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Batch

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Re: Cyberknife radiosurgery?
Reply #125 - Aug 20^th, 2010 at 11:00am

Neal,

Is it time yet? When are you going to ask your neurologist for a prescription for oxygen therapy? You're going to kick yourself when you find how effective oxygen therapy can be in making the beast go away very rapidly...

It will change everything for the better and you'll gain a sense of confidence and control over your quality of life when you start using it that you don't appear to have at this point.

Take care,

V/R, Batch

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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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Guiseppi

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Re: Cyberknife radiosurgery?
Reply #126 - Aug 20^th, 2010 at 11:07am

Ouch, think you might be right and the steroid was giving you a masking effect. Sad

I am with Batch on the 02 thing. Do continue your reports on this procedure, this kind of info is valuable to a board like this. But have the 02 at the ready so when you do start getting slammed you don't have to take the full ride.

Still hoping the nerve is going for the academy award in a slow death scene, and will eventually give up the ghost and give you some peace.

Joe

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boski

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Re: Cyberknife radiosurgery?
Reply #127 - Aug 20^th, 2010 at 12:43pm

Neal:

Try the O2 man! What have you got to lose! Just the PAIN!
Oh, And it's totally LEGAL you can suck it at work, boss won't mind!
Start sucking it early! Still can use Imitrex and it don't hurt!

Where are you again? I'm ready to head your way to line
up at Doc's door for your REFUND!!!! If it doesn't work soon.

Maybe it will, but I think the Doc's just like to fill the rooms
for CASH!!!! sometimes.

Hang in there Neal we are here pulling for you all the time!!!

Boski

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Neal CH.com Junior Offline I Love CH.com! Posts: 94	Re: Cyberknife radiosurgery? Reply #128 - Aug 21^st, 2010 at 11:42am CKRS Report Part III - Postoperative Day 16 Day 16 was pretty good, except for a mild morning hit. Very mild shadows during the day, nothing like before.
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Neal

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Re: Cyberknife radiosurgery?
Reply #129 - Aug 21^st, 2010 at 11:56am

CKRS Report Part III - Postoperative Day 17

Started the day with a whale of CH around 4:30 am or so, around a 7.5 on the K scale. Major shadows after that. Until about 11:20 am when The Beast came on strong with a K 9.5. Put my sign on the door so people would keep clear -would have been bad if I had been interrupted. Turned off the overheads and turned a lamp I brought from home down on low light. Found it weird that light was bothering me - but kept the lights on low the rest of the day. Did my best not to cry like a baby, say too many bad words too loudly, etc. Some brief sobs. After about 20-30 minutes (imitrex) kicked its a$$, I pulled myself off the floor, cracked the the door open, and got back to work.
For the rest of the day I had almost zero strength/energy & felt like my brain had been pulled out through my left eye. I actually wondered, as I sometimes do during a bad hit, if pulling that eye out would help. Anyway that was "the day in CH" for me.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Cyberknife radiosurgery? Reply #130 - Aug 21^st, 2010 at 12:02pm Batch wrote on Aug 20^th, 2010 at 11:00am: Is it time yet? Not yet.
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Neal

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Re: Cyberknife radiosurgery?
Reply #131 - Aug 21^st, 2010 at 12:09pm

Batch wrote on Aug 20^th, 2010 at 11:00am:

Neal,

Is it time yet? When are you going to ask your neurologist for a prescription for oxygen therapy? You're going to kick yourself when you find how effective oxygen therapy can be in making the beast go away very rapidly...

It will change everything for the better and you'll gain a sense of confidence and control over your quality of life when you start using it that you don't appear to have at this point.

Take care,

V/R, Batch

Just about. Still have yet to try the "arterial pH" technique you suggested. For some reason, every time I go by the store I forget to get the necessary ingredients. I may get out later and do so - actually let me write that down now!
But please do keep in mind that in the past O₂ didn't work, at flow rates up to c. 25 LPM - that (and receiving monthly bills from the DME supplier long after I had returned all the equipment). I'll be looking for someone other than the other 2 suppliers. DME suppliers, I have heard, are notorious for insurance (especially Medicare) fraud to line their pockets.

