this site glad i found u!
Reply #1 - Dec 27^th, 2009 at 6:48pm

It makes me sad you had to find this site. I too am a newbie and have just got over my first (and last I hope) four weeks of 2-3 times/night of attacks. This site is a good site to learn and share. From what I have seen on this site and from my own experience I would have one other abortive item- that being 02 at 10-12 lpm thru a non rebreather mask. The triptan drugs worked for me also but were rather expensive and a bit dangerous. I got the 02 only during the last week of my cycle but it aborted or lessened the duration of an attack if done at a high enough flow rate and thru a non rebreather. Good Luck

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FramCire CH.com Alumnus Offline Life like a froward child must be humored a little Posts: 1710 Bolivar, MO USA Gender:	Re: new to this site glad i found u! Reply #2 - Dec 27^th, 2009 at 8:57pm Welcome aboard both of you! Grab some oars and start paddling!!! Ask as many questions as you have. Everyone has their own methods to fight this beast. Remember to share what works for you and learn learn learn!!!! I am glad you are here but sorry you had a reason to find us!
Back to top	You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do IP Logged

coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: new to this site glad i found u! Reply #3 - Dec 27^th, 2009 at 11:29pm Hey Ant, Think of it like this. We have finally found YOU!!! You need to study up on the oxygen. It will change the ways you deal with Clusters. Welcome, Coach Bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: new to this site glad i found u! Reply #4 - Dec 28^th, 2009 at 1:29am Welcome to the board! Do read the oxygen info on the left. 31 year sufferer here and i can abort in less then 10 minutes using oxygen. A real life saver. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

bejeeber

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Re: new to this site glad i found u!
Reply #5 - Dec 28^th, 2009 at 10:33pm

anthony g wrote on Dec 27^th, 2009 at 5:49pm:

i take sumatritan and 500 mg of naproxen at the beginning stages of an episode and if caught in time usually helps the severity and the length of the episode!

Hey Anthony,

Is that the pill form of imitrex (sumatriptan) you're taking? Asking because doctors routinely and mistakenly prescribe pill form, which is more for migraine, and is much less effective for CH than injectible or even inhaler.

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: new to this site glad i found u! Reply #6 - Dec 29^th, 2009 at 6:26am Quote: Asking because doctors routinely and mistakenly prescribe pill form, That is not always a mistake and is effective and desirable for many CH sufferers. The pill form can be just as effective. The differance is in the delivery and time it takes to abort.
Back to top	« Last Edit: Dec 29^th, 2009 at 6:29am by seaworthy » IP Logged

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