Quote:

I think you're full of it. But since you're just aching for someone to ask you, why don't you enlighten us?

Brew wrote on Aug 15^th, 2010 at 11:19pm:


While I'll agree that your state of mind will undoubtably help you to cope with CH and although it won't lessen the pain, I believe that you can manipulate your mind in such a way that your perception of the pain is less, ........IMHO, the only way the mind will "CURE" CH is if the brain behind that mind dies and the sufferer along with it......

....Hell, I been sittin here 3 minutes tryin to decide if I was gonna post this.....theres just something terribly not right about having "cure" and "ch"  in the same sentence let alone right next to each other!!!

DD

I certainly think that your state of mind can help to cope with these.  It won't make them go away, though. 

Nothing psychosomatic about them.  They're as physical as a broken leg.

Best,

George

I've only been kicking the footy around with the demon for about 12 years so I'm no expert.

Old school mate & long time friend started at age 19;now 58 but hasn't had a cycle in 8 years, does he think he's cured, not bloody likely he has still got his o2 on hand just in case.

Cheers
Barry

I should apologize. I'm sorry. I don't really think you're full of it.

But on another thread, you've stated that you had your first CH yesterday. You haven't been diagnosed, you had a one-off yesterday, and now you state that you think this whole affliction can be cured by thinking about it really, really hard.

I remember the exuberance of youth and thinking that everybody over the age of 30 was completely f'd in the head. I was your age once, too. So please accept my apologies for forgetting for a short time what the youth perspective on the world is. I know now that you truly do believe that this thing can be cured by thinking about it.

I've spent more time thinking about it than you've been present on God's green earth, and I haven't cured it yet, but maybe someday I will.

Hi CH'er, I like your style.  Don't let these old f-er's get you down.  I agree with them, but it doesn't matter.  All that matters is how you are going to deal with your life.  On another thread I encouraged you to seek some medical attention being that you have new pains that you have never had before.  So go check it out.

Positive mental attitude, breathing, meditating etc, all have their place in any disease or condition.  So yes, a powerful heart and brain will help no matter what you have.  Most of us think this is a physical defect/condition without a cure.  You haven't been through it yet and may not even have ch so who really knows what you will end up dealing with.

If you have the clusters then you will have a lot of choices about how you manage them.  Some people just take it.  Some people medicate.  Some people do other stuff. 

In the end just know that people here really care about you.  Gruff sometimes, don't let that scare you away because we do really care.   Let us know what you find out.

--Shaggy

You can not overcome clusterheadches by willpower. It is important that you contiue to find out what works for you. This site gives some great clues on what might help you and what is more likely to waste your time. I had them every single day, 4 attacks per day, for 15 months. What seems to help, O2, water, coffee, energy drinks, Ibuprofin, imitrex, verapamil, cortisone, melatonin,  etc. Things that seen not to work are topamax, tylenol, painkillers, Chiropractic, acupunture, biofeedback. I tried all of the above (except painkillers) and many many more. Keep trying, don't give up.

You do not lack willpower. It is trggered by your hypothalmus. It regulates important funtions that keep you alive. You can not overcome its funtions by willpower.

Posts like these and the responses to them are the reason I love this F-ing place and the f-ing people on it!!!

Actually it's been discussed a couple of times, how the less you "fight against it" the less intense the pain is perceived. More impotantly for me, the less I fight against it, the less secondary damage I seem to do to my shoulders, neck and head! I'm one who strongly agrees a postitive attitude is critical in dealing with CH!

Joe

painfulnoodle wrote on Aug 21^st, 2010 at 1:45pm:

Each person is different even if they suffer the same disease.  No one can really tell you if you will stop suffering/go into a remission.

My father started having CH as a child, he is now 77 and still suffering, only now we suffer together.

Well ... I have to admit, I haven't been as active here as some that are much more dedicated. It's sort of like the leaky roof ... when it's raining you can't fix it and when its not, you don't need to! However, I can see that is a selfish approach and will try to stay more active here. Thanks to all of you who do!

Red

My story is very much like Bob's. Today I am 61 and my last cycle was in 2000. So I am at the 10 years mark. Dr. Goadsby tells me that I am just in a long remission. I hope he is wrong. We will see,