What you're describing is very common. Many find as soon as they start to relax or "let down" they get hit. You'll see people's tag lines that say never relax, always stay up. In high cycle I'll stay pumped up on coffee all day...specifically Starbucks Latte's.....my on cycle vice !....just to try and avoid the let down hit.

Naps while on cycle are a no-no as that's begging for a hit.

Joe

Diamond Lucidity wrote on May 29^th, 2010 at 3:12am:


That last line is one of the most frustrating aspects of CH. Whether it's establishing triggers for individual attacks, or for whole cycles, there's no knowing for sure if it's a causative factor, or just beastie morphing again.

Joe

as far as i can figure the nerve that ignites when a hit occures is the trimingeile (cant spell and i dont reconize puncuation)and it runs from the neck to the eye along the nasal passage i too wondered if neck position was a trigger im starting to think that anything that aggervates this nerve triggers signals to the brains pain center wether it be sinuses allergies neck problems muscles pulling or releaseing vertabrea out of line or changes in signals from the hypothalimus or intercranial pressures there has to be something about that nerve that makes it hypersensitive kinda like pepole who suffer from rsd

I dont sleep much as I always seem to wake to ch. I have been in 2 bad car accidents injuring my neck and many times my neck bothers me during a ch.  I do not venture out into the sunlight or bright lights as this too triggers ch's for me.

I do, and I think it may involve more than just the neck as well.

The last 4 cycles ive delt with were diferent than the other in the fact that my neck would hurt almost as much at times, more often than not before the attack really began.  I found in the past that by grabbin that nerve in my neck a squeeseing hard I could suprisingly shut the pain off in my head, that was untill I let go where it came rushing back. 

Now I wouldnt recoment tryin that for anyones CH's, i personnaly believe that, THAT is what changed my CH's and added my neck to the torture.  I think ive damaged the area or the nerve iteself after the last few times of doin that.  But since then my neck has always tightened up first before an attack began.  I've never done that to my neck again.

This newest cycle on the otherhand has been very strange, started may 15th, first two or three days of it were light, but after that all hell broke loose.  The last week thou, no serious CH's, a CONSTANT kip 2-3 at all times, but nothing more than that. 

The thing that I found the strangest, and the whole reason I bring it up, is that my neck has been tight and tense the whole cycle with a few exceptions.  And not just my neck, my back decided to join in as well this cycle.  It literally follows a line of tight tension from the base of my neck, and inch or so to the right, ( im right sided) to about 3 inches or so below my shoulderblades..   always an inch or so away from my spine, like a lil burnin line down my back.

Not sure if it helps much, but since our condition deals alot with the nervous system, it stands to reason that there may be some bleed off to other nerves or may be directly associated with them.  Makes me wonder if chineese acuepuncture might help any of us.

Busy, not busy, resting or not makes no difference with my CH.   I get hit whenever the beast decides I'm ripe for torture. 

The only thing I have noticed with Positional triggers, is that I can no longer sleep with my head resting on the side of my CH attacks, it is a trigger.  I have them on the left side of my head so no laying with my head resting on the left side.   

Guiseppi wrote on Jun 19^th, 2010 at 9:24am:

Ain't That the Truth!