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Finally Gone (Read 10728 times)
FinallyGone
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Finally Gone
May 22nd, 2010 at 10:15pm
 
Finally Gone, I suffered for several years, at least 8 or 9.  I had run into a friend from work who currently suffers from Cluster Headaches and I had mentioned to him that I was able to get rid of them. He made me realize if I can, perhaps my story can help others, it was a long, long painful trip but I can say they are truley gone. I believe them to be a lack of circulation, I am not a doctor, nor do I pretend to be.   I only know it worked for me. I had woke up with a severe pain above my left eye.  It came and went.  I saw every professional humanly possible... I'd list them but I'm not sure there is enough space here. I had learned to manage my circulation, in turn I was able to clear what I believe was the clot or reason for my pain.  I'm pain free and have been for several years know.  I hope this helps...  I really simplified the process but it may be a starting point for some...
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Re: Finally Gone
Reply #1 - May 22nd, 2010 at 10:25pm
 
Glad you're feeling better.
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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Re: Finally Gone
Reply #2 - May 22nd, 2010 at 10:32pm
 
What Brew said!!!!


....and I can't wait til potter sees this thread!!!
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Re: Finally Gone
Reply #3 - May 22nd, 2010 at 10:54pm
 
Anytime anybody achieves a pain free state........I for one am happy. Smiley

Joe
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Re: Finally Gone
Reply #4 - May 22nd, 2010 at 11:12pm
 
Maybe Charlie's circulatory technique coupled with remission?

Just a guess.
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Re: Finally Gone
Reply #5 - May 23rd, 2010 at 6:39am
 
Yeah, that's what I'm thinking Redd...
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Re: Finally Gone
Reply #6 - May 23rd, 2010 at 10:34am
 
Quote:
....and I can't wait til potter sees this thread!!!


Smiley

Finally gone, you DO know that they will come back, right?  Not to be a downer...but even with long remissions of some around here there, is no cure for CH and the better we prepare ourselves, the easier it is on us and our supporters.  Most episodics stock up on their meds, 02 etc. while not in cycle, put them away and then go on with their lives with the knowledge that when they come back...they'll have what they need to fight the good fight.  BTW...CH is NOT caused by blood clots.  Wink

Redd,  I thought about that too, but Charlie's circulatory technique was only supposed to be a way to reduce the pain somewhat.  Not make a cycle stop.
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« Last Edit: May 23rd, 2010 at 10:35am by Linda_Howell »  

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Re: Finally Gone
Reply #7 - May 23rd, 2010 at 10:59am
 
Quote:
Redd,  I thought about that too, but Charlie's circulatory technique was only supposed to be a way to reduce the pain somewhat.  Not make a cycle stop.


WE know this, but someone who's come across the technique at the end of the cycle, just as remission sets in, could easily view it, albeit wrongly, a cause and effect.
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Re: Finally Gone
Reply #8 - May 23rd, 2010 at 12:58pm
 
Quote:
someone who's come across the technique at the end of the cycle, just as remission sets in, could easily view it, albeit wrongly, a cause and effect.


Very true, unfortunetly.   Undecided
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Re: Finally Gone
Reply #9 - May 23rd, 2010 at 2:33pm
 
Good morning, I was 22 when they came, I didn't realize how many people suffered as I did. I suffered for close to a decade.   I tried everything conventional and what some may view a bit unconventional, everything from acupuncture, to 0xygen treatment. MRI's, CAT Scans, The Script Institute in San Diego and on and on and on.  At least for me I realized I needed to get rid of the demon/pain my self.  I learned how to, and I know this may sound/read weird, but I learned how to manipulate my circulation by focusing my thoughts/energy.  I then was able to focus on where I was hurting and well I felt what I can only explain it as a twinge under my left eye.  It was as if a clot had cleared or circulation was able to flow. I was pessimistically optimistic.  The headaches were gone, I'm 45 now and loving life again.  This worked for me, I'm not a doctor and I just wanted to share my story. I've been pain free for 15 years now.  It's gone...
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Re: Finally Gone
Reply #10 - May 23rd, 2010 at 3:00pm
 
...finally.
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Re: Finally Gone
Reply #11 - May 23rd, 2010 at 3:39pm
 
I've been pain free for around two thousand days plus or minus.  I was strongly advised by a member to get o2.  I got it,  I huffed it and it killed the cycle. So the oxygen cured my problem.  Right?  No it didn't. It's called remission.  So be thankful you are pain free but let's not call ourselves cured.  I gotta call bull shit.

           Potter
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Re: Finally Gone
Reply #12 - May 23rd, 2010 at 4:01pm
 
You're slowin down in your old age potter....LOL!!!!!

