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LadyLuv

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Champaign, IL
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Thanks 4 Prayers and Vibes...
May 14^th, 2010 at 10:35am

Okay Family... I know that I'm a headache... (Literally)

But I need your Prayers and Vibes desperately... I returned to work today after being off 2 days and one ER run.... This cycle got real bad about three weeks ago, where I was having rebounds rather I used o2 or Trex. But I kept on fighting that evil one... Finally two weeks ago I called my Nero and he put me on a 10 day cycle of Prednisone...

For the first time ever, the Prednisone did not break the cycle.. I've been off the Pred for a week and my CHs seems to have escalated.

My Niece rushed me to ER on Tuesday Evening.. where they knocked me out with an injections; first full night of sleep in a while.. Smiley

I saw my Nero yesterday and he wanted me to try another round of Prednisone (a stronger dose) and he also increased my Verapamil doses.

Only had four hits in the last 24 hours.. with the highest being a 7 before I could get to o2... No rebounds - So I'm back at work today....

Luv & Hugs..
LadyLuv

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« Last Edit: May 17^th, 2010 at 1:33pm by LadyLuv »

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BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Prayers and Vibes Needed... Reply #1 - May 14^th, 2010 at 10:43am Vibes on the way, Hope you can get through the day at work and the monster behaves itself. At least it’s Friday, hope you can get some enjoyment out of the weekend. Matt
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Jimi CH.com Moderator CH.com Alumnus Offline Don't feed the moderators Posts: 4925 Madisonville, KY Gender:	Re: Prayers and Vibes Needed... Reply #2 - May 14^th, 2010 at 10:52am I HATE these headaches. Praying that you will get relief and get it soon.
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Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Prayers and Vibes Needed... Reply #3 - May 14^th, 2010 at 10:52am Praying things are turning around for you and that this cycle is winding down. Love and Hugs, Jeannie
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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Prayers and Vibes Needed... Reply #4 - May 14^th, 2010 at 11:29am I'm a Prayin and vibein.. that this round does the trick for you Ruthie.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Prayers and Vibes Needed... Reply #5 - May 14^th, 2010 at 11:41am Oh Ruthie...hugs and prayers. Been a tough year for so many on the board, praying it's finally done with you this round. Joe
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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Prayers and Vibes Needed... Reply #6 - May 14^th, 2010 at 11:58am Prayers from Montana. Potter
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midwestbeth CH.com Sponsor Offline Posts: 1123 Edwardsville, IL Gender:	Re: Prayers and Vibes Needed... Reply #7 - May 14^th, 2010 at 12:11pm Oh, Ruthie, I'm so sorry to hear the beast is giving you such a rough time. Prayers and vibes going out that the higher pred dose works. Hugs, Beth
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: Prayers and Vibes Needed... Reply #8 - May 14^th, 2010 at 12:16pm Prayin' and a'vibin' for you from the frozen tundra. Keep fighting the good fight.
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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Prayers and Vibes Needed... Reply #9 - May 14^th, 2010 at 12:39pm Damnit, Luv...you so deserve a break!!!!!!!! You know, Sister, you're always in my thoughts and prayers. You know where we are if you need us. Love to you... Jackie
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Headache Boy uk CH.com Old Timer Offline Matthew ch 11 v 28 Posts: 373 Mersea Island nr Colchester Gender:	Re: Prayers and Vibes Needed... Reply #10 - May 14^th, 2010 at 3:26pm Thoughts and prayers to you from over the pond. Nigel
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Melissa CH.com Moderator CH.com Alumnus Offline Don't give up! Posts: 7238 Central WI, USA Gender:	Re: Prayers and Vibes Needed... Reply #11 - May 14^th, 2010 at 3:34pm Aw Ruthie, I am so sorry!! I'm praying for you my friend. love, mel
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Grandma_Sweet_Boy CH.com Alumnus Offline What Goes Around Comes Around! Posts: 4496 Georgetown,Ontario Gender:	Re: Prayers and Vibes Needed... Reply #12 - May 14^th, 2010 at 3:55pm I'm sorry. Hang in there girl - PF wishes on the way. Hugs Carol
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deltadarlin CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 3823 Downsville LA Gender:	Re: Prayers and Vibes Needed... Reply #13 - May 14^th, 2010 at 4:30pm Damn Ruthie! Offering you all that I have. Carolyn
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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: Prayers and Vibes Needed... Reply #14 - May 14^th, 2010 at 4:59pm Praying! It WILL end. Hang on. Jerry
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jon019 CH.com Alumnus Offline "Ya gotta believe!" Posts: 1656 USA Gender:	Re: Prayers and Vibes Needed... Reply #15 - May 14^th, 2010 at 7:27pm Oh Ruthie...this hurts my heart!...but so glad you asked for help. Been told that's what family does..and you all are in my prayers and thoughts daily...extra special "operator-information, get me Jesus on line" for YOU. Best, Jon
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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: Prayers and Vibes Needed... Reply #16 - May 14^th, 2010 at 8:15pm Anything for you dear Ruthie.... Everything I got to spare is on the way.
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Batch