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« Last Edit: Aug 21^st, 2010 at 12:11pm by Neal »

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boski

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Re: Cyberknife radiosurgery?
Reply #132 - Aug 21^st, 2010 at 12:27pm

Neal:

Get the welders O2 No Bill Later, Just a one time bill and Way
high flow rates!!! Worth a try Neal! What are you afraid of?
Dam you seem to be in serious pain like the type that needs
O2. You must have a welders shop close to you. Just my
2¢ because you spoke of a recurring bill. If it doesn't work
return the bottle and your done with them. No more bill!
I hope your pain subsides soon Neal, it drives us all nuts
when the beast comes for a visit.

Peace,
Boski

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Neal

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Re: Cyberknife radiosurgery?
Reply #133 - Aug 21^st, 2010 at 12:27pm

boski wrote on Aug 19^th, 2010 at 9:47am:

Neal,

I guess it really comes down to
you pulled the dam trigger on something daring.

The daring thing would have been to get O₂, a super high-flow regulator, and "O2ptimask", "detox" from the trex & verapamil (why am I even taking verapamil, anyway? Hasn't prevented sh!t! Hmmm ... I may just start tapering off that crap today!) order some spores, grow my own shrooms (or find an "angel" willing to share Cheesy

), and eat a bunch when they were ready. That would've been the daring thing to do, and maybe I would've been back to the good ol' PF days & nights already.

Quote:

I am hear with an ear for you
Neal. Praying for you everyday that you find PF days.

Peace,
Boski

Thanks B!

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Cyberknife radiosurgery? Reply #134 - Aug 21^st, 2010 at 1:41pm You're uncoachable. Potter
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Neal CH.com Junior Offline I Love CH.com! Posts: 94	Re: Cyberknife radiosurgery? Reply #135 - Aug 21^st, 2010 at 2:37pm Potter wrote on Aug 21^st, 2010 at 1:41pm: You're uncoachable. Potter ??? How so? A stubborn fool, perhaps, but not sure I understand the "uncoachable" comment - and I flunked mind reading! Thx!
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Cyberknife radiosurgery? Reply #136 - Aug 21^st, 2010 at 3:45pm Potter wrote on Aug 21^st, 2010 at 1:41pm: You're uncoachable. Potter Or he has chosen to take a path that he feels is best for him, regardless of who tries to bully him in a different direction. Having spoken our opinions, it might be polite to allow him to pursue his route. Joe
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Potter

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Re: Cyberknife radiosurgery?
Reply #137 - Aug 21^st, 2010 at 4:48pm

Guiseppi wrote on Aug 21^st, 2010 at 3:45pm:

Potter wrote on Aug 21^st, 2010 at 1:41pm:

You're uncoachable.

Potter

Or he has chosen to take a path that he feels is best for him, regardless of who tries to bully him in a different direction. Having spoken our opinions, it might be polite to allow him to pursue his route.

Joe

Some times a kick in the butt is worth two kisses on the butt. you keep kissin and I'll keep kickin.

Potter

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boski

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Re: Cyberknife radiosurgery?
Reply #138 - Aug 21^st, 2010 at 5:18pm

Well, He gave it the old college try and dam it takes balls
to go let some geek inside your head. So, have to give
him some credit! Ok, now I would have taken the more
chicken route first, but that's me! Neal, I wouldn't be afraid
of the other routes, if you are. Just some time you have to
say WTF and do it! I will try it once a year to see if it keeps
my visitor on vacation. Wink

Hey, an excuse to take a low
dose. WTF Tried once in High School a long time ago, but
if it may help I'm game. Anything to avoid this MF'er from
knocking on my head is worth a try and from what I
remember, really no side affects after the one big effect.
I'm just tired of the pills, sides and Aborts still feeling pain
so if I have to see some strange shapes or think I saw God
oh well I'll report in about 12 - 18 months on the ride!

Neal, Good luck, keep reports coming! And if someone
bothers you too much I think there is a small button
called ignore!

Have a good weekend,
Boski Wink

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Cyberknife radiosurgery? Reply #139 - Aug 21^st, 2010 at 6:15pm Quote: ...the one big effect. You haven't been doing your homework. You don't have to take that much of it.
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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Cyberknife radiosurgery? Reply #140 - Aug 21^st, 2010 at 6:51pm Well it depends, they say. Boski
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Guiseppi

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Re: Cyberknife radiosurgery?
Reply #141 - Aug 21^st, 2010 at 7:28pm

Potter wrote on Aug 21^st, 2010 at 4:48pm:

Guiseppi wrote on Aug 21^st, 2010 at 3:45pm:

Potter wrote on Aug 21^st, 2010 at 1:41pm:

You're uncoachable.

