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New From CA (Read 12323 times)
Jack
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Re: New From CA
Reply #25 - Nov 23rd, 2013 at 10:15am
 
D3. Should have written AI, for Anti Inflammatory...
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« Last Edit: Nov 23rd, 2013 at 10:16am by Jack »  
 
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Guiseppi
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Re: New From CA
Reply #26 - Nov 23rd, 2013 at 1:50pm
 
Gotcha, that's great news, hoping it's the beginning of a LLLOOONNG break. And I hear you with the wifey, you can only be so quiet at 2:00 am when beasty visits. Roll Eyes

Joe
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Jack
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Re: New From CA
Reply #27 - Nov 25th, 2013 at 10:54pm
 
Guiseppi, you're not kidding!! She's a migraine sufferer, so she has a bit of an idea of what's going on.

OK, so I started the anti-inflammatory regimen on Thursday night, and aside from some very mild shadowing, I have not had an attack since Thursday morning. Anecdotal evidence? Absolutely. Is it working? No idea if I'm waning or if it's the vitamins, but either way, I'll take it.

For what it's worth, I tried taking my wife's Maxalt during a couple of attacks last week to see what would happen, and it was totally useless on my headaches. The first night it made me a little nauseous, and the second night it just left a bad taste in my mouth.

On a side note, I quit smoking almost two years ago, and now I "vape" only. I have a feeling that not having all the chemicals contained in cigarette smoke in me has probably made a huge difference in my clusters.
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« Last Edit: Nov 25th, 2013 at 11:01pm by Jack »  
 
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Guiseppi
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Re: New From CA
Reply #28 - Nov 26th, 2013 at 9:15am
 
Actually for many it works that fast. 3.5 years of taking it religiously, I don't ever intend to stop it!

Joe
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Jack
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Re: New From CA
Reply #29 - Nov 27th, 2013 at 6:53pm
 
Well, for the past two nights, I've had attacks. Red Bull has stopped working, and I've used both Imitrex injections. Insurance won't cover more for a month (WTF?), so I'll be paying out of pocket for another pair of shots tonight. Still taking the supplements.

I think the thing I hate most about these damnable headaches is how unpredictably predictable they are.
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Batch
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Re: New From CA
Reply #30 - Nov 29th, 2013 at 4:21pm
 
Hey Jack,

Have you tried the accelerated vitamin D3 dosing schedule?  It's one of the fastest ways of elevating your 25(OH)D serum concentration into the therapeutic range of 60 to 110 ng/mL where nearly all CH'ers, episodic and chronic, experience a favorable response to this regimen...

Take care and please keep us posted.

V/R, Batch
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Jack
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Re: New From CA
Reply #31 - Nov 30th, 2013 at 7:55pm
 
Batch,

No, I haven't tried the accelerated D3 dosing, but I'll certainly look into it. Thanks for the tip!!

Maxalt seems to be working, but only if it's not taken as an emergency abortive. In the middle of the night, Imitrex is still king. During the day, if I realize that I'm getting an attack, I can take a Maxalt and it's been working OK.
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Jack
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Re: New From CA
Reply #32 - Dec 3rd, 2013 at 9:27am
 
Spent most of Saturday and all of Sunday in bed. At 8:00 Sunday night, all of my head pain stopped. Made it through the last two nights with no problems at all. Yesterday was also pain free, but I did feel exhausted most of the day. So far so good today...
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Batch
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Re: New From CA
Reply #33 - Dec 3rd, 2013 at 4:32pm
 
Hey Jack,

Thanks for the update...  Great news!  Using a little hindsight... was this cessation of CH symptoms associated with end of cycle... or the vitamin D3 regimen?

Take care,

V/R, Batch
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there
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Jack
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Re: New From CA
Reply #34 - Dec 5th, 2013 at 5:51am
 
Batch, I have no idea. Got an attack last night just as I was drifting off to sleep. Not terrible, and slow moving enough that I debated for a few minutes as to whether or not I should use the last Imitrex injection I had on hand. (I went ahead and used it.)

