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More questions (Read 1037 times)

LindaS

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Living life or atleast
trying to!!

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More questions
Dec 27^th, 2009 at 11:49pm

I ended up in the ER tonight. It was horrible, the first time my pain went past a KIP 5-6. But I made a discovery. They had said something about i hadn't been there in 5 years so it got me thinking to the last time I was there.
I was like 4 months pregnant with my son. Had a hemmorage in my eye (which shouldn't be painful) but was in a great deal of pain, just like the headaches I get now. It came and went like the ones I get now, lasted 3 weeks, and its the same. Though back then I had no idea what was going on and figured it had to do with the hemmorage in my eye. The optimoligist couldn't figure out why I was n pain either. Then just stopped, even though the hemmorage was still there.
Now 5 years later they are back, going on 4 weeks now and have gotten worse since ending the prednisolone taper, I took the last pill yesterday.
So I guess this would be my second cluster? What do you think?

« Last Edit: Dec 27^th, 2009 at 11:50pm by LindaS »

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Guiseppi

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Re: More questions
Reply #1 - Dec 28^th, 2009 at 3:18am

It's not unusual for people to get mis diagnosed early on in their cycles. It's partially our fault because we're not paying enough attention to each of the symptoms, and it's not until much later we realize the symptoms were related!

I got glasses in my late teens because the opthomalogist thought a weak eye was causing my headaches. Many have had teeth pulled because the pain manifested itself near the molars, still others treated for sinus infections.

That all being said, yeah, this sounds like cluster cycle number 2!!!'

Joe

"Somebody had to say it" is usually a piss poor excuse to be mean.

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lorac

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Tennessee
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Re: More questions
Reply #2 - Dec 28^th, 2009 at 4:50pm

welcome Linda.
Did the ER give you O2 ? Usually that will knock them right out of your head fast.
I do'es sound like your in your second cycle. Glad you found us now, rather than much later.
I use verapamil, and it works really well for me.
also use Zomig as an Abort, but with the Verapamil, I don't have too many HA's slip through.(thank GOD)
Hope you have good luck at the Dr.s, and keep us posted as to your progress. lorac

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coach_bill

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Re: More questions
Reply #3 - Dec 28^th, 2009 at 11:25pm

Linda,

Welcome, Here's what i think.. Those Clusters are some scary mother Hubbards aren't they?? So bad they get you looking on the computer hoping to find someone who might understand them. Well we do..

But just like 5 years ago.. They were scary to you, But they went away... And they will go away again very soon and you will be back to your life again.

As bad as they hurt... It wont kill ya, you just need to learn up on them so 5 years from now your ready. Also, talk to your doctor about oxygen. For most of us it has taken hours long misery and turned it into 10 minutes of controlled thankfulness.

Best of luck.. Coach Bill

boy i cant wait till it's my turn to give him a headache. paybacks a bitch

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LindaS CH.com Newbie Offline Living life or atleast trying to!! Posts: 15 Wisconsin Gender:	Re: More questions Reply #4 - Dec 29^th, 2009 at 1:19am Thank you all. It was just weird that it hadn't occured to me before, that it was the same. My reg. doc put me on Verapimil today and also gave me imitrex injections. As much as I don't like the thought of having to inject myself it will be so much easier than dealing with the beast.
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Jennifer

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Re: More questions
Reply #5 - Dec 29^th, 2009 at 8:44pm

Hi Linda,

Verapamil is good but can take a couple weeks to ramp up to effectiveness. I've never used Imitrex, but I am definitely one who uses o2 as an abortive. For me it works in about 7-10 mins which beats the hell outta 1-2 hours of agony!

I was misdiagnosed for 9 years after the first known attack. From tension headaches (at 13) to needing glasses at 15 to the full blown attack in '85. It took till '94 that the drs finally got it right and I started on a road to effective management.

I'm glad that you've found good resources for your ch - school yourself on ways to deal with this. Dr's aren't going to do it for you. As my neuro and my gp said to me, "you know more about this than I do".

Hang in there.

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