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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: Testing?? Reply #25 - Sep 13^th, 2010 at 10:38am Guiseppi wrote on Sep 13^th, 2010 at 10:37am: I was wondering the same thing Thomas...never had it done but had read it would induce an immediate attack in a CH'er... Joe Yeah, that is actually the only test FOR CH. The others just rule out other things.
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Lettucehead

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Re: Testing??
Reply #26 - Sep 13^th, 2010 at 1:35pm

Well, problem with nitroglycerin (particularly sublingual or cutaneous paste/gel) is that, really, the majority of people get headaches when they take it. It's basically just expected that you'll get a headache.

I'm guessing the difference would be the type and/or quality of headache but that would be somewhat subjective and hard to quantify from a medical perspective.

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Listen, and understand. That terminator is out there. It can't be bargained with. It can't be reasoned with. It doesn't feel pity, or remorse, or fear... 'The Terminator' AKA CH

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Testing?? Reply #27 - Sep 13^th, 2010 at 1:54pm Agostino Leyre wrote on Sep 13^th, 2010 at 10:38am: Yeah, that is actually the only test FOR CH. The others just rule out other things. I don't know - Viagra was a pretty solid test for me (another vasodilator). Oy vey! Put that one in the trash for the rest of my life.
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Marc CH.com Old Timer Offline Posts: 429 TX Gender:	Re: Testing?? Reply #28 - Sep 13^th, 2010 at 2:44pm Brew wrote on Sep 13^th, 2010 at 1:54pm: .......I don't know - Viagra was a pretty solid test for me (another vasodilator). So you feel that we should try hard to avoid it? Are you standing up firmly against it? I haven't tried this class of drugs yet, so I wanted get my facts straight. Marc
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Testing?? Reply #29 - Sep 13^th, 2010 at 2:46pm Marc you are not a well man! Interesting question though..as a 50 year old man...this is a class of drugs that will be of interest to me....Brew's experience gives me cause for pause.... Joe
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Re: Testing??
Reply #30 - Sep 13^th, 2010 at 3:40pm

Marc wrote on Sep 13^th, 2010 at 2:44pm:

So you feel that we should try hard to avoid it? Are you standing up firmly against it?

I haven't tried this class of drugs yet, so I wanted get my facts straight.

Marc

Just for that, I would highly recommend you get your hands on some - keep a stiff upper lip and stand erect when you swallow it. Shocked

All joking aside (Mr. Smartypants), I explored this route as an effort to counteract the side effects of verapamil a few years ago. Stunningly bad idea.

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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Potter CH.com Alumnus Offline Team MOOSE DROOL Stinky Stuff on a Hook Prostaff Posts: 3600 Blgs.Mt. Gender:	Re: Testing?? Reply #31 - Sep 13^th, 2010 at 6:14pm Marc wrote on Sep 13^th, 2010 at 5:29pm: But did it last more than 4 hours? I'm bettin there isn't a line at the E.R, Potter
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Testing?? Reply #32 - Sep 13^th, 2010 at 7:04pm Potter wrote on Sep 13^th, 2010 at 6:14pm: Marc wrote on Sep 13^th, 2010 at 5:29pm: But did it last more than 4 hours? I'm bettin there isn't a line at the E.R, Potter Joe
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Re: Testing??
Reply #33 - Sep 13^th, 2010 at 8:33pm

Brew wrote on Sep 13^th, 2010 at 3:40pm:

Marc wrote on Sep 13^th, 2010 at 2:44pm:

So you feel that we should try hard to avoid it? Are you standing up firmly against it?

I haven't tried this class of drugs yet, so I wanted get my facts straight.

Marc

Just for that, I would highly recommend you get your hands on some - keep a stiff upper lip and stand erect when you swallow it. Shocked

All joking aside (Mr. Smartypants), I explored this route as an effort to counteract the side effects of verapamil a few years ago. Stunningly bad idea.

Well I definitely feel I'm among friends now. Nothing is off limits here Grin

Also kinda answered some delicate questions (does it, not the medicine I'm talkin about, you know, trigger one?...a headache I mean) I was too embarrassed to ask.

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« Last Edit: Sep 13^th, 2010 at 8:38pm by his wife »

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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Testing?? Reply #34 - Sep 13^th, 2010 at 8:52pm Well the good news is...we haven't found much in the way of "off limit" topics here...it's about the only place we can ask a lot of them! Since the topic is open...has anyone asked their doc's about the problems with the viagra type drugs combined with our imitrex etc.? Joe
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Testing?? Reply #35 - Sep 13^th, 2010 at 9:35pm his wife wrote on Sep 13^th, 2010 at 8:33pm: Also kinda answered some delicate questions (does it, not the medicine I'm talkin about, you know, trigger one?...a headache I mean) I was too embarrassed to ask. Every single time I tried it. The good news it, no more need now that verapamil is a thing of the past for me.
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his wife CH.com Old Timer Offline The sweetest sound is my children's laughter Posts: 271	Re: Testing?? Reply #36 - Sep 13^th, 2010 at 9:44pm Ok, all embarassment aside, I'll quit beating around the bush, no pun intended. I'll spell it out (literally) does S-E-X trigger an A-T-T-A-C-K? There I asked it and capitalized it so I'm shoutin it from the rooftops!! (Thank God I'm anonymous)
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Testing?? Reply #37 - Sep 13^th, 2010 at 9:57pm For some...yes. Like it doesn't take enough away from your life! I'm fortunate in that it has never been a trigger for me. One more thing you'll just have to keep track of and decide for yourselves if it is a trigger or not. JOe
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Testing?? Reply #38 - Sep 13^th, 2010 at 10:02pm Sorry - I thought you meant the Viagra. No, sex itself doesn't trigger attacks for me (at least it didn't back in 1998 when last I tried). (I'm kidding, honey.)
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Joni CH.com Old Timer Offline Knowledge is Power Posts: 476 Gender:	Re: Testing?? Reply #39 - Sep 14^th, 2010 at 1:34am Agostino Leyre wrote on Sep 13^th, 2010 at 9:06am: Do any docs still do the nitro glycerin test? Wouldn't that be cruel?
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Mike NZ

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Re: Testing??
Reply #40 - Sep 14^th, 2010 at 2:13am

Joni wrote on Sep 14^th, 2010 at 1:34am:

Agostino Leyre wrote on Sep 13^th, 2010 at 9:06am:

Do any docs still do the nitro glycerin test?

Wouldn't that be cruel?

In a way, yes as if the person has CHs then they'll get a CH, which we know all too well is rather painful.

However if the person doing the test has effective CH abortives, like oxygen and / or imitrex, which are used to cut the CH short then it will result in a rapid diagnosis, with the CH attack cut short, minimising the pain.

I'd rather have gone through this than a load of tests which took time and considerable expense whilst I was having multiple CHs with no effective medication as at the time I'd not got a diagnosis.

So I'd not consider it cruel given that I'd see a net reduction in pain.

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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: Testing?? Reply #41 - Sep 14^th, 2010 at 11:54am Right on Mike. Ask the people who have had sinus surgeries, tooth extractions, braces, adjustments, and various other un-necessary medical procedures, if they would forego those by just suffering one CH attack in a Dr's office with O2 at the ready.
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