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Headache Boy uk

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Matthew ch 11 v 28

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Gabapentin (Neurontin)
Feb 6^th, 2010 at 8:53pm

Hello all.
Just trying to do some research on Gabapentin (Neurontin) which my neuro prescribed in doses up to 1200mg/day for when my next cycle starts (may it be a long time ).

I know I've already asked about it in my "neuro at last" post and thanks to Bob-Johnson and Brew for there replies.

I was just wondering if any one else had used it and if it helped or not or what ?

looking forward to hearing from you all Nigel

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bejeeber

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Re: Gabapentin (Neurontin)
Reply #1 - Feb 6^th, 2010 at 9:34pm

I used it during my last episode in the summer/fall.

It took over a week to kick in (as expected).

Even though it "only" reduced the amount of attacks I was experiencing (didn't quash all of them), it was still a bit of a godsend, because it kicked in right when I was reaching this peak cycle where things were about to spin outa control, with more rebound hits than I could dispatch with my O2 and 1/2 dose imitrex injections.

I felt the usual wooziness side effect for a little while, but that went away and I felt pretty normal while on it after that.

So Neurontin was my preventative, O2 and imitrex my abortives.

My number of unabated full length, full intensity hits experienced for that episode:

Zero.

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Headache Boy uk CH.com Old Timer Offline Matthew ch 11 v 28 Posts: 373 Mersea Island nr Colchester Gender:	Re: Gabapentin (Neurontin) Reply #2 - Feb 6^th, 2010 at 10:10pm Thanks bejeeber that's the first positive comment I've had on this drug.
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Karla CH.com Alumnus Offline One of Many and Never Alone - Join OUCH Posts: 3837 x1\|Madison WI USA Gender:	Re: Gabapentin (Neurontin) Reply #3 - Feb 7^th, 2010 at 1:38am I tried it with no results. Everyone is different you just have to try it and wait and see. Good luck
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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Gabapentin (Neurontin) Reply #4 - Feb 9^th, 2010 at 2:27pm I could never get rid of the 2 martini buzz. It made driving dangerous. Didn't do anything for my clusters either. That said, I would not discourage you from trying. You never know, it might be your magic bullet. I hope it is... -Dennis-
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Batch

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Re: Gabapentin (Neurontin)
Reply #5 - Feb 9^th, 2010 at 4:31pm

Nigel,

We're all wired differently so meds like neurontin (gabapentin) tend to work differently. Titrating up to the max dosage by increasing the dosage by 300mg a day is important. You might find relief at 600 to 900mg a day.

I took my dose at night to avoid the usual 2 to 3 martini buzz and driving with same...

Do watch for the side effects... Other than a pleasant martini buzz, the most common side effect is a swelling of the ankles... If they start puffing up make sure to tell your doctor... He should give you a diuretic...

Take care,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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LeLimey

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Re: Gabapentin (Neurontin)
Reply #6 - Feb 9^th, 2010 at 4:46pm

Just remember, never increase or decrease dosage without medical supervision. Gabapentin is used to prevent seizures and paradoxically, many of those types of drugs can cause seizures if misused.
We can only tell you what WE have done.
We do not know your medical history or any possible interactions with other drugs you may be taking
ALWAYS increase and decrease dugs according to what your doctor decides is the best regime for YOU!

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Headache Boy uk

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Matthew ch 11 v 28

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Re: Gabapentin (Neurontin)
Reply #7 - Feb 9^th, 2010 at 6:48pm

Thanks every one . Ive researched the drug on the web and read thru all the info and the common side-effects etc which always sound horrendous but I try to keep an open mined about these things .

Ive not been hit for nearly 2 months now but I still get those annoying shadows most days , red bull will see them off when they get too annoying . But they make me fear I'm going to get hit again soon Sad

I just hate the looking over my shoulder all the time .

So I'm just trying to get the weapons sorted out before they do come back.

Sorry I'm rambling on again.

Thanks again Nigel

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You can't speak a kind word too soon, For you never know how soon it will be too late.

