Click this link to read a post I like on the clusterheadaches.com message board...

May 18^th, 2025 at 3:12pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Medications, Treatments, Therapies › any idea what I'm doing wrong?

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

any idea what I'm doing wrong? (Read 1129 times)

Kurt

CH.com Newbie

Offline

I Love CH.com!

Posts: 5

any idea what I'm doing wrong?
Feb 9^th, 2010 at 2:05pm

OK...after 20 years of episodic cluster headaches...I finally started my annual post Christmas episode with a stash of cluster buster treatment. I've not had any meds in my body since last spring, and have followed all the clusterbuster suggestions including making the tea.

I've had four doses now...ranging from 5 to 7 days apart. Each one was on an empty stomache. I've reached level 1+ to level 2+ each time. I don't have a scale but the results have been pretty consistent...meaniing smaller amounts resulted in level 1.5 and larger amounts resulted in reaching level 2+

After all that I'm still getting hit albeit mostly shadows and kipp 2-3 at most. Nothing like the normal bashing I typically get. No complaints there but I want it gone gone gone. I'm leaving for a 4 week work trip to Puerto Rico on Monday and I'm concerned about procurring O2 there.

Do I keep trying? Wait it out? Accept it isn't going to work for me? Any suggestions at all would be appreciated.
Thanks

IP Logged

Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: any idea what I'm doing wrong? Reply #1 - Feb 9^th, 2010 at 2:19pm I would suggest talking to the Pros on the clusterbuster chat board. Somebody there should have some answers. I'm wishing you some PF time through your trip. Take Imitrex injections or energy drinks as an alternative to O2 if you can't get it.
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

Kurt CH.com Newbie Offline I Love CH.com! Posts: 5	Re: any idea what I'm doing wrong? Reply #2 - Feb 9^th, 2010 at 2:48pm thanks Chad...didn't even see their board when I was researching over there. just registered but can't validate until tonight.
Back to top	IP Logged

Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: any idea what I'm doing wrong? Reply #3 - Feb 9^th, 2010 at 2:54pm Kurt wrote on Feb 9^th, 2010 at 2:48pm: thanks Chad...didn't even see their board when I was researching over there. just registered but can't validate until tonight. No problem my friend! That boards has TONS of info and very informative points of view. You'll see.
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: any idea what I'm doing wrong?
Reply #4 - Feb 9^th, 2010 at 4:14pm

Your arterial pH could be low... too much acid... If that's the case, none of the preventatives or abortives (even the botanicals) will work at maximum effectiveness...

A low pH can keep your vascular system in a constant state of vasodilation. Our bodies sense the low pH and assume it's due to elevated CO2 levels so dilates the arteries to increase blood flow to the lungs to remove excess CO2. This condition tends to make the cluster headache triggering mechanism more effective with an increase in the frequency, intensity, and duration of our attacks...

I take 4 to 6 calcium citrate tablets with vitamin D, magnesium, and zinc a day when I go into a high cycle... They act as a buffer so will raise the pH of your system back up to neutral, and that tends to constrict the arteries back to normal...

Take care,

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

IP Logged

Kurt CH.com Newbie Offline I Love CH.com! Posts: 5	Re: any idea what I'm doing wrong? Reply #5 - Feb 9^th, 2010 at 4:18pm is there a way to check the vascular systems pH level? is it the system or the whole bodies pH level?
Back to top	IP Logged

Batch

CH.com Alumnus

Offline

Control The Beast With
O2 & D3 You Must

Posts: 3708
Bremerton, WA
Gender: male

Re: any idea what I'm doing wrong?
Reply #6 - Feb 10^th, 2010 at 1:34am

Kurt,

I use pH test strips from pH ION and measure my saliva... You can order them over the Internet... I take the saliva readings three times a day at the same time each day and average them for a daily average. Saliva pH is a little different than arterial pH but it will parallel... You're basically looking for a trend where the frequency, intensity, and duration of your attacks drops as the daily average pH rises...

If you take your saliva pH as soon as you detect an attack starting or as soon as you awake with one, you should see a pH reading below your daily average... If you take a second saliva pH reading 5 minutes after the abort with oxygen therapy you should see an increase in the pH back up to near or above your daily average.

Here's what my pH profile looked like the last time I tracked it for two weeks.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

I also used a finger pulse oximeter to measure my oxygen saturation as soon as I woke up and again 5 minutes after the abort with oxygen therapy.

I can send you the excel spreadsheet to track and plot your saliva pH if you're interested.

I still push the calcium citrate tablets with vitamin D, magnesium, and zinc... They can't hurt and may even do your bones a favor...

Hope this helps.

Take care,

V/R, Batch

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!