Batch wrote on Aug 7^th, 2010 at 1:20pm:

Yeah.  What Batch said. 

         Potter

Lizzie2 wrote on Aug 7^th, 2010 at 3:21pm:


       That's a very good point. Maybe all the radiation fried my logic center! But seriously though, I don't want to go through all the mess with getting another O2 prescription, getting a regulator with a high enough O2 flow, the DME people's nefarious billing practices, etc. But in the end I may go back to that, if all he rads didn't "cut it" 

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       Me too!

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   Thanks for being here. 

CKRS Report Part III - Post-Operative Day 5 - Report #1

       Well so far today, I have had 2 bouts with The Beast. One was around 2:00 am CST. The other one was the same old stubborn 4:30-5:00 am visit.
        Otherwise, shadows off and on all day so far.
         Still can't tell any loss in sensation.
       I start back to work tomorrow, so any reports during the week will be either early am or later pm. Not looking forward to seeing my email inbox or the stack of crap on my desk! I guess it's job security, though!
        This cycle started with one hit per day, then two, then four, now back to two it seems. Waiting for ZERO, and an end to months and months of this crap!!
       PFDAN to all!

Thinking of you, Neal!
Keep us informed!

George wrote on Aug 8^th, 2010 at 9:44pm:


     Thanks George! Continuing reports are not a problem, and it's my intention to keep making them until we know if this procedure was successful or not. Nobody cares more about  clusterheads and finding things that work than clusterheads!   
      That said, if six weeks go by and they haven't stopped, I will assume that the procedure was a failure, make a post to that effect, and stop posting reports. After all, the neurosurgeon and the neurologist both said that it would probably take 2 to 4 weeks, and maybe as many as 6, for this procedure to be effective.
      "The wai-ai-ting is the hard-est part." - Tom Petty 
      

Hnag in there neal.

Joe

CKRS Report Part III - Post-operative Day 7- Report # 1

       Well, I had the usual 4:30-5:00 am visit today. Other than that, shadows off and on, until after some dental work (see below).
        Still no noticeable change in facial sensation.
       Like I said in yesterday's post, I went to the dentist today regarding some extreme tooth pain. Had to get a root canal. One thing I learned from that is that next to CH, root canals are the second worst form of pain. At least for me so far in this life. Tooth was infected, when they "breached" the infected part, a stinky & foul-tasting pus issued forth. Ugh!
        After the root canal, I came home and made the monumental error of taking a nap. I thought I was just going to be lying down for a little while, but that was not to be the case. Woke up about 10:00 pm CST with what I believe was a "bonus" CH. I really should've known better! Oh well.

-johnny- wrote on Aug 11^th, 2010 at 1:30am:


          No problem. I'd be happy to answer any questions anyone may have, if there's something that I did not cover in any of my reports. If anyone would rather ask me privately, feel free to PM me.
         So far, I've only had the procedure, and it has yet to be effective. But the docs did say it would be at least a couple of weeks, and maybe up to 6 weeks, before we know if it really worked. I hope it works, and I hope it's within the 2 weeks, rather than having to wait for 6 weeks! If six weeks go by and still no relief, though, I will assume the procedure was a failure and stop posting, and consider other options. The six full post-op weeks will be up on September 14th.
         But as you are already aware, I'm sure, I've been posting daily post-op reports. Part I was about the preliminary things to get ready for the procedure, Part II was about the procedure itself, and Part III are daily reports as to my observations, any clusters along the way, etc., including the occasional bitching & moaning about things in general.
       But as much help and support this site and its wonderful members have been to me over the years, I figure I may as well "give back to the community". I was a "lurker" here for many years before joining and becoming a member. But without this site and the supportive atmosphere, I very well may have "checked out" by now!
       But again, if anyone has any questions, either post them here on this thread or PM me and I will answer when I can. My posts will usually be either in the early morning or in the evening after work (usually after work).
       Well, back to bed, gotta go to work tomorrow! PFDAN to all! Clusters suck!

Brew wrote on Aug 11^th, 2010 at 7:09am:


       Yep. At least for this particular root canal. Lots of local anesthetic. 2 or 3 novocain injections to start with, another 1 or 2 about halfway through, and then another one near the end. The dentist said it was so infected that if I had waited another day or two, he probably couldn't have deadened it at all! Yikes! I'd never heard of such a thing, but after yesterday I believe him! Almost the whole right side of my face was numb, but the tooth - well, not so much! There were several moments during the procedure when I about came completely out of the dental chair during the procedure, especially when he really got way up in there! I had visions of the movie Marathon Man - it wouldn't have surprised me if the dentist had asked repeatedly, "Is it safe?" I've only had a root canal once before, and it was nothing as painful as this one.
      But so far, yes, that is the second worst pain I've felt in my 40-something years, second only to CH! The moral of my dental adventure is - if your tooth hurts, don't wait until it's unbearable, go immediately to the dentist; otherwise it may get so infected that Novocain isn't as effective as it should be (or at all)!
      Will post the usual CKRS report after I get home from work. Sorry for going so off-topic!

Brew,

A toth with a live infection cnnot be deadened to any extent.  Been there, and I agree with Neal on the pain level.  Much worse than a broken bone or anything else I've suffered.

Jerry

I've had three Bill,  of which two were virtually painless because the Dr had time to put in a temporary filling with anti biotic in it to kill the infection first.  The first one I had was while in college and I had to have it done over Christmas vacation, so it had o be done while the nerves were hot.  He used 9 shots of Novocaine (three doses) and then went on with the procedure.  He held myhead in the crook of his arm to hold me still enough to work on it.  He said he would never do another while the infection was still there, and I told him he didn't have to worry.  He would never do another on me.  He didn't!

Jerry

CKRS Report Part III - Post-operative Day 8 - Report #1

       Once again, had my c. 4:30-5:00 am hit.
        Shadows on & off throughout the day. For the most part, the shadows do seem a little bit less painful. However, I did have one that felt like an attack was about to start, but before I could get my Imitrex injector kit out & ready, it had passed. That was my shortest shadow yet. Less than ten minutes. But like I said, it felt like The Beast was about to pay me a rather unpleasant visit (increasing pain, red eye, "Horner's syndrome", etc) and then it just vanished. Strange.
       I still cannot tell any difference in facial sensation.
       Well, I guess that's all for now. It's just about time for bed -I have an early-morning meeting at work tomorrow and need to get some sleep.