Potter

Or he has chosen to take a path that he feels is best for him, regardless of who tries to bully him in a different direction. Having spoken our opinions, it might be polite to allow him to pursue his route.

Joe

Some times a kick in the butt is worth two kisses on the butt. you keep kissin and I'll keep kickin.

Potter

Yeah.....I'll keep postitively encouraging people with CH......you keep going your route.

Joe

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"Somebody had to say it" is usually a piss poor excuse to be mean.

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Cyberknife radiosurgery? Reply #142 - Aug 21^st, 2010 at 7:32pm Neal try the oxygen at a higher flow rate, then keep on huffin. Give it a whack. Potter
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Neal

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Re: Cyberknife radiosurgery?
Reply #143 - Aug 21^st, 2010 at 8:12pm

Potter wrote on Aug 21^st, 2010 at 7:32pm:

Neal try the oxygen at a higher flow rate, then keep on huffin. Give it a whack.

Potter

At the rate I'm going I probably will. I've just compiled a list of local welding supply places, and I expect I'll be giving them a call to see what I can get. I'm about to order one of those O2ptiMask things from Lifegas - the CH store is out of the size that is apparently more for "men". Well let me go place the order!
Now watch the CKRS procedure make the CH go away after I get all that stuff!

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Cyberknife radiosurgery? Reply #144 - Aug 21^st, 2010 at 8:21pm Neal, it's like driving your car to the mechanic. As soon as he gets in the car, rest assured, the noise will stop! Joe
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Neal

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Re: Cyberknife radiosurgery?
Reply #145 - Aug 21^st, 2010 at 8:22pm

Guiseppi wrote on Aug 21^st, 2010 at 7:28pm:

Potter wrote on Aug 21^st, 2010 at 4:48pm:

Guiseppi wrote on Aug 21^st, 2010 at 3:45pm:

Potter wrote on Aug 21^st, 2010 at 1:41pm:

You're uncoachable.

Potter

Or he has chosen to take a path that he feels is best for him, regardless of who tries to bully him in a different direction. Having spoken our opinions, it might be polite to allow him to pursue his route.

Joe

Some times a kick in the butt is worth two kisses on the butt. you keep kissin and I'll keep kickin.

Potter

Yeah.....I'll keep postitively encouraging people with CH......you keep going your route.

Joe

   "Gentlemen, you can't fight in here this is the War Room!" one of my favorite quotes from Dr. Strangelove.
   But thanks for coming to my defense Joe!
   And generally speaking, positive attracts positive, negative attracts negative (unlike in physics and chemistry). Something Koichi Tohei once said about "ki".

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« Last Edit: Aug 21^st, 2010 at 8:26pm by Neal »

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Cyberknife radiosurgery? Reply #146 - Aug 21^st, 2010 at 8:47pm I wouldn't ever fight with Joe because with me it's never personal. I want nothing more than pfdan for sufferers in the least invasive way. Potter
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Cyberknife radiosurgery? Reply #147 - Aug 21^st, 2010 at 9:09pm Quote: Now watch the CKRS procedure make the CH go away after I get all that stuff! Then you can give it away and satisfy that altruistic need you have.
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Neal CH.com Junior Offline I Love CH.com! Posts: 94	Re: Cyberknife radiosurgery? Reply #148 - Aug 23^rd, 2010 at 9:43pm CKRS Report Part III - Postoperative Day 18 Had one in the morning, as usual, but it was mild enough not to wake me up. When I did wake up, my face and eye socket were sore, but it was not so bad. About 10:00 pm, I had another one, about a 6-6.5. Used some trex on that one. Better than some of the others lately.
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Neal CH.com Junior Offline I Love CH.com! Posts: 94	Re: Cyberknife radiosurgery? Reply #149 - Aug 23^rd, 2010 at 9:47pm CKRS Report Part III - Postoperative Day 19 Had another early morning visit, not bad to enough ton wake me up but when I did wake up I knew I had one - sore face and eye socket, etc. Other than that, just some reasonably major shadows (around K3.5-4) much of the day, but no trex needed!
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