Click this link to read a post I like on the clusterheadaches.com message board...

tongy7

CH.com Newbie

Offline

I Love CH.com!

Posts: 7
United Kingdom
Gender: male

Another day = Another dose of hope
Sep 13^th, 2010 at 5:22pm

Im off to the doctors tomorrow to see about the next course of action with my medication and possible solution to these cluster migraines. Im looking forward to seeing someone again and explaining just whats going on.

Many thanks to Matt for his experiences and advice, I will consult my GP about it. I will update you all on what happens. Bye for now, Allen Shocked

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Another day = Another dose of hope Reply #1 - Sep 13^th, 2010 at 7:10pm Our prayers go with you, hoping you get some answers soon. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Another day = Another dose of hope Reply #2 - Sep 13^th, 2010 at 7:25pm I thought you said you were diagnosed with SUNCT?
Back to top	Hurt people.....hurt people. Think about it. IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Another day = Another dose of hope Reply #3 - Sep 13^th, 2010 at 9:03pm He was kind of self diagnosing....based on the answers from people here...especially Matt.....I think he's gonna see a doc and get some good answers! Good call. Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Another day = Another dose of hope Reply #4 - Sep 13^th, 2010 at 9:22pm I was basing what I said on Allens first post. Quote: My names Allen James and Im based in Cornwall, united kingdom and I have been diagnosed with SUNCT for the last 5 years. Sorry if I misread that Allen.
Back to top	Hurt people.....hurt people. Think about it. IP Logged

tongy7

CH.com Newbie

Offline

I Love CH.com!

Posts: 7
United Kingdom
Gender: male

Re: Another day = Another dose of hope
Reply #5 - Sep 14^th, 2010 at 5:12am

Yes I was diagnosed with sunct, what I was getting at was Im looking forward to getting to the next stage. what you dont know is that Ive been pumped full of drugs of all types for the last 5 years. None of which worked.

I was told the next possible stage is having a TENS type machine fitted to control the attacks when they are at their worst. Im looking forward to hopefully having some relief.

Also I have rejected my medication on the grounds that I am a father to 3 great kids and the medication I tried last made me moody and have snappy tendancies, hence I was no fun to be around. I just never returned to docs. I live with the pain now and I have done ok thus far but like I said before, I seem to have deteriorating memory and concentration. (its not a man thing!!! lol)

Going at 1600hrs GMT

Back to top

IP Logged

BigMatt

CH.com Hall of Famer

Offline

Live to ride, ride to
live.

Posts: 1089
Mountain View, CA
Gender: male

Re: Another day = Another dose of hope
Reply #6 - Sep 14^th, 2010 at 11:23am

Good luck Alan hope they can give you some relief, make sure to ask about the Lidocaine drip it may not break the cycle but the few hours you will be on it you will not have pain or symptoms and that after five years would feel like heaven even if only for a few hours. The drip would also be a clincher on the diagnosis since it seems everything I have read says that it relieves the symptoms in a SUNCT sufferer and sometimes makes it go into remission.

Good luck my friend and keep us posted.
PF wishes to you.
Matt

Back to top

There is no stronger a person then one who can deal with brain pain and still function.

http://www.facebook.com/#/home.php?ref=home

IP Logged

tongy7

CH.com Newbie

Offline

I Love CH.com!

Posts: 7
United Kingdom
Gender: male

Re: Another day = Another dose of hope
Reply #7 - Sep 14^th, 2010 at 12:27pm

Well Ive just returned from docs, and they have referred me back to my original neurologist, who I went private with. They want him to assess me again and make sure nothing sinister is occuring with the memory lapses. I refused the drugs once again and she seemed to think as I rejected them and also mentioned my job is being risked due to my SUNCT, they will speed my appointment up.

On another note, they said Ive got to have a cyst removed from my hand so all in all, Im falling apart!!! Im 34 for crying out loud!!! Thanks for the well wishes.

Back to top

IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: Another day = Another dose of hope Reply #8 - Sep 14^th, 2010 at 12:45pm I've warned my kids....getting old is NOT for wimps!!! Joe
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Click Here to visit the CH.com Facebook page!

BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Another day = Another dose of hope Reply #9 - Sep 14^th, 2010 at 4:09pm I am never going to grow old, oops, crap! It’s too late!
Back to top	There is no stronger a person then one who can deal with brain pain and still function. IP Logged

Mike NZ CH.com Hall of Famer Offline Oxygen rocks! D3 too! Posts: 3785 Auckland, New Zealand Gender:	Re: Another day = Another dose of hope Reply #10 - Sep 14^th, 2010 at 5:12pm Guiseppi wrote on Sep 14^th, 2010 at 12:45pm: I've warned my kids....getting old is NOT for wimps!!! Do we have any choice in the matter?
Back to top	IP Logged

Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Another day = Another dose of hope Reply #11 - Sep 14^th, 2010 at 5:16pm Mike NZ wrote on Sep 14^th, 2010 at 5:12pm: Do we have any choice in the matter? Yes. Die young and leave a good looking corpse.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

BigMatt CH.com Hall of Famer Offline Live to ride, ride to live. Posts: 1089 Mountain View, CA Gender:	Re: Another day = Another dose of hope Reply #12 - Sep 15^th, 2010 at 12:23pm Brew wrote on Sep 14^th, 2010 at 5:16pm: Mike NZ wrote on Sep 14^th, 2010 at 5:12pm: Do we have any choice in the matter? Yes. Die young and leave a good looking corpse. Oops! to late again dang it!
Back to top	There is no stronger a person then one who can deal with brain pain and still function. IP Logged

Charlie CH.com Alumnus Offline Happy to be here Posts: 18971 Jamestown, NY Gender:	Re: Another day = Another dose of hope Reply #13 - Sep 15^th, 2010 at 6:02pm It seems to me that you're going at this thing the right way which is a long way toward dealing with this horror as best we can. Oh.....Dying young.....beyond hope here....which is a pretty good state of affairs when I think about it. Charlie
Back to top	There is nothing more satisfying than being shot at without result---Winston Churchill IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!