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DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Gabapentin (Neurontin) Reply #8 - Feb 9^th, 2010 at 7:34pm Ramble away Nigel! It's a side effect of board membership -Dennis-
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LeLimey Ex Member	Re: Gabapentin (Neurontin) Reply #9 - Feb 9^th, 2010 at 7:48pm As Oliver Cromwell said "Trust in god and keep your powder dry" Enjoy the pain free time but sit, well armed and ready! That way you have the peace of mind to LIVE every minute you can If you're ging rambling will you pick me up a Bounty 'cos I'm peckish?! Thanks
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Gabapentin (Neurontin) Reply #10 - Feb 9^th, 2010 at 8:02pm Quote: If you're ging rambling will you pick me up a Bounty 'cos I'm peckish?! Thanks Again, two countries separated by a common language.
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Headache Boy uk CH.com Old Timer Offline Matthew ch 11 v 28 Posts: 373 Mersea Island nr Colchester Gender:	Re: Gabapentin (Neurontin) Reply #11 - Feb 9^th, 2010 at 8:08pm yeah and it's a longggggggggggggg walk to New York from here
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MITYRARE CH.com Old Timer Offline autocross racer Posts: 361 Ontario, Canada Gender:	Re: Gabapentin (Neurontin) Reply #12 - Feb 10^th, 2010 at 9:07am Martini buzz and swollen ankles...no headache relief for me with G. Paul
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Headache Boy uk

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Matthew ch 11 v 28

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Re: Gabapentin (Neurontin)
Reply #13 - Feb 11^th, 2010 at 8:46pm

I don't like the sound of martini buzz , I don't think it will go to well with my job as a carpenter. I mainly do structural stuff (roofs etc) so it might not be to clever working at heights, not to mention using power tools. I've already nailed my hand to a roof with a 4" nail from my nail gun, it hurt quite a bit - not as much as using a claw hammer to pull it off again. Still, just a tickle compared to a CH.

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You can't speak a kind word too soon, For you never know how soon it will be too late.

Some people cause happyness wherever they go, others whenever they go

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Brew

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Re: Gabapentin (Neurontin)
Reply #14 - Feb 12^th, 2010 at 12:49pm

Headache Boy uk wrote on Feb 11^th, 2010 at 8:46pm:

I don't like the sound of martini buzz , I don't think it will go to well with my job as a carpenter. I mainly do structural stuff (roofs etc) so it might not be to clever working at heights, not to mention using power tools. I've already nailed my hand to a roof with a 4" nail from my nail gun, it hurt quite a bit - not as much as using a claw hammer to pull it off again. Still, just a tickle compared to a CH.

Look at the bright side - it's impossible to nail BOTH of your hands to the roof without assistance.

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Potter

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Re: Gabapentin (Neurontin)
Reply #15 - Feb 12^th, 2010 at 1:07pm

Brew wrote on Feb 12^th, 2010 at 12:49pm:

Headache Boy uk wrote on Feb 11^th, 2010 at 8:46pm:

I don't like the sound of martini buzz , I don't think it will go to well with my job as a carpenter. I mainly do structural stuff (roofs etc) so it might not be to clever working at heights, not to mention using power tools. I've already nailed my hand to a roof with a 4" nail from my nail gun, it hurt quite a bit - not as much as using a claw hammer to pull it off again. Still, just a tickle compared to a CH.

Look at the bright side - it's impossible to nail BOTH of your hands to the roof without assistance.

. I won't but I could.

Potter

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Brew

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Re: Gabapentin (Neurontin)
Reply #16 - Feb 12^th, 2010 at 1:13pm

Potter wrote on Feb 12^th, 2010 at 1:07pm:

Brew wrote on Feb 12^th, 2010 at 12:49pm:

Headache Boy uk wrote on Feb 11^th, 2010 at 8:46pm:

I don't like the sound of martini buzz , I don't think it will go to well with my job as a carpenter. I mainly do structural stuff (roofs etc) so it might not be to clever working at heights, not to mention using power tools. I've already nailed my hand to a roof with a 4" nail from my nail gun, it hurt quite a bit - not as much as using a claw hammer to pull it off again. Still, just a tickle compared to a CH.

Look at the bright side - it's impossible to nail BOTH of your hands to the roof without assistance.

. I won't but I could.

Potter

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Headache Boy uk CH.com Old Timer Offline Matthew ch 11 v 28 Posts: 373 Mersea Island nr Colchester Gender:	Re: Gabapentin (Neurontin) Reply #17 - Feb 12^th, 2010 at 2:19pm only in some bizzar final destination kinda freak accident....not that I did it on purpose the first time. I nailed in a vally rafter and the nail went through the rafter,lay-board and my hand...er well finger to be more precise.
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