I have just discovered this site - whilst I am not pleased to see others suffering as I am, it is nice to know I am not alone and not going insane.  I am currently going through the 3rd bout I have had in 5 years - I didn't get cluster headaches until I hit 40 years old.   (In addition to prescribed drugs which seem to have less and less effect) I have been using ice blocks (solid plastic packs) this time around; one on the back of my neck and the other on/around my right temple - sometimes rubbed so hard/vigorously on my head that it feels that I am rubbing my scalp off - if I could work out how to insert it into my skull I would!  However, whilst it is not complete relief it does act as a distraction for a time.  I find that the more I freeze my brain the better - although at times I am not sure if this doesn't sometimes add as much pain as the headache itself.  I sometimes find that I have been freezing my head longer than was perhaps necessary, but daren't stop because the distraction does at least do something for me.  My worst problem is when the headache reaches my upper jaw on the right hand side, I can't seem to get any relief for that and feel like prizing my teeth out to help.  Has anyone got any suggestions on what I can do for my teeth (bearing in mind both hands are occupied with ice packs - eating ice doesn't seem to help at all.  I have been sitting up waiting for tonights bout, which thankfully hasn't happened yet and am finding that I am getting fearful of falling asleep as it mostly kicks in when sleeping.  Does anyone else get a feeling of elation (well at least enormous relief that it feel like elation/great happiness) when it is all over?

LutonEd wrote on Jul 25^th, 2010 at 8:47pm:


I had the same experience and had two teeth pulled thinking they were the problem. This was before I had even heard of CHs. I've since been enlightened, and have successfully been treating the condition with alternative meds.
To make a long story short, go to clusterbusters.com, the sister site, and do a lot of reading.

Try taking melatonin before going to sleep. It prevents night hits for me (most of the time).

Have you tried O2??? That's the magic bullet for MOST of us here.

For me - tooth pain always has gone with the CH - with or without ice. BUT my dentist tells me that nothing is wrong with my teeth. I get EAR cramps also, but my ears are fine according to the doc... go figure... The beast just hits where it wants to...

Get your arsnel ready for the devil when he shows up and kick his rear. Let us know how you're doing...

Hugs BD

Redd wrote on Jul 26^th, 2010 at 11:34am:

i,ve heard so many stories similar to that. i dont think its stupid. just desperate. and back years ago it would seem logical