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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › New in Colorado:)

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New in Colorado:) (Read 1114 times)

ordiefam

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I Love CH.com!

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New in Colorado:)
Feb 1^st, 2010 at 4:45pm

I live in Colorado Springs, Colorado. I have been through everything under the sun, the most painful was nerve ablation, where they burn the nerves at the base of your skull. That only made things worse! I waited for months to see a specialist at our university hospital up in Denver. She said that I have Occiptical Nerve migraines with cluster headaches as well. Joy.LOL
I have tried every triptian out there and none of them work for me. I have even tried midrin and cafergot.
I am awaiting the transcribed notes from this doctor to be sent to my doctor so I can get on topamax and lyrica.
I was blessed to already have a prescription for oxygen on file, I just had to get a mask from the ER when I went last. (That is not why I went. LOL) I am planning on getting a prescription for the masks from my doctor as well.
I have already learned alot for this site and appreciate everyone for being so nice and honest and helpful!
Thanks!

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: New in Colorado:) Reply #1 - Feb 1^st, 2010 at 5:05pm Have you thought about alternative treatments? clusterbusters.com
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

bejeeber

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Re: New in Colorado:)
Reply #2 - Feb 1^st, 2010 at 7:08pm

What Brew said, plus just checking to be sure - you've tried Imitrex injections, right?

(Soooo many CH folk come on here reporting they've only been prescribed the relatively ineffective pill form of imitrex)

CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: New in Colorado:) Reply #3 - Feb 1^st, 2010 at 7:35pm What lpm does your regulator go to? Didn't think you needed a 'script for a mask. Best mask around is Clustermax (?). Long day
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: New in Colorado:) Reply #4 - Feb 1^st, 2010 at 7:42pm deltadarlin wrote on Feb 1^st, 2010 at 7:35pm: What lpm does your regulator go to? Didn't think you needed a 'script for a mask. Best mask around is Clustermax (?). Long day O₂ptimask. Available right here at ch.com.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

Skyhawk5 CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1320 Ypsilanti, Mi. USA Gender:	Re: New in Colorado:) Reply #5 - Feb 1^st, 2010 at 9:52pm I hope the mask you have is a NON-REBREATHER the kind with a bag attached. Any other type is nearly useless for CH. Don
Back to top	Though I walk through the valley of the shadow of the Beast , I have O2 so I fear him not. IP Logged

ordiefam CH.com Newbie Offline I Love CH.com! Posts: 21	Re: New in Colorado:) Reply #6 - Feb 2^nd, 2010 at 3:48pm Yes mine does have the little bag on it. My regulator goes up to 15. Should i get another mask?
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Redrum Ex Member	Re: New in Colorado:) Reply #7 - Feb 2^nd, 2010 at 5:28pm Welcome Ordiefam, I'm right up 24 in Woodland Park. I have had a lot of success with clusterbusters (I use RC seeds) and would give up my kids before giving up my oxygen (next time you get to the top of the peak, pick up a "got oxygen?" t-shirt ). PFDAN...Andy
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ordiefam CH.com Newbie Offline I Love CH.com! Posts: 21	Re: New in Colorado:) Reply #8 - Feb 3^rd, 2010 at 10:21am Hi Neighbor:) That is a cute idea! I should get a shirt like that. I think they have them in manitou also.
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