catlind
CH.com ModeratorCH.com Alumnus
   
Offline

Surf's Up!
Posts: 4536
Weaverville NC
Gender:
|
Jeannie, best way I can describe it is how the doc that diagnosed it put it to me - he asked me if I had a feeling of butterflies in my chest - and when I said yes, and let him know that I had, had that for as long as I could recall (keep in mind 16 y/o's don't do much in the recall dept hehe); they did some tests, what they were I couldn't tell ya, it was too long ago, and told me I had heart palpitations.
Carl, I had wondered if there was a cardiac connection myself, especially with the O2 being such an effective tool; during one hospital trip for cardiac issues - ekg with abnormal readings - ST segment and irregular heartbeat, with an extremely fast heart rate and very low blood pressure, as well as possible left atrium enlargement - they decided they were going to hook me up to everything under the sun. They were very concerned with the erratic rhythm of the heart, and ended up giving me IV nitro despite my extreme protest. That brings on a mother F*cker attack like I've never had before - they refused me triptans, and when I was yelling for the O2, the nurse kept saying but your O2 sats are at 98%, you don't need more oxygen; Clark finally had to step in and let them know it was to abort the attack;
What we did learn, is that as a cardiac patient, giving me nitro and the ensuing CH attack it triggered, was the biggest mistake that could have been made. Fortunately, I was having a mild cardiac event with the spasms - had I been having a heart attack (and this is according to the cardiologist who reviewed the chart after they admitted me) the stress the nitro induced attack put on me, as evidenced by how crazy my vitals went, would likely kill me.
I was advised by 2 different cardiologists now, to NEVER let them give me nitro for any suspected cardiac event. If I end up in the ER for a suspected event, and they get an abnormal ekg, they are under NO CIRCUMSTANCES to administer nitro. They have used ativan in place of the nitro the last 2 times I was hospitalized for the spasms.
Interesting enough, my son has also been diagnosed with ECH, and that came about 2 years after he was diagnosed with a heart murmur - a mild mitral valve prolapse, congenital heart defect. So, who knows.
My own theory for CH, and I've talked with Doc Finkel about it, is that no two sufferers are the same, and no triggering factors can be isolated as the same ones in multiple sufferers. I think it takes a series of events, from sinus infections, knocks on the head, cardiac conditions....whatever the magic sequence is, it appears to be different for each person.
Hopefully you'll be able to get things resolved without having to go through many tests before they have an answer that will put your mind, and heart, at ease;
Cat
|