The night before last, I woke up at one point with a bit of pain, but went right back to sleep. Honestly, I'm still trying to figure out if it was just a dream...
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Jack
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Re: New From CA
Reply #35 - Dec 10th, 2013 at 9:16am
 
It's now Tuesday morning, and I haven't had an attack or any significant pain since Saturday. Go figure.
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Guiseppi
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Re: New From CA
Reply #36 - Dec 10th, 2013 at 9:23am
 
Kiss that cycle good bye Jack! Hope it's a lifetime remission.

Joe
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Jack
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Re: New From CA
Reply #37 - Dec 12th, 2013 at 7:35am
 
Thanks, Joe!! Same here. I think I'm going to try to use this thread as a headache diary.
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Jack
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Re: New From CA
Reply #38 - Jan 5th, 2014 at 9:22pm
 
It's now been several weeks, and no pain at all since the last time I wrote.
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Guiseppi
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Re: New From CA
Reply #39 - Jan 5th, 2014 at 9:58pm
 
Always great to hear Jack! Smiley
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Re: New From CA
Reply #40 - Jan 5th, 2014 at 10:07pm
 
Hi Jack,
Hoping your on your way, to a CH free life.

Hoppy.
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maz
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Re: New From CA
Reply #41 - Jan 6th, 2014 at 5:41am
 
Hi Jack.
If your insurance will only cover a limited number of injections per month, stockpile a few while you are in remission, to help you through the next time. But hopefully the D3 will prevent next time happening.
Hope your remission lasts for ever.
Maz.
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Re: New From CA
Reply #42 - Jan 6th, 2014 at 10:04am
 
Change your profession, the fumes from your every day work life is causing the cycles.
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Guiseppi
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Re: New From CA
Reply #43 - Jan 6th, 2014 at 11:25am
 
Welcome to the board michen, if only it were that simple! Cheesy The actual cause of CH is still a bit of a medical mystery with most research centering on our hypo-thalamus. Avoiding triggers will reduce the number of attacks but will not prevent CH. My triggers are alcohol, sleep deprivation or dramatic changes in sleep cycle, and sustained stress. If I religiously avoid these triggers when I'm on cycle, I'll reduce the total number of attacks, but won't stop my CH. Off cycle NOTHING triggers an attack!

Glad you checked in on the board, Bob has given you some excellent advice in response to your first post. You'll find your greatest weapon against the beast is knowledge and there's a boatload of that here. Welcome to the board.

Joe
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wimsey1
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Re: New From CA
Reply #44 - Jan 7th, 2014 at 8:54am
 
mmcmichen wrote on Jan 6th, 2014 at 10:04am:
Change your profession, the fumes from your every day work life is causing the cycles.

Yeah, what Joe said, and what I said in my previous post to your intro. Again, fumes can be bad, fumes can trigger, but they ain't the cause. blessings. lance
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Jack
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Re: New From CA
Reply #45 - Jan 8th, 2014 at 10:35pm
 
I totally agree with wimsey and Joe. Sure, when I'm in cycle, the fumes from welding and the fumes from the lubricants I use daily while machining can certainly be triggers. But what caused them, then, before I began welding and machining? I'm 43 now, and have been in my profession since I was in my 20s. I've had clusters at least since my early teens, if not earlier.

Anyway, still no pain. Back to work today after having been off since December 20.

Thanks, Hoppy!! I hope so, too. And maz, that's the plan.  Smiley
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Jack
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Re: New From CA
Reply #46 - Jan 18th, 2014 at 8:29pm
 
Another "yay me!" post. Still PF.
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Jack
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Re: New From CA
Reply #47 - Feb 4th, 2014 at 7:10am
 
And... Still PF.
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Guiseppi
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Re: New From CA
Reply #48 - Feb 4th, 2014 at 9:26am
 
Smiley Doin the happy dance for ya Jack!
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Re: New From CA
Reply #49 - Feb 4th, 2014 at 10:29pm
 
Thanks Joe. Stress apparently isn't a factor when it comes to being out of cycle with clusters. I know this because my mom passed away about a month ago, and while I have been extremely stressed (and sad, and scared, and heartbroken), I haven't had any clusters at all since this last cycle ended.
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