Well, I',m 24 hrs's deamon free. Thats a first in a few weeks. That prednisone works. Just hope it lasts cause I only got twelve of em. Is that a normal dosage? ANyway...I called that Doctors office back this morn to see if they might reconsider the oxygen I asked for. What are they afraid of? I'm gonna go stand on the street cornor and try to sell it or something. geez

Skull Buster wrote on Jun 2^nd, 2010 at 1:06pm:


as jonny once said "you don't need no stinking doctor!!!"

any welding supplier will rent you a bottle and refill it for you. tractors supply is a good place to get o2. you cant get your regulator on ebay.

no reason to sit thro a  couple screamers while your doc says " uh.....ummm.....i uh......hmmmm......i dunno if you need o2. mmmmmmmmm lemme think about it."

i don't know why doctors want to jerk you off on the o2. it easier to just bypass the doc and get your own o2 and regulator.

eliminate the waiting and the middle man.  it's your head.

scull buster another thing to consider is this.
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i'm not against to the doctor but CH is such a rare condition that you have to educate your doctor on what works and what doesn't. where all different. i live so far out of town that a trip to the doctor for this particular ailment is a 6 hour event. it just seems like a big pain in the ass. however you must be sure that have been diagnosed with CH. anything we may suggest won't work for migraines or sinus headaches.

And some migrainers have responded to Oxygen therapy (unfortunately, I'm not one of them).

Prednisone didn't help me or the Neurontin. So far, the Verapamil is working. Last time, neurologist said he'd give me oxygen if they started back up but called in verapamil. waiting for appt. in July, maybe he'll give it to me then. Are they stingy with it or what? Last time I went to see him, they had ended, the appt. took so long. I'm hoping they'll be gone by July. Hey, there's a cure for me-make appt. and they'll be gone before you get there! LOL

well, I finally got some o2.Like I said b-4. My father has been cronic with CH for about 30 years. His started in his 20's as did mine. He drove out on the 6/02 and brought me a couple of his tanks. Says he doesn't use em much anymore. he's getting older, and his seem to be getting less severe, and he's hoping to go into permanent remission soon. (As older men do sometimes)  Today I did some horse trading and got  my own bottle w/ regulator Got my eyes on a 25 LPM regulator on e-bay. And to the person that said the deamon might come back after the pred. wears off, It's possib;le, but maybe not cause I've already been in cycle for about 8 weeks, and thats about the longest mine last.   this morn at 3:00 am was 64 hrs CH free. Dumbass me tested the waters at 11:00 pm last night with my worst trigger...........beer. Drank three, went to sleep, and BAM. 3o'clock it woke me. I ran to the living room, busted out the regular, blasted it wide open to 15, and sucked the bag empty with my mouth. as quick as it was full again, repeat. It didn't take long, before I was laying there in the bed with a shit eating grin   I LOVE O2

yeah. When I'm not in a ch cycle, My brain works as normal as Homer Simpson's Actually lead a normal life. Drink beer without even thinking about it.  But yeah man, I'm on an o2 mission. I've been puttin the word out. Just a matter of time before I have me a nice set up. Between that, and the clusterbusters, a po-boy like me don't need no stinkin doctor.
Can I get a hell yeah!!!??