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Cyberknife radiosurgery? (Read 29514 times)
boski
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Re: Cyberknife radiosurgery?
Reply #100 - Aug 13th, 2010 at 1:35am
 
Hey Neal,

That Sucks!  Sorry to hear that, Hope it kicks it soon.

Hope your PF soon,

Boski
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Guiseppi
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Re: Cyberknife radiosurgery?
Reply #101 - Aug 13th, 2010 at 11:20am
 
Damnit Neal I'm still pulling for success. Wishing you some peace and pain free time soon.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Neal
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Re: Cyberknife radiosurgery?
Reply #102 - Aug 14th, 2010 at 5:00pm
 
CKRS Report Part III - Post-Operative Day 10 - Report #1

       Well, I had the usual 4:30-5:00 am attack, but it wasn't as bad as they have been, for the most part (around a K4). I had the occasional shadow during the day, but not too bad - 5mg Lortab & a little while later that was that. Then about 11:15 pm I had a "real" CH (right as I was about to post this report!). Was around a K6. Imitrex & then get in the bed and roll around a bit until it was gone. Crashed.
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Neal
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Re: Cyberknife radiosurgery?
Reply #103 - Aug 15th, 2010 at 1:18am
 
CKRS Report Part III - Postoperative Day 11 -Report #1

          I seemed to have missed the 4:30-5:00 am visit, but woke up around 7:45 with around a K4, rolled around in bed and fell back asleep. Did not use anything to abort. Did sleep until around 2:00 pm, though. Woke up with a shadow, took some Lortab, that ended the shadow. Having another shadow as I write this, but it's not that bad.
        Also, I have not noticed much of a change in facial sensation, but something does seem to be happening in that regard, albeit sleight.
        It does seem that things are starting to improve with the CH - (keeping my fingers crossed for good luck).
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boski
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Re: Cyberknife radiosurgery?
Reply #104 - Aug 15th, 2010 at 1:49am
 
Hope so Neal,  Hope that relief comes soon and swift!

Good luck,

Boski
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Neal
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Re: Cyberknife radiosurgery?
Reply #105 - Aug 16th, 2010 at 12:17am
 
CKRS Report Part III - Postoperative Day 12

      Had an attack sometime in the morning - about the same as the previous day, no abortive, rolled around, fell back asleep, woke up around 3pm. Other than that, I have had real minor shadows, around a K2, I'd say. Don't want to jinx it, but I do think that things are starting to really improve.  Smiley
    My face feels about the same as the last report, only a very slight decline in sensation. Not numb, just a little bit less sensitive.
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Neal
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Re: Cyberknife radiosurgery?
Reply #106 - Aug 17th, 2010 at 12:49am
 
CKRS Report Part III - Postoperative Day 13

      Today has been the best day so far since I had the procedure. A very minor early morning CH, maybe a K2 or K3. Easily ignored.
      Had massive headache around 4:30 pm, but it was not a cluster - I think it most likely was sinus related.
       Around 8:00 pm or so, had around a K3. That's it so far.
       Of course, the past few days begs the question - is the reduction in CH frequency and severity a result of the CyberKnife, or is just the beginning of a spontaneous remission? Either way though, life does seem to be improving.
       So far, no further change in facial sensation.
         Smiley Smiley Smiley
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boski
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Re: Cyberknife radiosurgery?
Reply #107 - Aug 17th, 2010 at 11:08am
 
Good to hear Neal!

Keep the reports coming!

Hope You get to the PF place you want to be soon!

Peace,
Boski
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Guiseppi
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Re: Cyberknife radiosurgery?
Reply #108 - Aug 17th, 2010 at 11:21am
 
Sounds like progress to me Neal, enjoy the PF time!

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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Potter
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Re: Cyberknife radiosurgery?
Reply #109 - Aug 17th, 2010 at 11:46am
 
How's bout a charitable solution as was suggested in the thread you started and have so conveniently ignored.  Drop a dime on the site,  you'll feel better about yourself.

