POPO8 wrote on Aug 5^th, 2010 at 10:42pm:
Dude, check out that one I sent you on your PM the other day.  He is in Allentown and a good neuro and is worth the drive.  He is quite knowledgeable with cluster headaches.  He is colleagues with Dr. Rosen who is a highly respected neuro in Eastern PA.  It's worth it to see if  your Keystone Ins. accepts  him.

Keeping you in our prayers, hope this oe works out for you! Be safe out there.

Joe

A complete nights sleep is of worthy of celebration in high cycle!

Joe

I keep updating this thread and realize, that even as the updates and the days roll on... I KNOW NOTHING more, and have NOTHING more to help me... no o2, no answers, no nothing.....

Oh well.  MRI in 3 hours...... Yippie, I hate tight spaces....

POPO8 wrote on Aug 11^th, 2010 at 5:37am:


An MRI isn't likely to add any answers for CH.  You always got us.  There's an unused reg of either size around here somewhere to start a little garage project creation using an additional tank scoring personal mobility.  Other apparatus needed may require simply inquiring or just asking.  Helping you to be less Ch worrisome is needed when otherwise appearing ready and able-minded for the patrol road.

For my MRI I had some headphones through which they played a local radio station. The sound quality was that bad that I spent half the time working out why (they "pipe" the sound down tubes as they can't use metallic, i.e. real, headphones and there is a bit of background noise).

The rest of the time I spent trying to remember the physics of how it all worked which had been covered in the medical physics course I did about 20 years ago as part of my degree course.

By the time I'd worked all that out, it was done. It wasn't too bad at all.

From the course we also covered x-rays, CT scan and ultrasonic scans along with the MRI scan, all of which were used on me to try to work out what the cause of my headaches was.

What did impress me was that I'd got the results in under 30 minutes too, all of which showed that my brain was perfectly "normal". I asked if I could see the scans and was able to get the images on a CD. I've since used this to prove to people that I really do have a brain. It also acted as a pretty good sick note when shown to people who are a bit squeamish about seeing brains.

Kevin_M wrote on Aug 11^th, 2010 at 6:29am:


I know, and I have honestly reached the conclusion that the MRI is simply to say.... YOU DONT HAVE THIS, and YOU DONT HAVE THAT...... its just that time keeps on tickin,tickin,ticken......   lol, you know.

OK LATEST UPDATE!!!!!!!!


Not to happy, but getting somewhere, I think....

My uncle/doctor just called me and he already got the results... He said there is nothing showing that is gonna kill me or to even be concerned with......

He still is holding off on sending me to a neurologist, however is calling in a prescription for an IMITREX inhaler (?????) to use at the first sign of attack.  He wants me to try it for a few day...

He is convinced that what I am dealing with are MIGRAINES and not CH (shich is driving me NUTZ) so between the IMITREX and the BP meds he had given me, he feels that it should be under control....

I guess its a little progress, and he hates the idea of the o2..... HATES IT.  Especially when I told him, if I dont get med o2, i will reg my own with WELDING 02.....

COMMENTS?????

He had bad things to say about the welding o2... even though, SOME of the research I found stated it was the same quality.....

He said, "you will blow up your head."   I think that was his way of joking about this to lighten the mood cause I was getting pissed.


Fingeres crossed on teh IMITREX,  I am just HATING  the fact that he is shutting down the idea of CH....  oh yeah, because the one syptom I didnt describe is that the eye on the affected side tears......

Well between sufferers... IDK if it tears because I am usually crying out of both eyes begging for the pain to stop.... (dont tell anyone, I got an image to uphold) l0l

Well, Im stuck on the fence between FAMILY mixed with being my DOCTOR, mixed with me being a COP and not wanting to do anything ILLEGAL.... not that o2 is illegal... however with out a script for it... my concern is Im not using it for proper use..... and just like people who huff nitrous, etc..... I cant be breaking the law....  I love my job, and have many years left in me, and I dont want to lose it over PAIN.... Dont get me wrong it is the most horrible pain ever.... but not life threatning......

Thank you for taking the time to read all of this.  Im soooo happy to see people care enough to follwo it.  Honestly I was looking at the views count for my thread and couldnt believe it was 1200+.... YOU PEOPLE ROCK!!!!

Kate in Oz wrote on Aug 12^th, 2010 at 12:10am:



Im feeling that frustration EVERYDAY!!!!  ty

POPO8 wrote on Aug 11^th, 2010 at 7:27pm:


Oh yeah.  Ha ha.  I smelled his resistance to oxygen page one, and pretty much why mentioning the welding tank, but with also a neuro referral thwarted would seem to be a CH blind alley.   

The trex nasal sprays should work, good for use anywhere, too.  Next question though is quantity.  A migraine diagnosis might scribe six a month.  That's how I started with my doc, until less than 48 hours later I told him I was out, then came the neuro referral.  Things could work out in a roundabout way.



Quote:


True Jezep, but now if the nasal spray works, the doc may think it's migraines, unfortunately. 




Quote:


POP, I can imagine having a script for oxygen might be more upfront.  That's hard to answer. 

Inquire if they have a "don't ask, don't tell" policy.      

You guys are right, and Im concerned that success witht eh IMETREX will make the doc content with simply brushing this off to MIGRAINs...

I had my father... (lol I feel like a kid) give my uncle some shyt about the passing on the neurologist (you know older brothers can be persuasive) and he convinced him for the refferal.   My g/f will be calling JEFFERSON tomorow to see if they accept my med insurance and to see if any docs specialize or are more apt to know CH......  BALLS ROLLING AGAIN...

As for the o2 therapy, I dont know if it would be illegal or not.  Obviously the script makes it all good for sure......   I may have written this before, however at the performance shop I work at on the side, we sell nitrous oxide for vehicles... however, there are people that buy it to HUFF.   So the purchase is legal, its the intended use that makes it illegal.. and that is where I concern myself with the similarities.... just not sure if my intent is for something other than the intended purpose, if I would or could get in trouble....