calisto wrote on Jul 6^th, 2010 at 4:52am:


Increasing gradually in small increments is safer while your system gets accustomed to new levels.  Check your needs to try not going beyond what is sufficiently effective for the term left in this cycle.  When the time comes a CH hasn't knocked for about two weeks and if you may want to try decreasing, slow increments also.   

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Explain the increase to let your doc know.

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You might want to reevaluate your position on this. If we all took your approach, nobody would have been here to help you.

Maybe it's time to pay it forward. You'd be surprised what it does for the soul when you shift from being self-focused to becoming other-focused.

I have maintained for a long time that we, as individuals, can never be truly happy unless and until we become completely focused on the happiness of others. Kind of a paradox, I know. But you should try it.

Have it your way. Go about your business.

All that other stuff I said? Nevermind.

Ok...held my peace long enough on this one...the following is to NO ONE in particular but to serve as a reminder to all CH sufferers either here on this board or not.

You can not goad/bully/push/insult in anyway shape or form someone to do something that they do not want to do, nor should we even try to do so.

For some people continuously thinking about their CH problems whether suffering at the time or not only seems to bring them down further or makes them feel like they are dwelling on a bad thing when they'd rather be out living their life. 

You may think of this as denial, avoidance or what ever you wish, but the fact is we all handle things differently and shouldn't be looked down upon or thought badly of because someone handles it differently than we would.

We all suffer the same disease that doesn't mean we are all the same.

Please try to be more respectful of others.

(stepping off soap box now)

If a regular prednisone taper doesn't work, you may ask about a Medrol Dospak.  The stuff is wayyyy stronger than regular pred and should buy you 3 to 4 pain free days.

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i am so sorry but seems i can't answer at all.this question makes me continuously for the time being thinking about my own ch problems whether suffering at the time or not seems to bring me down further or make me feel like i am dwelling on a bad thing when i would rather be out living out my life.
sorry but i ll think about my own ch problems while you think yours.hope someone else comes along to help.
with all the respect
We all suffer the same disease that doesn't mean we are all the same

Dear All,
Please stop picking on Calisto.  He has every right to deal with his life (and any and all events within it) the way that suits him and his the best within their capabilities.
He came to this site for understanding and support - not a guilt trip, not attitude - because, ahem, this is technically the 'Worldwide cluster headache support group'. 
Sincerely,
Lettucehead

Nobody's picking on anybody. I think we're all big boys and girls here.

He chose to voice his opinion about sticking around and helping others, I told him he might want to rethink it, he told me to stick it. As has been so eloquently pointed out on this thread, everyone deals with it in their own way.

He takes a stance, he can deal with other people's opinions about that stance. Just like I can deal with him telling me off.

If anybody can't take the difference of opinion, they have the choice to hit the "ignore" button.

Support doesn't always mean being 100% in agreement. He has CH, I have CH. CH sucks. We have something in common. Where we disagree is in sticking around to help others when CH isn't in the fore. He's entitled to his opinion, I'm entitled to mine. Vive la difference.

Yes, absolutely, Ginger!

But also, I very much doubt that Calisto is emotionally in a place to be able to dispassionately step back and be able to assert his own needs in protecting himself by not thinking about CH when not in cycle.

Just 3 or so days ago, the man posted a heart-felt pleading statement for help as he was on his last legs.  Yes, he's gotten a night or two of better relief since then, but I think that we all know it takes some time to recover from the type of severe beating that the beast can give us.   
He just, likely, is not in a place where he can defend his 'stance' without emotional pain. 

Plus, he has bared his pain to us - he is hurting terribly, and he has come for help to us who supposedly know answers to help him.  This is a situation not unlike a mental health counselor and client or a doctor and patient - those in this group are considered the wise and knowledgeable in beating CH, those coming here are asking for help and are very vulnerable.  We need to be extra careful  (even in cases of disagreement) that our authority as those with the 'answers' is never used to harm those we mean to help.

The point is we shouldn't have to defend a relatively new person to this board who is seeking HELP and UNDERSTANDING!

   Oy Vey    


            

oh my goat!ok let me say just my opinion.
all the information (99,9%) needed are already stocked up here and even if in a magic way all the seven thousand members tomorrow morning decide to leave it for taking a walk and a drink in a beach bar and headbanging afterwards alltogether without music,a newbie here could still find his way with searches but it could take some more time than it is anticipated so what people are giving here already not asked is their TIME to show what anyone could find alone.i mean there is nothing more precious than TIME.there are about one thousand posts per sec. which say look in O2 section on the left which by now it should be like Las vegas and lights bleep from the counts,melatonin for night sleeping and verapamil works better around and even higher than 480 mg if tolerated and yet every time I ADMIRE people for repeating these.And as you calisto already said you are not a newbie as you have already taken the tour years ago
you must have seen something from these except if you were web surfing with the pc not plugged.
And you come here with the SOMEONE HELP which raises the necessary well attention.
excellent advises coming on and on and me the reading all these and if there is something that i may have to contribute.
and then after a few hours of good sleep i read the
oh brew brew brew why are you so antagonistic?
in the most kindest request which the man believes benefits both parties.
and then this
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which you agreed as well said
in which brew appears to goad/bully/push/insult
you agree with second paragraph also with yourself an evening crying for someone help and a few hours of good sleep later saying you push me around,i want to continue my life and now that i feel better i am thinking the rhetorical question that maybe it wasn't even the isoptin but my cycle ended so thanks guys!!(for what?the advise or the time i am thinking...you know retorical question)

so all i had was to raise these words as if it was a mirror since it seems it is a principle and should work both ways no matter if it is convenient.i never attacked you just took your words back which you agreed when it was easy it seems.it's your choice whether you brush your hair or spit it.and seems that yes i am a pette little man...

p.s.i don't defend brew in anyway.he can defend himself just fine if needed.i am just pissed off with myself wasting time with this.
p.s.i don't believe ginger believes what she writes down.just women defend till death a hairdresser no matter what, better than the 300 the leonidas guy.

pf wishes to all and to you callisto.
life is short,hairs are longer

black wrote on Jul 8^th, 2010 at 12:12am:


and I actually believe and stand by everything I said on this topic, thank you.

I have been PM'd and basically told off regarding this topic, which I found to be absolutely ridiculous and I will be saying no more on this topic as of today, I've said pretty much all I had to say on it.

Calisto and all other newbies who've had issues like this, I offer my apologies and hope your future experiences here are better ones.  This site is loaded with good information and good advice, yours for the taking.