               Potter
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boski
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Re: Cyberknife radiosurgery?
Reply #110 - Aug 17th, 2010 at 6:27pm
 
Hey Potter:

Neal's brain is still settling from the surgery!

I'm sure he will come to his cent's soon! He he..

Just mussin with ya neal!  Charity comes from the heart!

Potter he has to pay that Doc.! for the head shake, rattle
and rollin he got! 

Just out joshin with ya all!  Have a PF day all!!!!

Peace,

Boski
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Neal
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Re: Cyberknife radiosurgery?
Reply #111 - Aug 18th, 2010 at 12:04am
 
Potter wrote on Aug 17th, 2010 at 11:46am:
How's bout a charitable solution as was suggested in the thread you started and have so conveniently ignored.  Drop a dime on the site,  you'll feel better about yourself.

               Potter


Don't worry, I will be donating before too long - been working looong hours lately in addition to having CH's the past few months - but where on ch.com do I donate? Forgive my ignorance, most of my time is spent on the message board lately. Or do you mean joining & donating to OUCH instead? Or can I do both? Thx.
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Neal
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Re: Cyberknife radiosurgery?
Reply #112 - Aug 18th, 2010 at 12:08am
 
boski wrote on Aug 17th, 2010 at 6:27pm:
Hey Potter:

Neal's brain is still settling from the surgery! 


True dat! But like Pooh, I'm a "Bear of Little Brain" - and that was before irradiating my cranium! Cheesy  Grin  Cheesy
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Neal
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Re: Cyberknife radiosurgery?
Reply #113 - Aug 18th, 2010 at 12:20am
 
CKRS Report Part III - Postoperative Day 14

     Well, woke up feeling fairly OK, until about 6:20 am when I got hit by a K7.5. 'trexed that f@&$er. Since the shot was from my older, expired stuff (going through the old stuff first), it took longer to work, maybe around 30 minutes.
      After that, was OK until around 2:30 or so, when I had a major shadow, around a K3.5. Has settled down since then, but remained fairly constant up until around 9:00 pm or so.
      So I guess the fat lady hasn't sung yet! Oh well, only time will tell.
       Neurosurgeon's office called today, I have a follow-up visit Monday. We'll see what he has to say. Hopefully I will be PF by then? I'll let y'all know what he says.
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Skyhawk5
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Re: Cyberknife radiosurgery?
Reply #114 - Aug 18th, 2010 at 12:37am
 
Scroll all the way to the bottom of this page to donate to the site.

Don
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Though I walk through the valley of the shadow of the Beast , I  have O2 so I fear him not.
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boski
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Re: Cyberknife radiosurgery?
Reply #115 - Aug 18th, 2010 at 3:17pm
 
Come on!  He knows how guys! 

Is that what got you to push the button?  Really!

Grow to the shoe size!  Ok I'm at my 11 1/2!
150mg Dope-o-max   Cheesy 

But Really!

Peace,

Boski
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« Last Edit: Aug 18th, 2010 at 3:17pm by boski »  
 
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boski
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Re: Cyberknife radiosurgery?
Reply #116 - Aug 18th, 2010 at 3:18pm
 
Skyhawk5 wrote on Aug 18th, 2010 at 12:37am:
Scroll all the way to the bottom of this page to donate to the site.

Don

Hey You gave $5 bucks like me?

Can hit it again! I did and I gave $10 second time I think
Can't remember with this topomax.
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« Last Edit: Aug 18th, 2010 at 3:21pm by boski »  
 
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Re: Cyberknife radiosurgery?
Reply #117 - Aug 18th, 2010 at 4:57pm
 
Quote:
Grow to the shoe size!  Ok I'm at my 11 1/2!
150mg Dope-o-max

But Really!

Huh?
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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so."  --Ayn Rand
 
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Potter
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Re: Cyberknife radiosurgery?
Reply #118 - Aug 18th, 2010 at 5:21pm
 
boski wrote on Aug 18th, 2010 at 3:17pm:
Come on!  He knows how guys! 

Is that what got you to push the button?  Really!

Grow to the shoe size!  Ok I'm at my 11 1/2!
150mg Dope-o-max   Cheesy 

But Really!

