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Peter B CH.com Junior Offline I Love CH.com! Posts: 70 Boston, MA Gender:	Who are the most experienced CH docs in the States Jul 18^th, 2010 at 7:38pm I know of Dr Goadsby and the team in the UK - but who are the experts in the States? I am looking in particular in the East Coast (preferably Boston) area. Any suggestions? thanks, -peter-
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boski

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Re: Who are the most experienced CH docs in the States
Reply #1 - Jul 18^th, 2010 at 8:03pm

I know not Boston, but close and good.

Not a bad trip and they specialize in Cluster & other head pain.

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If no luck in Boston! Close to my Apt. I'll buy you a Coffee.

Peace , Hope you find solution soon!
Verap.
Topomax
Imitrex leavin trax
O2 now Cheesy

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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Who are the most experienced CH docs in the States Reply #2 - Jul 18^th, 2010 at 8:09pm It's a bit more of a travel but Dr. Todd Rozen is in Pa. and right now his waiting list is pretty long a few months, I am currently on it. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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Bob Johnson

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Re: Who are the most experienced CH docs in the States
Reply #3 - Jul 18^th, 2010 at 8:22pm

LOCATING HEADACHE SPECIALIST

1. Search the OUCH site (button on left) for a list of recommended M.D.s.

2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.

3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.

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; On-line screen to find a physician.

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Look for "Physician Finder" search box. They will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder") which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.

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NEW certification program for "Headache Medicine" by the United Council for Neurologic Subspecialties, an independent, non-profit, professional medical organization.
Since this is a new program, the initial listing is limited and so it should be checked each time you have an interest in locating a headache doctor.

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Bob Johnson

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Re: Who are the most experienced CH docs in the States
Reply #4 - Jul 18^th, 2010 at 9:47pm

A large hospital chain located around here had a separate extension called Chronic Headache and Migraine Institute located nearby. It didn't require any referral so I just went and after some pre-paperwork and a doctor assessment, walked away with scripts for verap, oxygen, and some trex. I'm sure Boston has similar, which might be found by what Bob posted.

No opinion about having the most experience, but the doc knew clusters.

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seaworthy CH.com Hall of Famer Offline Posts: 706	Re: Who are the most experienced CH docs in the States Reply #5 - Jul 18^th, 2010 at 10:09pm Department of Neurology at Mass General.
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Dennis CH.com Junior Offline Posts: 25 People's Republic of Mass. Gender:	Re: Who are the most experienced CH docs in the States Reply #6 - Jul 19^th, 2010 at 3:15pm Dr. Markley at New England Regional Headache Center in beautiful Worcester. I've been a patient for 8-9 years. He knows his clusters. Good luck, Dennis
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donna mae

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Re: Who are the most experienced CH docs in the States
Reply #7 - Jul 20^th, 2010 at 6:57am

Hi,

I am waiting to see a head ache specialist / neurologist, Dr Paul Rizolli, Director at the John R. Graham Headache Center in Jamaica Plain, just outside of Boston. He was highly recommended. He is associated with Brigham & Woman's Hospital and Faulkner Hospital. You shouldn't have any problem finding him. Waiting list is also a few months.

Good Luck! Wink

Donna Mae

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Re: Who are the most experienced CH docs in the States
Reply #8 - Jul 20^th, 2010 at 9:34pm

We found Dr. Rizzoli @ Faulkner June 09. John R. Graham Headache Center specializes in Headaches and it was a blessing to get an appointment for my husband. They have changed our life. There is a no nonsense approach, no dancing around what "might" be wrong, great facility, they get down to the business of helping the patient and "are in it for the long hall." Highly recommend Dr. Rizzoli. Best to all and PFDAN.
diane

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: Who are the most experienced CH docs in the States Reply #9 - Jul 21^st, 2010 at 7:52am Quote: I know of Dr Goadsby and the team in the UK - but who are the experts in the States? Dr. Goadsby is in the States but in San Francisco.
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Peter B CH.com Junior Offline I Love CH.com! Posts: 70 Boston, MA Gender:	Re: Who are the most experienced CH docs in the States Reply #10 - Jul 29^th, 2010 at 2:16pm Got a tip to see Dr Markley at the New England Regional Headache Center - best doc I have seen so far for CH. My god, how refreshing to speak with someone who 'gets it'. Thanks for the tip, Dennis.
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Dennis CH.com Junior Offline Posts: 25 People's Republic of Mass. Gender:	Re: Who are the most experienced CH docs in the States Reply #11 - Aug 7^th, 2010 at 12:20am You're welcome, Peter. I'm glad you saw him. He certainly does get it, doesn't he? Let me know next time you're coming over. I live in Holden, next town over from Worcester. Hope you go pain-free soon. Dennis
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