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I suffered since childhood (Read 999 times)
coolaide
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Toronto, ON Canada
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I suffered since childhood
Jan 18th, 2010 at 11:43am
 
I am suffereing from fibromyalgia and cluster headaches since childhood and was diagnosed just recently.  I am 35 now.  I just got divorced and I want to marry again but I am not sure whether to disclose my condition or not.
I have been sufferring from headaches since last wednesday.  They affect my studies, work and normal life.  I donot know what to do?
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Lefty
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Re: I suffered since childhood
Reply #1 - Jan 18th, 2010 at 12:00pm
 
Welcome Coolaide....

I think first of all you have to be honest with yourself and fibromyalgia and cluster headaches are part and partial of who you are today, no shame, there just two little medical conditions. Trust me a good partner will understand and help you through the tough times when you need them most. Secondly, tell us a little more about yourself and what medications you are currently taking for the CH's.



Lefty..!
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bejeeber
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Gnashville
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Re: I suffered since childhood
Reply #2 - Jan 18th, 2010 at 12:06pm
 
Well ya pretty much gotta disclose your condition before getting married, right?

If you've found reasonably effective treatment for the CH, then I suppose it probably shouldn't be as much of an issue.....

If you haven't found effective treatment yet, let us know here - we'll be glad to suggest some.  Smiley

We might be able to read into your statement about CH affecting your studies, work and normal life that you are suffering unrelieved attacks, although I'm not sure, since even when you're able to abort every attack, there will be some distraction and disruption there. The very most successful amongst us at combatting CH find a preventative that keeps the attacks from occurring at all. I could get into that.  Cheesy

What treatments have you tried, are you using currently?
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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.
bejeeber bejeeber Enter your address line 1 here  
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Brew
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Re: I suffered since childhood
Reply #3 - Jan 18th, 2010 at 2:51pm
 
Trust me - You wouldn't want to be married to anyone who wouldn't want to know about your conditions. Wink
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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Linda_Howell
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Santa Maria, Ca.
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Re: I suffered since childhood
Reply #4 - Jan 18th, 2010 at 4:33pm
 
AND...it's not like you can hide it.  I don't even want to be around people/friends who cannot be supportive during rough times in my life...sure wouldn't be married to one.

You were just recently diagnosed?  Please tell us what your Dr. has prescribed.  We're here to help however we can.

Linda
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deltadarlin
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Downsville LA
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Re: I suffered since childhood
Reply #5 - Jan 18th, 2010 at 7:30pm
 
As a supporter, I will echo what everyone else has said.  Cluster's wouldn't scare me off (crazy might, headaches not).

Carolyn
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Guiseppi
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San Diego to Florida 05-16-2011


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SAN DIEGO, CALIFORNIA USA
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Re: I suffered since childhood
Reply #6 - Jan 19th, 2010 at 2:26am
 
My wife has put up with almost 30 years of my CH and hasn't dumped me yet! Wink She's actually the one who found this board for me and saved my sanity. When you find that right person, send them here to the supporters section. My wife and a whole bunch of other beautiful people will give them all the info they need to not be afraid of CH, and to learn how to help you defeat it.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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