Been a while since I've been around... thought I'd stop in and say "hi" while here. Of course I spent (spend) most of my time in the Meds forum... check in to see if there's anything new for Gary to try.
Otherwise just busy with work (thankfully). Gary makes huge efforts to help when he can. I sure hope he's wrong about what he's been writing about the economy, that's for sure. He hasn't been yet, and just pegged the latest GDP revision, so at least his ego remains intact.

Gary faces the same-old-same-old. These days its 5 - 10 hits a day, 40 minutes to 3+ hours each, though thankfully the long ones don't happen every day. Coupla K7-K8s a day, minimum.
Still having the insane fevers at least a few times a month. Nice those are down from a couple of times a week. Also nice they usually peak at 105-something so we haven't been having to rush to the hospital (much).
He's added some new symptoms. Now the whole eye swells up and it lightly bruises underneath. OH - edited to add - he's also become VERY sensitive to pressure changes. Major trigger now. More fun for everyone.
We joke that he looks like a stroke victim (with the right side of his face always off kilter) that I'm abusing. (No offense meant to anyone suffering from any type of paralysis - we have to find some humor in this somewhere, somehow).
Still 24/day pain. I still laugh when I remember first reading "live between the hits," and keep hoping there will be a day when we get to a place where there IS a "between" the hits. Well - at least a break from the pain.
Neuro wants to hook him up for deep brain stimulation, but we're nowhere near being able to afford it.
Interestingly, one of our contracts is with a company using hydrogen peroxide for - well - I can't tell you, actually. But it led to a LOT of research on hydrogen peroxide. I've ordered 3% food grade H202 to add to distilled water (just 1 3/4 teaspoons added to one gallon of distilled water). Should be here soon. Maybe trying the water X3 with the H202 will help? He definitely has something wrong with his CO2/02 exchange, as physical activity is still a trigger, and even with the on demand 02, oxygen doesn't work (lying flat, sitting straight, hyperventilating... tried it all). Maybe if higher levels of 02 get into his blood stream via a different route... I don't know. Definitely heard of crazier things work for people.
Well, what do you know? As per usual I blather on! LOL, I really just meant to say "hi" and hope you're all... living between the hits.

And all you other supporters are all hanging in there... and that everyone is finding some smiles along the way.


Laurie