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They're ba-ack! (Read 484 times)
Jay F
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They're ba-ack!
Aug 20th, 2010 at 12:34am
 
So, I started a new job 2 months ago
...and of course,
I forget all about the devil
, since my last one had been waaaay back in September.  And I'm sitting in an important series of back to back meetings, and suddenly I feel an old friend tugging at my brain.  What a nightmare... 
Having the attack was bad enough...full blown wanna rip your eye out with a bullet, brain burning, eyelid red and swollen.  But then, I had to "come out".  Since I feel like a freak anyway with this thing...my friends finally sort of get it since in the past I've had to leave dinner parties, bars, movie night...I felt humiliated and ashamed.  Plus, fearful of losing this job.  I just turned 60 (look 45 thank you very much! LOL) and there aren't many more opportunities to restart a career, especially in this economy, now here in South Florida.
After 10 years of hell...two to three months at a time, sometimes twice a year, after 10 months free,  I'm now in a once or twice a day cycle.  How do you tell a new boss that, "sorry, I'll likely be incapacitated for an hour or so, perhaps twice a day, but don't worry, it won't affect my productivity."  It was easier coming out as gay...that was nothing...than talking about this monster. 
You know they think you're a sissy, or crazy, "yeah, my sister used to get migraines when she was younger.  She used to go into a dark room and take Vanquish."  They can't understand.
And now, I've also discovered the second worst place to have an attack...sitting on the beach in the hot Florida sunshine: the noise of the surf, the heat, the sun, children screaming, warm ocean water no relief...trapped because you can't drive, no shade, no ice pack, no cool towel to wrap your head in...NO IMITREX (well, I've since learned that it goes aong my beach towel, because it's happened twice now.  If I do a nasal spray in the first two minutes, I can almost fully abort.  If I miss the window, I've wasted my ten bucks and reduced my arsenal while I wait for insurance to decide to grant me more...like it's a gift.)

I know I'm rambling, because I can think clearly now and just need to talk.  Just saw a whole bunch of YouTube videos of attacks... I cried.  My partner had to turn away, because it was like watching me on screen.  Scary to see yourself in someone else, the same head banging, the grunting and moaning, gasping for air, leg shaking, the same towel/icepack.  I was transfixed.

Sorry to go on, I'll go now...I'll probably be here more often now that I'm in cycle.  Hope you're all doing fine...and thank you for being here.

Jay
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Guiseppi
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San Diego to Florida 05-16-2011


Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male
Re: They're ba-ack!
Reply #1 - Aug 20th, 2010 at 8:33am
 
Time to re think how you view the beast, you're rocking back on your heels and waiting to get slammed, time to get offensive!

Have you tried oxygen? I recently retired after 30 years in law enforcement, ALWAYS had an E-Tank in the trunk while on cycle. I'd feel the familiar ear pressure and "scalp tug". Pull over, whip that tank into the front seat with me, 6-10 minutes later I'm pain free and on top of the world again. Took some friendly "old man" kidding when my team would see me loading the E-tank with my gear, sure saved me a lot of hurting. Read the oxygen info link on the left, and ask any questions you still have. A cheap, effective life saver for many of us.

Do you have an effective preventative? A med you take daily to reduce number and intensity of your hits? I use lithium at 1200 mg a day, will block 60-70% of my attacks. Verapamil, at fairly high doses, is the usual first round try, Topomax also has a loyal following. Some have found combining the Lithium and the Verapamil worked when either, by itself, did not. Takes a little work to find a prevent but well worth the effort.

For now, keep some energy drinks on hand at work. I prefer sugar free Red Bull, but any containing the combo of caffeine and taurine will work. Chug it down FAST at the first hint of an attack. Many can abort or at least reduce an attack this way. I chug one when I start my oxygen routine, seems to make the oxygen a little more effective, and prevents the headache from returning when I turn the 02 off.

Also consider the following supplement regimen. Batch developed it, the goal is to alter your arterial PH to make you less succeptible to attacks.

Zinc, Magnesium, Calcium Citrate and Vitamin D, washed down with fresh lemonade. Batch does it up to 4X a day, I was comfy with 2X  a day, occasionally 3X when I'd hit a high cycle. Really seemed to help with my last cycle which just ended.

Also, check out   clusterbusters.com      alternative treatments having some great success stories.

Joe
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"Somebody had to say it" is usually a piss poor excuse to be mean.
 
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DennisM1045
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Re: They're ba-ack!
Reply #2 - Aug 20th, 2010 at 3:34pm
 
I couldn't agree with what Joe said any more strongly.  I will however put a finer point on O2 in the workplace....

There is no-one here who was more afraid of bringing my green savior into the office.  It took a long time for me to summon the courage.  But it has since become "no big deal".

So long as you continue to kick ass at what they pay you for, no one is going to care.  At least this has been my experience.

Yesterday I was sucking O2 for all I was worth aborting that 10am hit and my boss walked into my cube looking to borrow a book he new I had.  Without every breaking my rythm, I reached up on the shelf, retrieved the book and he was off. 

At first I was thinking: what a calous bastard.  Can't he see I'm in pain?  But the more I thought about it the more I realized that my aborting attacks has just become background noise in the office.

I think I like it that way.

-Dennis-
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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.
dennism1045 dennism1045 524417261 DennisM1045 DennisM1045  
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