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New CH.com Forum › Daily Chat › General Posts › Hello fellow sufferers.

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Hello fellow sufferers. (Read 686 times)

tongy7

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Hello fellow sufferers.
Sep 10^th, 2010 at 11:18am

Hi to one & all

My names Allen James and Im based in Cornwall, united kingdom and I have been diagnosed with SUNCT for the last 5 years.

Im almost 35 years old and I have been in constant pain of different intensity now for the above duration. Ive tried every drug known to man and to no avail, and Im scared of surgery so dont know what to do or where to turn.

Ive just learnt to live with the pain as best as I can but Im recently noticing that its affecting my concentration and memory more and more. I currently have around 120 attacks a day but in its hey day, it was recorded at 300+ a day, so as you can see, Im having it bad.

It would be good to exchange advice or experiences with other sufferers and if I can help anyone else, just ask.

Bye for now

Allen James

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Hello fellow sufferers. Reply #1 - Sep 10^th, 2010 at 11:59am There is one other person here who suffers from SUNCT. His name is Matt and I hope he sees this thread so he can try and help you or compare notes or at least commiserate.
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BigMatt

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Re: Hello fellow sufferers.
Reply #2 - Sep 10^th, 2010 at 12:18pm

Another SUNCTY sufferer?
Allen I have had SUNCT for about 8 years now and know exactly what you are talking about my brother in pain and I am sorry you have to suffer but excited to be able to talk to someone that has the same thing that I do. You will love this site even though we do not have CH these people will welcome you like a brother and give you the best support. I will send you a PM to give you my contact info, would love to chat with you.

Matt

There is no stronger a person then one who can deal with brain pain and still function.

http://www.facebook.com/#/home.php?ref=home

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Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Hello fellow sufferers. Reply #3 - Sep 10^th, 2010 at 1:22pm Good onya Matt.
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Hello fellow sufferers. Reply #4 - Sep 10^th, 2010 at 2:21pm While we will welcome you with open arms, unfortunately SUNCT is not something many of us have any experience with, so we may not be of much help.
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BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Hello fellow sufferers. Reply #5 - Sep 10^th, 2010 at 4:08pm Brew don’t count yourself short here, you guys may not have info on treatment but the support you have given me over the years I would not trade for anything, a better group of people there is not.
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