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Neal

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Re: Cyberknife radiosurgery?
Reply #150 - Aug 23^rd, 2010 at 10:04pm

CKRS Report Part III - Postoperative Day 20

   Woke up with a sore face, letting me know I had had one, but not enough to wake me up yet again!
   Have had a major shadow since about 4:00 pm today, I'd say around a K3.75, not quite a K4, but livable. I would say I think I'm getting better but we know how that goes - "speak of the Devil & in he walks."
   Also saw the neurosurgeon today. I told him that things had started to improve over the past 2-3 days, he said that was "about on course," and wants to see me again in 4 weeks. He also said that if I don't see enough improvement such that I'm down a "normal headache level," that they could do the thing one more time. He also tested the sensation in my face and was pleased - no problem with the blink reflex, could feel tissue paper on my face, etc. He said that was the goal of using the CyberKnife, that they could reduce the pain to manageable levels without much, if any, loss of facial sensation. This technique is "very precise" he says, and they only targeted the area that causes the pain. Of course, he did say that if they do it again, there may be some loss of facial sensation.
   PS - I started using Batch's lemonade and Citracal Plus arterial pH adjustment method Saturday afternoon, so that may be part of why I'm having some better days. So, Batch, thanks very much for the info, it is greatly appreciated!

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boski

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Re: Cyberknife radiosurgery?
Reply #151 - Aug 23^rd, 2010 at 10:16pm

Neal:

Keep, a good out look!

Ouch, I hope the second time is on the Doc!

Sounds good, Yeah I love the way they say, "Looks good, going as planned" What's he going to say Neal. Oops! I think I F'ed up! I have to go in again, that's going to be another $10,000! Heck no, never hear that out of his mouth.

But I'm glad things are on course with things normal on sensation and less pain.

Peace,
Boski Wink

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Neal CH.com Junior Offline I Love CH.com! Posts: 94	Re: Cyberknife radiosurgery? Reply #152 - Aug 24^th, 2010 at 9:09am CKRS Report Part III - Update for Postoperative Day 20 Damn! Around 11:15 pm had about a K7, 'trexed the bugger.
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Neal

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Re: Cyberknife radiosurgery?
Reply #153 - Aug 24^th, 2010 at 9:18am

boski wrote on Aug 23^rd, 2010 at 10:16pm:

Neal:

Keep, a good out look!

Doing my best, Bos.

Quote:

Ouch, I hope the second time is on the Doc!

Somehow I doubt it! They gotta pay for their Porsche's & such!

Quote:

Sounds good, Yeah I love the way they say, "Looks good, going as planned" What's he going to say Neal. Oops! I think I F'ed up! I have to go in again, that's going to be another $10,000! Heck no, never hear that out of his mouth.

Ain't that the truth!

Quote:

But I'm glad things are on course with things normal on sensation and less pain.

I just wish it hurry up & work already! And I'd rather not do it again, but I'm in it for the long haul. "In for a penny, in for a pound."

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Lettucehead

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Re: Cyberknife radiosurgery?
Reply #154 - Aug 24^th, 2010 at 2:22pm

Neal wrote on Aug 24^th, 2010 at 9:18am:

boski wrote on Aug 23^rd, 2010 at 10:16pm:

Neal:

Keep, a good out look!

Doing my best, Bos.

Quote:

Ouch, I hope the second time is on the Doc!

Somehow I doubt it! They gotta pay for their Porsche's & such!

Quote:

Sounds good, Yeah I love the way they say, "Looks good, going as planned" What's he going to say Neal. Oops! I think I F'ed up! I have to go in again, that's going to be another $10,000! Heck no, never hear that out of his mouth.

Ain't that the truth!

Quote:

But I'm glad things are on course with things normal on sensation and less pain.

I just wish it hurry up & work already! And I'd rather not do it again, but I'm in it for the long haul. "In for a penny, in for a pound."

God Bless, Neal!!!
Thinking pain free thoughts at you!

And, wouldn't it be so wonderful if medicine was just science and so much less art?

Please hang in there, Neal!!!!

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Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH

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Neal

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Re: Cyberknife radiosurgery?
Reply #155 - Aug 31^st, 2010 at 1:20am

CKRS Report Part III - Postoperative Days 21-26

Sorry for the long delay in any updates. Just been super-busy at work and needed some "down-time" after getting home anywhere from around 8:00 to 9:00 pm most of the past week.
Anyway, I don't have the exact dates and times, but over these days listed I have had maybe 4 or 5 "bad" CH's (anywhere from a K6 to a K8), two or three were at work and two were at home late in the evening (between 9 and 11 pm). Was still having my early morning visit each day until maybe this past Friday or Saturday, but I actually slept through them. Some shadows through the days but getting better. Yesterday and today have been quite good with only minor shadows, nothing greater than about a K2. I think the CKRS procedure is starting to work as planned!

      I attended my first martial arts class in several months tonight, no cluster! I'm going to be sore as heck tomorrow, but it's a good kind of sore, unlike CH! Well, it's way past my bedtime, and I have an early morning meeting tomorrow.
   I'll try to be better about the daily reporting from now on.
   Thanks all for your support!

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Cyberknife radiosurgery? Reply #156 - Aug 31^st, 2010 at 7:55am praying the positives keep piling up Neal....so nice when you can pick back up where you left off on your life!! Joe
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Neal

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Re: Cyberknife radiosurgery?
Reply #157 - Sep 1^st, 2010 at 12:55am

CKRS Report Days 27 & 28

Well things seem to have certainly improved significantly. Nothing but minor shadows around a K1-2 these past 2 days. I'm actually starting to feel human again! Not quite ready to do a victory dance just yet - I'm all too familiar with how The Beast operates, but still, this is the best I've felt in a looong time!
Sore as heck from jujutsu last night, but I'll take that over full-blown clusters any day! Aikido class tomorrow night! Hallelujah! It's good to get back to what I love doing!

And again, thanks to everybody for the support, prayers, and PF vibes! God bless you all! Roll Eyes

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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Cyberknife radiosurgery? Reply #158 - Sep 1^st, 2010 at 12:23pm Heal, Neal, Heal! I hope your on your way to recovery! Peace, Boski
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boski CH.com Alumnus Offline CH'S Suck for all that Suffer / The Pain The Pain Posts: 208 NYC Gender:	Re: Cyberknife radiosurgery? Reply #159 - Sep 21^st, 2010 at 2:39pm Hey Neal: Everything OK? Just checking in on you. Boski
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Hang Glider Guy CH.com Newbie Offline I Love CH.com! Posts: 1	Re: Cyberknife radiosurgery? Reply #160 - Dec 12^th, 2011 at 11:39pm Neal,
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