Click this link to read a post I like on the clusterheadaches.com message board...

JustNotRight

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since 2005 aka GingerS224

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Raising Awareness
Sep 12^th, 2010 at 9:19am

In trying to do my part with raising awareness of CH I sent the following to the talk show 'Regis and Kelly' as a topic suggestion.

Quote:

Have you ever heard of Cluster headaches? I wouldn't be surprised if you hadn't. I am suggesting this as a topic for your show to help raise awareness of a disease I've suffered from for over 10 years now Cluster Headaches. There are thousands of us who deal with CH (Cluster Headaches) daily and not enough research is being done and the awareness of this condition is very limited.

Cluster headache, nicknamed "suicide headache", is a neurological disease that involves, as its most prominent feature, an immense degree of pain. (Imagine if you can someone taking a fire poker or ice pick and digging it around your brain behind you eye.) "Cluster" refers to the tendency of these headaches to occur periodically, with active periods interrupted by spontaneous remissions. The cause of the disease is currently unknown. It affects approximately 0.1% of the population, and men are more commonly affected than women.

I am a woman who suffers with this disease and frequently visit a forum at Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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for added support. There are at this time almost 8000 members from around the globe who go to this site for added support and to get questions answered when first diagnosed.

For more information on Cluster Headaches visit:
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Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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Please consider this as a show topic.
Sincerely,
Ginger

I am not home to watch the show nor do I Tivo it, but I know there are many out there who do on both counts. Here's hoping they decide to do a segment on it.

PF Wishes to All!

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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: Raising Awareness Reply #1 - Sep 12^th, 2010 at 2:29pm JustNotRight wrote on Sep 12^th, 2010 at 9:19am: the talk show 'Regis and Kelly' ... hoping they decide to do a segment on it. The lightbulb that clicks may be a show on cooking with ginger and cinnamon. Would be nice though, good efforts appreciated.
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JustNotRight

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CH version 15.0.8 member
since 2005 aka GingerS224

Posts: 1300
Wilkes-Barre, Pa (USA)
Gender: female

Re: Raising Awareness
Reply #2 - Sep 12^th, 2010 at 2:35pm

Kevin_M wrote on Sep 12^th, 2010 at 2:29pm:

JustNotRight wrote on Sep 12^th, 2010 at 9:19am:

the talk show 'Regis and Kelly' ... hoping they decide to do a segment on it.

The lightbulb that clicks may be a show on cooking with ginger and cinnamon.

Would be nice though, good efforts appreciated.

Now if I could only find someone named Cinnamon Grin

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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: Raising Awareness Reply #3 - Sep 12^th, 2010 at 2:40pm Oh I just went with the "S" sound of your last initial. Cinnamon sounded more savory than spinach.
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Sandy_C CH.com Sponsor Offline There is no such thing as a stupid question. Posts: 3371 Jamestown, NC Gender:	Re: Raising Awareness Reply #4 - Sep 12^th, 2010 at 9:38pm Cinnamon or Spinach - whatever. I think the "S" stands for special. Nice work Ginger. Keep us posted if you hear anything back. Fingers are crossed. Sandy
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Raising Awareness Reply #5 - Sep 13^th, 2010 at 11:20am The more we get it out there the better the chance a "celeb" will come out with it and give us the publicity we need! Joe PS: Is it a sin to wish it on Lindsy Lohan??? Seems the world hangs on her every pimple!!!!
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Raising Awareness Reply #6 - Sep 13^th, 2010 at 11:45am Quote: Is it a sin to wish it on Lindsy Lohan??? Grin Seems the world hangs on her every pimple!!!! Congratulations on poking out my mind's eye.
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Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Raising Awareness Reply #7 - Sep 13^th, 2010 at 12:00pm Brew wrote on Sep 13^th, 2010 at 11:45am: Quote: Is it a sin to wish it on Lindsy Lohan??? Grin Seems the world hangs on her every pimple!!!! Congratulations on poking out my mind's eye. he he he
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mikstudie CH.com Old Timer Offline Beastmaster Posts: 284 Westland Mi. Gender:	Re: Raising Awareness Reply #8 - Sep 13^th, 2010 at 1:19pm Great idea Ginger,hope it works.
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JustNotRight CH.com Sponsor Offline CH version 15.0.8 member since 2005 aka GingerS224 Posts: 1300 Wilkes-Barre, Pa (USA) Gender:	Re: Raising Awareness Reply #9 - Sep 13^th, 2010 at 5:01pm Thanks Mikstudie me too! AND WTF? Lindsey Lohan for the love of God
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Mike NZ

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Oxygen rocks! D3 too!

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Re: Raising Awareness
Reply #10 - Sep 13^th, 2010 at 5:19pm

Lindsey Lohan seems to be old hat and someone called Justin Beeber is the latest and greatest for getting attention. I'd never heard of him until he visited New Zealand for a quick trip a few weeks ago.

Or is someone else the next big thing already?

(As you can tell we don't have kids so we're not up to date with all the teenage fads).

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Jackie CH.com Moderator CH.com Alumnus Offline Go For It!!! Posts: 5903 Goshen, IN Gender:	Re: Raising Awareness Reply #11 - Sep 13^th, 2010 at 5:57pm Good job, Ginger.... This may just be the time someone pays attention!
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