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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › They just don't get it!

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They just don't get it! (Read 5716 times)

MattyAA CH.com Veteran Offline I Love CH.com! Posts: 242 Poland, EU Gender:	Re: They just don't get it! Reply #25 - Jun 24^th, 2010 at 7:00pm Probably because people are ignorant and place everythig unbelievable in their ignorance. If something wasnt shown on tv or in their tv serial then it is magic for them.
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jon019

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"Ya gotta believe!"

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Re: They just don't get it!
Reply #26 - Jun 24^th, 2010 at 8:41pm

...a LONG time ago, I had a near desperate need for others to understand my predicament with ch. Not sure why...maybe sympathy or pity (nah)..or just to know why jon acts so strangely sometimes.

But, with the exception of ONE colleague who had a friend with ch, ONE physician with experience, AND you folks here.....no one has ever UNDERSTOOD. How could they? They have no point of reference. And I stopped creating more angst for myself because they couldn't. This can be a soul searing, lonely, desperate battle...one fight at a time for me.

Not to say I have been shunned, derided, or even doubted. My friends, family, and colleagues know that jon has "awful" headaches...that's enough for me. I believe that their "acceptance" derives from my also desperate need to display I am just a regular guy in between hits...pull my weight, upbeat attitude, let's get on with life!

Simon's letter is an amazing description of what ch is and means to a person. I cried the first time I read it...just wow! That said, I rarely pass it out....the few times I have the reaction was........nothing. Unless you've experienced ch in one form or another (like a supporter)...a letter just doesn't get through. YMMV.

oh, and also...I've gotten all or most of the "suggestions" that are legend. Too much "stresh" (from a drunken colleague)....you smoke too much...you don't smoke enough(pot)...you drink too much...you don't drink enough....you sleep too much...you don't sleep enough (oh please!)....just relax...don't think about it...meditate...chiropractic....accupuncture....quit your job...work harder....and on and on and on....

They all mean well...I hold no grudge...I take it all in with a sense of humor that without which, a clusterhead is bereft.

Best,

Jon

The LARGE print giveth....and the small print taketh away. Tom Waits

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davidj35

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02 is my best friend

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Re: They just don't get it!
Reply #27 - Jun 25^th, 2010 at 11:40am

Emma,

I hear you, my biggest issue is I have given the document to quite a few people and when I ask them what they thought I get "oh I didn't read the whole thing it is too long etc". What a crock but then I think about it and I realize I don't really research my colleagues issues either. While it is a great document and I carry 10 of them with me at all times we all know the saying "you can lead a horse to water but you can't make him drink".

David

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: They just don't get it! Reply #28 - Jun 25^th, 2010 at 11:51am Quote: oh I didn't read the whole thing it is too long etc Maybe it's because they're Mets fans? Oh, snap! Just kiddin' ya, brother.
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davidj35 CH.com Veteran Offline 02 is my best friend Posts: 151 x0\|LaGrange\|USA\|\|0\|0\|NY,New_York Gender:	Re: They just don't get it! Reply #29 - Jun 25^th, 2010 at 11:59am Maybe it's because they're Mets fans? Oh, snap! Just kiddin' ya, brother. [/quote] LMAO David
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MichelleP12

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Re: They just don't get it!
Reply #30 - Jun 27^th, 2010 at 11:54pm

1) I can't stand it when other people tell me, "Oh I know what you feel. I have migraines too." AS IF!

2) Doctors blow me off and I am SICK OF IT! Went to ER a week or so and the NP diagnosed me with pink eye and prescribed eye drops and antibiotics---even after I told her I'd had a diagnosis of clusters. Then she ordered a "cocktail" which drugged me up, put me to sleep, then sent me home. I was NOT safe to drive. This is the second time this has happened to me (diff hospital).

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