DD
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Re: Finally Gone
Reply #13 - May 23rd, 2010 at 4:05pm
 
If you want to call it a remission, that's fine.  I mean no disrespect for those who are currently suffering, or have had relapses.  I'm glad you escaped the cycle as well, I know there are more then one way to skin a cat, as the saying goes.  If it works, GODs Blessed You, that is for sure.
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Re: Finally Gone
Reply #14 - May 23rd, 2010 at 5:49pm
 
Good thing you didn't use the "C" word or instead of Potters "bullshit" you would have gotten Potters "Booolshit"
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Re: Finally Gone
Reply #15 - May 23rd, 2010 at 9:42pm
 
Glad you've been free of this horror for so long. So have I but it has nothing to do with my technique which a good portion of the time shortened my hits during my cycle. It didn't reduce pain unless it stopped them. It's an all or nothing thing....which is probably too bad.

Here it is for those that haven't read it:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. This technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. Increased circulation will result in a reddening and warming of the hands. As silly as it sounds, try to think of it as filling your hand with redirected circulation. The important part is that it has to be done without interruption until it works. Do not give up in frustration. It may not work on the first try. Sometimes it can work quicky but it almost always worked after a time. Try experimenting between attacks. You will find that it gets easier with practice.

I was given less than five minutes instruction in the use of this method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I had about a 75% success rate shortening these attacks. My 20 minute hits were often reduced to 10 minutes or less. Once proven that I had a chance to deal with this horror, I always gave it a try as I had nothing to lose but pain.

I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This draws some circulation away from the head and sounds good to me. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea.

This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain.

I hope this technique is helpful and I wish you the best of luck.

Charlie
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Re: Finally Gone
Reply #16 - May 25th, 2010 at 12:58am
 
Charlie,

I had started almost exactly as you've stated.  I believe/hope you'll find the path as I did, and end up cured / in remission. g/l
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Re: Finally Gone
Reply #17 - May 25th, 2010 at 2:03am
 
just wanted to mention i have 4 to 6 years of remission between cycles. i hope you never get them again but i HIGHLY recommend that you be prepared if they do.

dont get caught with your pants down.

good luck
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Re: Finally Gone
Reply #18 - May 25th, 2010 at 2:26pm
 
My only comment is that any remission is not related to this technique.

You won't find anyone more than I further away from holistic or crank ideas when it comes to medicine. It isn't that kind of thing.

I can't stress this enough.

Charlie
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« Last Edit: May 31st, 2010 at 9:50am by Charlie »  

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Re: Finally Gone
Reply #19 - May 25th, 2010 at 2:43pm
 
Charlie wrote on May 25th, 2010 at 2:26pm:
My only comment is that any remission is not related to this technique.

You won't find anyone more than I further away from holistic or crank ideas when it comes medicine. It isn't that kind of thing.

I can't stress this enough.

Charlie

     Good onya Charlie.

         Potter
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Re: Finally Gone
Reply #20 - May 25th, 2010 at 10:58pm
 
"Holistic and crank ideas" nice.  Smiley  I'm new here and came on strong, I now know why its taken me this long to share my story.  I wish you luck.
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Re: Finally Gone
Reply #21 - May 26th, 2010 at 12:08pm
 
You haven't really shared anything substantive.  I've been waiting on the other shoe to drop and find out how I can do it too and what it is going to cost me.  Pardon me if I am reading thing wrong, but your first post sounded like the usual snake oil pitch that ends up with us having to buy something from you or a friend of yours.  I really do hope I'm wrong, and I truly do hope you are PF until you die at a very old age.  If you have CH though I don't hold out much hope for that.

Jerry
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Re: Finally Gone
Reply #22 - May 26th, 2010 at 12:22pm
 
I used his technique and poof he was gone .   Unfortunately  just like clusters another will take his place.

        Potter
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Re: Finally Gone
Reply #23 - May 26th, 2010 at 12:36pm
 
What technique?? Huh   

Quote:
I had learned to manage my circulation, in turn I was able to clear what I believe was the clot


That is the only thing he said and it certainly wasn't clear and didn't explain anything at all.
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Re: Finally Gone
Reply #24 - May 26th, 2010 at 1:19pm
 
Linda_Howell wrote on May 26th, 2010 at 12:36pm:
What technique?? Huh   

Quote:
I had learned to manage my circulation, in turn I was able to clear what I believe was the clot


That is the only thing he said and it certainly wasn't clear and didn't explain anything at all.

Yep that one.  But he will check back.

              Potter
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