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hhsams

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O2 Users....Do you own your high flow regulator???
Sep 11^th, 2010 at 5:21pm

Ughhh!! My husband has just started a new cycle today after a year break... got to start the morning off with a Imitrex shot.... so frustrating, we are always hoping that the cycles won't come back!!

Anyway, my question is..... for those of you who use O2, do you own your high flow regulator or do you get the whole set up from the Oxygen company each time your cycle starts? Since its been over a year since he's had a CH & we turned our stuff back in to them in Feb.... big mistake, now they want to charge us $200 for a "set up" fee for new tanks, regulator & cart. What I'm wondering is maybe I should buy my own high flow regulator to keep and just get tanks only from them.... does anyone else do that?? Don't even know if they will let me do that... will have to wait til Monday to find out.

The other thing is that the O2 company only has a few high flow regulators and i'm always nervous they won't be able to locate one when we need it.

Any advice on this would be very appreciated..... we really need to get the cost of this under control.... the cost of Imitrex shots are enough to deal with!!

Thanks so much,
Holly

P.S. If you think I should buy a regulator which one do you recommend? Do you need a prescription to buy one?

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his wife

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Re: O2 Users....Do you own your high flow regulator???
Reply #1 - Sep 11^th, 2010 at 5:51pm

hhsams, sorry your husband is experiencing a cycle. Wife-to-Wife I know what it's like to try to take care of things like meds and the like. I've learned here that Marc is the oxygen guru of this bunch and he's helped me understand the different O2 stuff. Go back to the medicines, therapies, etc..thread and read his "my favorite 02 regulator" post. You will learn alot! I just purchased the O2timask offered thru this website and a welding regulator for his large M medical tank, no prescription needed. We keep his tank filled year round so we don't turn it back in, never know when a cycle will hit. I know what you mean about the cost of the trex shots...that's if you're lucky enough to have an insurance company that will let you have more than a couple each month! Good luck to you and keep the faith!

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Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: O2 Users....Do you own your high flow regulator??? Reply #2 - Sep 11^th, 2010 at 6:14pm Yes, I own several and only rent the tanks. For a post type hook up try these guys: Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
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bejeeber

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Re: O2 Users....Do you own your high flow regulator???
Reply #3 - Sep 11^th, 2010 at 7:51pm

Hi hhsams,

It's pretty standard procedure to own your own regulator alright, and IMO the O2 supplier doesn't need to know about it. When they drop off my tanks I say thanks (as if I'm really going to use the POS 8 LPM regulators they have on there), and practically before the door has closed behind them I'm yanking their regulator off and putting my nice high LPM regulator on. Cool

I suppose you're already aware of the imitrex tip that enables you to stretch to imitrex injection doses 2 to 3 times farther? Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: O2 Users....Do you own your high flow regulator??? Reply #4 - Sep 11^th, 2010 at 8:12pm Well, I don't "own" it - a cluster angel gave it to me.
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Callico

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Re: O2 Users....Do you own your high flow regulator???
Reply #5 - Sep 12^th, 2010 at 12:16am

I'm with Brew on this. He's not the prettiest angel you ever saw, but he is one! Cheesy

If you have trouble with the O2 supplier go out and buy a welding tank and your own regulator and bypass them totally. Some of these suppliers make me sick gouging the people that need their services the most.

While you are in process getting the oxygen click on the CH.com store button in yellow on the left and order an O2ptimask. It will probably beat the oxygen getting to you and will make a tremendous difference to your husband in using the O2.

Jerry

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"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

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Batch

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Re: O2 Users....Do you own your high flow regulator???
Reply #6 - Sep 12^th, 2010 at 1:42am

hhsams,

As a 25 liter/minute regulator is the fastest you'll be able to get from a home oxygen supplier, the simplest thing to do if you want higher flow rates is buy your own high flow regulator.

Racer gave you a good link for a CGA-870 Yoke type pin-indexed regulator for the smaller portable E-size oxygen cylinders. However, if your husband is having 3 or more CH a day, you're money ahead ordering the larger fixed M-sized oxygen cylinders or larger as the M-size cylinders hold enough oxygen for 20 to 30 aborts at flow rates of 25 liters/minute or more.

The higher flow rates that support hyperventilation result in much faster aborts so even though your husband may be using higher flow rates to abort his CH, he's not necessarily using more oxygen.

The larger M/H/K size cylinders have a CGA-540 cylinder fill fitting so will require a CGA-540 regulator. You can get one of the best 0 to 60 liter/minute regulators from Flotec Inc. They make two series regulators with this flow range. The less expensive series goes for around $140 and their top of the line InGage™ series goes for $190. I have two of the InGage™ series regulators and love them. See the photo below of my oxygen therapy kit:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

As you can see I use the $27.50 O2PTIMASK™ kit from the CH.com store at the left and also a demand valve. Both methods work equally well with the fastest aborts possible.

Take care,

V/R, Batch

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Bob P CH.com Hall of Famer Offline Shut up Bob! Posts: 4573 Clio,California Gender:	Re: O2 Users....Do you own your high flow regulator??? Reply #7 - Sep 13^th, 2010 at 8:08am Own one that goes to 30 lpm. Bought it on E-bay.
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Re: O2 Users....Do you own your high flow regulator???
Reply #8 - Sep 13^th, 2010 at 9:01am

Racer1_NC wrote on Sep 11^th, 2010 at 6:14pm:

Yes, I own several and only rent the tanks.

For a post type hook up try these guys:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Really, I went ahead and bought my tanks, I figured I would need them for a few more years at least. lol.

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Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&&

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Chad

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Re: O2 Users....Do you own your high flow regulator???
Reply #9 - Sep 13^th, 2010 at 10:04am

I definitely would get your own reg. and mask. Doctors can write on the script what flow rate they require, but if you have your own equipment other than the tank, you can increase the flow rate to your desire. My O2 supplier simply supplies my tanks and they don't ask any questions.
My reg. is only a 0-15 LPM reg and 15 LPM works just fine for me, but for some that is too little. If I see it doesn't work in future cycles, i'll just get online and buy one that goes 25 LPM plus. You can buy the mask set up on the left of your screen (CH.com store).
The reg you can see others gave you good links already. That firehousemedical is the best price I've seen yet. Ebay would be my next choice.

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« Last Edit: Sep 13^th, 2010 at 10:07am by Chad »

When the PAIN starts, I FIGHT back!

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Guiseppi

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Re: O2 Users....Do you own your high flow regulator???
Reply #10 - Sep 13^th, 2010 at 10:35am

If you have the disposable income...check out the demand regulators. They can be pricey but they work great...as no matter how hard you draw...you will never max out the draw.

I also have 2 back up 25 LPM regulators I've picked up off the internet. Scared to death of not having 02 when i need it... Wink

Joe

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DennisM1045

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Re: O2 Users....Do you own your high flow regulator???
Reply #11 - Sep 14^th, 2010 at 10:37am

When I first got O2, my supplier provided two 15lpm regulators. One for my 8 e-tanks and one for my m-tank.

I felt like I was suffocating trying to slow down my breathing to the 15lpm rate. I knew I'd have better results with a higher flow rate. So about a year later a cluster Angel sent me a 25lpm e-tank regulator and it really improved things.

Last month I finally upgraded my m-tank regulator to a welding regulator bought off e-bay for $42 shipped. That thing is amazing. Abort times are down to 5 minutes now.

If you can find the cash, buy what you need. Just don't let your DME see you using it. They may give you trouble.

Remember, you don't have to flow O2 at the highest rates. Just find the rate that works for you. It's a very individual thing.

Good luck...

-Dennis-

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Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

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