Peace,

Boski

Colin......................is that you?

                 Potter
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boski
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Re: Cyberknife radiosurgery?
Reply #119 - Aug 18th, 2010 at 6:02pm
 
Brew wrote on Aug 18th, 2010 at 4:57pm:
Quote:
Grow to the shoe size!  Ok I'm at my 11 1/2!
150mg Dope-o-max

But Really!

Huh?


Hey Brew:
How you doing?  Hope you and yours are well.

It's part Dope-o-max part bad humor!!!!!!
11 1/2 is my shoe size! Trying to get the guys to lighten up on poor old Neal. 

Where did I blow it at the start?  That is the place I start to
blow it most of the time so I'm told!!!!


If I said something offensive and I just don't see it please
do enlighten me.  Like I have mentioned I am Doppy-to-the
-max and quite sleepless the last few months.  So, Smack
me down if I did or said something way off base. I will
delete or edited it ASAP! 

Peace to you all,

Boski    Cheesy
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boski
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Re: Cyberknife radiosurgery?
Reply #120 - Aug 18th, 2010 at 6:08pm
 
Quote:
Colin......................is that you?

                 Potter


Hey Potter:

No, I'm just playing Potter please don't take any offense.

I love you all here.  Most helpful group ever seen online.

Boski
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Re: Cyberknife radiosurgery?
Reply #121 - Aug 18th, 2010 at 6:51pm
 
boski wrote on Aug 18th, 2010 at 6:02pm:
Huh?Hey Brew:
How you doing?  Hope you and yours are well.

It's part Dope-o-max part bad humor!!!!!!
11 1/2 is my shoe size! Trying to get the guys to lighten up on poor old Neal. 

Where did I blow it at the start?  That is the place I start to
blow it most of the time so I'm told!!!!


If I said something offensive and I just don't see it please
do enlighten me.  Like I have mentioned I am Doppy-to-the
-max and quite sleepless the last few months.  So, Smack
me down if I did or said something way off base. I will
delete or edited it ASAP! 

Peace to you all,

Boski    Cheesy

Nothing of the sort. I just had no clue what you were talking about.
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boski
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Re: Cyberknife radiosurgery?
Reply #122 - Aug 18th, 2010 at 6:59pm
 
Sometimes I haven't a clue either!   Wink
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Re: Cyberknife radiosurgery?
Reply #123 - Aug 19th, 2010 at 1:32am
 
CKRS Report Part III - Postoperative Day 15

      @&$#%!
      Had an early am CH, around a K7.5. Wondering if the brief respite from full-blown CH's, and then a return of them a short while later, is related to the stupid medrol (a corticosteroid) they gave me to take for any swelling that may have occurred  as a result of the CKRS procedure? Before my neurologist stopped giving me Prednisone tapers on account of the risk of avascular necrosis of the hip joint a number of years ago, that's about how the prednisone (another corticosteroid) would generally treat me, i.e., a short period of relief from The Beast and then a return.   
      Then got to to go to the dentist for part 2 of the 3-part root canal before work (build up & crown impression). Was a lot better than part 1. No pain, the novocaine worked as it should this time. The infection must be pretty much cleared up.
      After that, I generally had a pretty good day CH-wise at work, only a K3 shadow around 4 pm or so. Was so busy it was pretty easy to ignore, thank God.
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boski
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Re: Cyberknife radiosurgery?
Reply #124 - Aug 19th, 2010 at 9:47am
 
Neal,

Is it that your thinking about them too much now.  Maybe
it's time to just relax and just work your ass off and see how
life treats you!  Just a thought, I'm just a dope on dope-o-max
so I have no clue!  I hope you get the PF life your looking for!
If not, We are always here to chat with.  I do Understand
you Neal and my hat is off!  I guess it really comes down to
you pulled the dam trigger on something daring. 

I would have eating shrooms myself a dam shitload! Before
letting some dude with a joystick mess in my head.  But,
That's me, and your you.  I am hear with an ear for you
Neal.  Praying for you everyday that you find PF days..

Peace,
Boski
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