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Control The Beast With
O2 & D3 You Must

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Bremerton, WA
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Re: Prayers and Vibes Needed...
Reply #17 - May 14^th, 2010 at 9:27pm

Hey Ruthie,

Glad you finally got a handle on the beast...

For some reason, this spring has been the worst for many of us in a long time. It seems like the CH attacks have been jumping ugly on us faster and harder than ever with no breaks.

I don't know if it's pollen, mold spores, temperature or body clock, but something is different and it appears to be hitting more of us harder than usual.

The fact that it takes a hefty dose of a powerful anti-inflammatory/immunosuppressant like prednisone to bring a CH cycle back under control leads me to think something is causing our histamine levels to spike more than usual.

Take care,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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LadyLuv

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I love YaBB 1G - SP1!

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Champaign, IL
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Re: Prayers and Vibes Needed...
Reply #18 - May 15^th, 2010 at 2:42am

The ole Beast is really on the war path... Made it through work with only one mild hit.. O2 knocked it out... But apparently it pissed the Beast off... He's been knocking me for a loop all evening.. It's now 1:35 and I think he's finally went to sleep... been free for almost 2 hours... the longest since I got home from work... Only my second day on the 2nd run of Prednisone... So hopefully tomorrow will be better... I'm going to try the recliner for a while.. I usually can catch him before he get to fearse if I'm sitting instead of laying... I've walked a at least 5 miles through the house in the last week... Undecided

thanks for the Prayers and Vibes...

Peace & Blessings
LadyLuv

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LadyLuv

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I love YaBB 1G - SP1!

Posts: 1495
Champaign, IL
Gender: female

Re: Prayers and Vibes Needed...sssSSSHHHHH
Reply #19 - May 17^th, 2010 at 9:52am

SSSSSSSHHHHHHH! Don't want the Beast to hear this....

NO HITS FOR ALMOST 36 HOURS!!!!

AND ONLY 2 SHADOWS.

The Second Round Of Prednisone Must Be Working.... Took a nasty hit Saturday Night while working Bar @ my PT Job; at about 9pm... Did Trex and walked it off out on the loading doc.. Back at the Bar in half hour...

I Thank God Daily For My CH Family, And Thank All Of You For Your Prayers 'N' Vibes...

Peace & Blessings
LadyLuv

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Redd CH.com Sponsor Offline Posts: 8457 Stevens Point USA Wisconsin Gender:	Re: Prayers and Vibes Needed... Reply #20 - May 17^th, 2010 at 10:26am Lets see if we can raise enough good vibes and prayers to make that number reach 36,000,000,000,000 hours.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Prayers and Vibes Needed... Reply #21 - May 17^th, 2010 at 10:54am Redd wrote on May 17^th, 2010 at 10:26am: Lets see if we can raise enough good vibes and prayers to make that number reach 36,000,000,000,000 hours. That's over 4 billion years.
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LadyLuv CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 1495 Champaign, IL Gender:	Re: Prayers and Vibes Needed... Reply #22 - May 17^th, 2010 at 11:43am Brew wrote on May 17^th, 2010 at 10:54am: Redd wrote on May 17^th, 2010 at 10:26am: Lets see if we can raise enough good vibes and prayers to make that number reach 36,000,000,000,000 hours. That's over 4 billion years. Yea I Wish.... You guys are nuts... and I love you much... Lady Luv
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Redd

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Re: Prayers and Vibes Needed...
Reply #23 - May 17^th, 2010 at 12:06pm

Brew wrote on May 17^th, 2010 at 10:54am:

Redd wrote on May 17^th, 2010 at 10:26am:

Lets see if we can raise enough good vibes and prayers to make that number reach 36,000,000,000,000 hours.

That's over 4 billion years.

I took into account the remote possibility of reincarnation. That way, any future lifetimes are coverd. Wink

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Prayers and Vibes Needed... Reply #24 - May 17^th, 2010 at 12:45pm Redd wrote on May 17^th, 2010 at 12:06pm: That's over 4 billion years.I took into account the remote possibility of reincarnation. That way, any future lifetimes are coverd. I wouldn't want any part of any higher power that would reincarnate me with this f*cked up condition twice.
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